The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
Institute of Medicine. 2000. Protecting Data Privacy in Health Services Research. Washington, DC: The National Academies Press. https://doi.org/10.17226/9952.
|2 Human Subjects Protection and Health Services Research in Federal Regulations||40-50|
|3 Best Practices for IRB Review of Health Services Research Subject to Federal Regulations||51-70|
|4 Best Practices for IRB or Other Review Board Oversight of Health Services Research Not Necessarily Subject to Federal Regulations||71-77|
|5 Recommendations for Next Steps||78-92|
|Acronyms and Abbreviations||99-100|
|Appendix A Study Activities||101-105|
|Appendix B Institutional Review Boards and Health Services Research Data Privacy: A Workshop Summary||106-158|
|Appendix C Protecting the Health Services Research Data of Minors||159-172|
|Appendix D Confidentiality of Health Information: International Comparative Approaches||173-186|
|Appendix E Biographical Sketches||187-192|
The Chapter Skim search tool presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter. You may select key terms to highlight them within pages of each chapter.
The National Academies Press (NAP) has partnered with Copyright Clearance Center's Rightslink service to offer you a variety of options for reusing NAP content. Through Rightslink, you may request permission to reprint NAP content in another publication, course pack, secure website, or other media. Rightslink allows you to instantly obtain permission, pay related fees, and print a license directly from the NAP website. The complete terms and conditions of your reuse license can be found in the license agreement that will be made available to you during the online order process. To request permission through Rightslink you are required to create an account by filling out a simple online form. The following list describes license reuses offered by the National Academies Press (NAP) through Rightslink:
Click here to obtain permission for the above reuses. If you have questions or comments concerning the Rightslink service, please contact:
Rightslink Customer Care
Tel (toll free): 877/622-5543
To request permission to distribute a PDF, please contact our Customer Service Department at 800-624-6242 for pricing.
To request permission to translate a book published by the National Academies Press or its imprint, the Joseph Henry Press, pleaseclick here to view more information.