Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

National Research Council and Institute of Medicine

doi:10.17226/11450

Consensus Study Report

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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

(2005)

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.

Contributor(s): National Research Council; Division of Behavioral and Social Sciences and Education; Institute of Medicine; Board on Children, Youth, and Families; Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families; Bernard Lo and Mary Ellen O'Connell, Editors

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National Research Council and Institute of Medicine. 2005. Ethical Considerations for Research on Housing-Related Health Hazards Involving Children. Washington, DC: The National Academies Press. https://doi.org/10.17226/11450.

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Publication Info

216 pages | 6 x 9 |

ISBNs:

Paperback: 978-0-309-09726-0
Ebook: 978-0-309-16492-4

DOI: https://doi.org/10.17226/11450

Chapters		skim
Front Matter	i-xx
Executive Summary	1-12
1 Introduction	13-23
2 Housing and Health	24-40
3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues	41-61
4 Characteristics of Housing Health Hazards Research	62-75
5 Community Involvement	76-98
6 Parental Permission, Consent, and Payment	99-123
7 Researchers' Responsibilities	124-144
8 Research Oversight	145-162
References	163-188
Appendix Biographical Sketches of Committee Members and Staff	189-196

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