Skip to main content
Consensus Study Report

VIEW LARGER COVER

Download Free PDF
Read Free Online
Buy Paperback:$95.00

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.

Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered:

  • Quality control in genetic testing.
  • Appropriate roles for public agencies, private health practitioners, and laboratories.
  • Value-neutral education and counseling for persons considering testing.
  • Use of test results in insurance, employment, and other settings.

Topics

Suggested Citation

Institute of Medicine. 1994. Assessing Genetic Risks: Implications for Health and Social Policy. Washington, DC: The National Academies Press. https://doi.org/10.17226/2057.

Import this citation to:

Publication Info

352 pages | 6 x 9 | Paperback
ISBN: 978-0-309-08660-8
DOI: https://doi.org/10.17226/2057
Chapters skim
Front Matter i-xiv
Exective Summary 1-28
1 Setting the Stage 29-58
2 Genetic Testing and Assessment 59-115
3 Laboratory Issues in Human Genetics 116-145
4 Issues in Genetic Counseling 146-184
5 Public Education in Genetics 185-201
6 Personnel Issues in Human Genetics 202-233
7 Financing of Genetic Testing and Screening Services 234-246
8 Social, Legal, and Ethical Implications of Genetic Testing 247-289
9 Research and Policy Agenda 290-308
Appendix A: Workshop Participants 309-316
Appendix B: Committee Biographies 317-324
Index 325-338

What is skim?

The Chapter Skim search tool presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter. You may select key terms to highlight them within pages of each chapter.

Copyright Information

The National Academies Press (NAP) has partnered with Copyright Clearance Center's Rightslink service to offer you a variety of options for reusing NAP content. Through Rightslink, you may request permission to reprint NAP content in another publication, course pack, secure website, or other media. Rightslink allows you to instantly obtain permission, pay related fees, and print a license directly from the NAP website. The complete terms and conditions of your reuse license can be found in the license agreement that will be made available to you during the online order process. To request permission through Rightslink you are required to create an account by filling out a simple online form. The following list describes license reuses offered by the National Academies Press (NAP) through Rightslink:

  • Republish text, tables, figures, or images in print
  • Post on a secure Intranet/Extranet website
  • Use in a PowerPoint Presentation
  • Distribute via CD-ROM
  • Photocopy

Click here to obtain permission for the above reuses. If you have questions or comments concerning the Rightslink service, please contact:

Rightslink Customer Care
Tel (toll free): 877/622-5543
Tel: 978/777-9929
E-mail: customercare@copyright.com
Web: http://www.rightslink.com

To request permission to distribute a PDF, please contact our Customer Service Department at 800-624-6242 for pricing.

To request permission to translate a book published by the National Academies Press or its imprint, the Joseph Henry Press, pleaseclick here to view more information.

loading iconLoading stats for Assessing Genetic Risks: Implications for Health and Social Policy...