%0 Book %A Institute of Medicine %A National Research Council %E Hewitt, Maria %E Weiner, Susan L. %E Simone, Joseph V. %T Childhood Cancer Survivorship: Improving Care and Quality of Life %@ 978-0-309-08898-5 %D 2003 %U https://nap.nationalacademies.org/catalog/10767/childhood-cancer-survivorship-improving-care-and-quality-of-life %> https://nap.nationalacademies.org/catalog/10767/childhood-cancer-survivorship-improving-care-and-quality-of-life %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 224 %X Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors’ health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects -- that is, complications, disabilities, or adverse outcomes -- as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans. %0 Book %A Institute of Medicine %E Levit, Laura A. %E Balogh, Erin P. %E Nass, Sharyl J. %E Ganz, Patricia A. %T Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis %@ 978-0-309-28660-2 %D 2013 %U https://nap.nationalacademies.org/catalog/18359/delivering-high-quality-cancer-care-charting-a-new-course-for %> https://nap.nationalacademies.org/catalog/18359/delivering-high-quality-cancer-care-charting-a-new-course-for %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 412 %X In the United States, approximately 14 million people have had cancer and more than 1.6 million new cases are diagnosed each year. However, more than a decade after the Institute of Medicine (IOM) first studied the quality of cancer care, the barriers to achieving excellent care for all cancer patients remain daunting. Care often is not patient-centered, many patients do not receive palliative care to manage their symptoms and side effects from treatment, and decisions about care often are not based on the latest scientific evidence. The cost of cancer care also is rising faster than many sectors of medicine—having increased to $125 billion in 2010 from $72 billion in 2004—and is projected to reach $173 billion by 2020. Rising costs are making cancer care less affordable for patients and their families and are creating disparities in patients' access to high-quality cancer care. There also are growing shortages of health professionals skilled in providing cancer care, and the number of adults age 65 and older—the group most susceptible to cancer—is expected to double by 2030, contributing to a 45 percent increase in the number of people developing cancer. The current care delivery system is poorly prepared to address the care needs of this population, which are complex due to altered physiology, functional and cognitive impairment, multiple coexisting diseases, increased side effects from treatment, and greater need for social support. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis presents a conceptual framework for improving the quality of cancer care. This study proposes improvements to six interconnected components of care: (1) engaged patients; (2) an adequately staffed, trained, and coordinated workforce; (3) evidence-based care; (4) learning health care information technology (IT); (5) translation of evidence into clinical practice, quality measurement and performance improvement; and (6) accessible and affordable care. This report recommends changes across the board in these areas to improve the quality of care. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis provides information for cancer care teams, patients and their families, researchers, quality metrics developers, and payers, as well as HHS, other federal agencies, and industry to reevaluate their current roles and responsibilities in cancer care and work together to develop a higher quality care delivery system. By working toward this shared goal, the cancer care community can improve the quality of life and outcomes for people facing a cancer diagnosis. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Johns, Michael M. E. %E Madhavan, Guru %E Amankwah, Francis K. %E Nass, Sharyl J. %T Guiding Cancer Control: A Path to Transformation %@ 978-0-309-49231-7 %D 2019 %U https://nap.nationalacademies.org/catalog/25438/guiding-cancer-control-a-path-to-transformation %> https://nap.nationalacademies.org/catalog/25438/guiding-cancer-control-a-path-to-transformation %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 174 %X Throughout history, perhaps no other disease has generated the level of social, scientific, and political discourse or has had the degree of cultural significance as cancer. A collective in the truest sense of the word, "cancer" is a clustering of different diseases that afflict individuals in different ways. Its burdens are equally broad and diverse, from the physical, financial, and psychological tolls it imposes on individuals to the costs it inflicts upon the nation's clinical care and public health systems, and despite decades of concerted efforts often referred to as the "war on cancer", those costs have only continued to grow over time. The causes and effects of cancer are complex—in part preventable and treatable, but also in part unknown, and perhaps even unknowable. Guiding Cancer Control defines the key principles, attributes, methods, and tools needed to achieve the goal of implementing an effective national cancer control plan. This report describes the current structure of cancer control from a local to global scale, identifies necessary goals for the system, and formulates the path towards integrated disease control systems and a cancer-free future. This framework is a crucial step in establishing an effective, efficient, and accountable system for controlling cancer and other diseases. %0 Book %A Institute of Medicine %A National Research Council %E Adamson, Peter C. %E Weiner, Susan L. %E Simone, Joseph V. %E Gelband, Hellen %T Making Better Drugs for Children with Cancer %@ 978-0-309-09608-9 %D 2005 %U https://nap.nationalacademies.org/catalog/11259/making-better-drugs-for-children-with-cancer %> https://nap.nationalacademies.org/catalog/11259/making-better-drugs-for-children-with-cancer %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 56 %X The successes that have been achieved in treating childhood cancers stand as beacons against the less dramatic improvements for adults with cancer. Progress began to accelerate in the 1960s and 1970s, as treatment regimens were built up, primarily by building combinations of chemotherapeutic drugs. However the near absence of research in pediatric cancer drug discovery threatens to halt the progress in childhood cancer treatment achieved during the past four decades. Making Better Drugs for Children with Cancer identifies the major issues to be addressed in developing new agents for childhood cancers, the gaps in research and development, and the steps that have been suggested to move the process forward. This report also makes a new proposal to capitalize on today's science to bring new treatments to children's cancers.