Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary reviews the statement of task set to the committee which required them to collect sexual orientation and gender identity data in electronic health records. This report summarizes the invited presentations and facilitated discussions about current practices around sexual orientation and gender identity data collection, the challenges in collecting these data, and ways in which these challenges can be overcome.
Areas of focus for the workshop include the clinical rationale behind collecting these data, standardized questions that can be used to collect these data, mechanisms for supporting providers and patients in the collection of these data, technical specifications involved in creating standards for sexual orientation and gender identity data collection and exchange, and policy considerations related to the health information technology (HIT) Meaningful Use process being overseen by the Department of Health and Human Services. This report summarizes the workshop agenda, select invited speakers and discussants, and moderate the discussions. Invited participants will include lesbian, gay, bisexual, and transgender (LGBT) health care consumer advocates, providers with experience working with LGBT populations, HIT vendors and other HIT specialists, health care administrators, and policy makers.
Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. https://doi.org/10.17226/18260.
|1 Introduction and Overview||1-4|
|2 Clinical Rationale for Collecting Sexual Orientation and Gender Identity Data||5-14|
|3 Federal Perspective on the Use of Electronic Health Records to Collect Sexual Orientation and Gender Identity Data||15-24|
|4 Existing Data Collection Practices in Clinical Settings||25-38|
|5 Developing and Implementing Questions for Collecting Data on Sexual Orientation and Gender Identity||39-50|
|6 Closing Remarks||51-52|
|Appendix A: Workshop Agenda||55-58|
|Appendix B: Registered Workshop Attendees||59-62|
|Appendix C: Biographical Sketches of Workshop Speakers||63-74|
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