Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.
Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered:
Institute of Medicine. 1994. Assessing Genetic Risks: Implications for Health and Social Policy. Washington, DC: The National Academies Press. https://doi.org/10.17226/2057.
|1 Setting the Stage||29-58|
|2 Genetic Testing and Assessment||59-115|
|3 Laboratory Issues in Human Genetics||116-145|
|4 Issues in Genetic Counseling||146-184|
|5 Public Education in Genetics||185-201|
|6 Personnel Issues in Human Genetics||202-233|
|7 Financing of Genetic Testing and Screening Services||234-246|
|8 Social, Legal, and Ethical Implications of Genetic Testing||247-289|
|9 Research and Policy Agenda||290-308|
|Appendix A: Workshop Participants||309-316|
|Appendix B: Committee Biographies||317-324|
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