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Consensus Study Report

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Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors’ health and quality of life.

The more than two-thirds of childhood cancer survivors who experience late effects -- that is, complications, disabilities, or adverse outcomes -- as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.

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Suggested Citation

Institute of Medicine and National Research Council. 2003. Childhood Cancer Survivorship: Improving Care and Quality of Life. Washington, DC: The National Academies Press. https://doi.org/10.17226/10767.

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Publication Info

224 pages |  6 x 9 | 

ISBNs: 
  • Paperback:  978-0-309-08898-5
  • Ebook:  978-0-309-16719-2
DOI: https://doi.org/10.17226/10767
Chapters skim
Front Matter i-xviii
Summary 1-14
1. Introduction 15-19
2. The Epidemiology of Childhood Cancer 20-36
3. The Trajectory of Childhood Cancer Care 37-48
4. Late Effects of Childhood Cancer 49-89
5. Delivering Survivorship Care 90-127
6. Assuring Appropriate Educational Support Services 128-139
7. Employment, Insurance, and Economic Issues 140-165
8. Research Issues 166-187
9. Findings and Recommendations 188-206

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