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Beginning in late 2004, the IOM began a project to take a new look at disability in America. It will review developments and progress since the publication of the 1991 and 1997 Institute reports. For technical contracting reasons, the new project was split into two phases. During the limited first phase, a committee appointed by IOM planned and convened a 1-day workshop to examine a subset of topics as background for the second phase of project. As was agreed upon with the sponsor of the workshop, the Centers for Disease Control and Prevention (CDC), the topics were:

  • methodological and policy issues related to the conceptualization, definition, measurement, and monitoring of disability and health over time;
  • trends in the amount, types, and causes of disability;
  • disability across the age spectrum and in the context of normal aging; and
  • secondary health conditions.

The phase-one workshop was held in Washington, D.C. on August 1, 2005. Its participants included researchers, clinicians, social service professionals, policy experts, and consumer representatives and advocates. The meeting agenda and list of participants are included in Appendix A. Workshop on Disability in America: A New Look- Summary and Background Papers summarizes the workshop presentations and discussions. The background papers prepared for the workshop are included in Appendixes B through O. Some papers were submitted and circulated in advance of the meeting, whereas others were first presented at the meeting. The analyses, definitions, and views presented in the papers are those of the paper authors and are not necessarily those of the IOM committee. Likewise, the discussion summary is limited to the views of the workshop participants.

Suggested Citation

Institute of Medicine. 2006. Workshop on Disability in America: A New Look: Summary and Background Papers. Washington, DC: The National Academies Press.

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Publication Info

292 pages |  6 x 9 | 

  • Paperback:  978-0-309-10090-8
  • Ebook:  978-0-309-16474-0
Chapters skim
Front Matter i-xvi
Introduction 1-3
Summary of Workshop Presentations and Discussions 4-38
Appendix A Workshop Agenda and Participants 39-49
Appendix B Conceptual Models of Disability: Past, Present, and Future--Gale Whiteneck 50-66
Appendix C Defining and Classifying Disability in Children--Rune J. Simeonsson 67-87
Appendix D How Does the Environment Influence Disability? Examining the Evidence--Julie J. Keysor 88-100
Appendix E Late-Life Disability Trends: An Overview of Current Evidence--Vicki A. Freedman 101-112
Appendix F Chronic Disease and Trends in Severe Disability in Working-Age Populations--Jay Bhattacharya, Kavita Choudhry, and Darius Lakdawalla 113-142
Appendix G Trends in Disability in Early Life--Ruth E. K. Stein 143-156
Appendix H Aspects of Disability Across the Life Span: Risk Factors for Disability in Late Life--Jack M. Guralnik 157-165
Appendix I Health Care Transition of Adolescents and Young Adults with Disabilities and Special Health Care Needs: New Perspectives--John Reiss and Robert Gibson 166-184
Appendix J Secondary Conditions and Disability--Margaret A. Turk 185-193
Appendix K A User’s Perspective on Midlife (Ages 18 to 65) Aging with Disability--June Isaacson Kailes 194-204
Appendix L Impact of Exercise on Targeted Secondary Conditions--James H. Rimmer and Swati S. Shenoy 205-221
Appendix M Secondary Conditions with Spinal Cord Injury--William A. Bauman 222-233
Appendix N Depression as a Secondary Condition in People with Disabilities-Bryan Kemp 234-250
Appendix O Promoting Health and Preventing Secondary Conditions Among Adults with Developmental Disabilities--Tom Seekins, Meg Traci, Donna Bainbridge, Kathy Humphries, Nancy Cunningham, Rod Brod, and James Sherman 251-264
Appendix P Biographical Sketches of Workshop Committee and Workshop Presenters 265-276

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