@BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Maria Hewitt and Susan L. Weiner and Joseph V. Simone", title = "Childhood Cancer Survivorship: Improving Care and Quality of Life", isbn = "978-0-309-08898-5", abstract = "Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors\u2019 health and quality of life. \n\nThe more than two-thirds of childhood cancer survivors who experience late effects -- that is, complications, disabilities, or adverse outcomes -- as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans. \n", url = "https://nap.nationalacademies.org/catalog/10767/childhood-cancer-survivorship-improving-care-and-quality-of-life", year = 2003, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Michael M. E. Johns and Guru Madhavan and Francis K. Amankwah and Sharyl J. Nass", title = "Guiding Cancer Control: A Path to Transformation", isbn = "978-0-309-49231-7", abstract = "Throughout history, perhaps no other disease has generated the level of social, scientific, and political discourse or has had the degree of cultural significance as cancer. A collective in the truest sense of the word, \"cancer\" is a clustering of different diseases that afflict individuals in different ways. Its burdens are equally broad and diverse, from the physical, financial, and psychological tolls it imposes on individuals to the costs it inflicts upon the nation's clinical care and public health systems, and despite decades of concerted efforts often referred to as the \"war on cancer\", those costs have only continued to grow over time. The causes and effects of cancer are complex\u2014in part preventable and treatable, but also in part unknown, and perhaps even unknowable.\n\nGuiding Cancer Control defines the key principles, attributes, methods, and tools needed to achieve the goal of implementing an effective national cancer control plan. This report describes the current structure of cancer control from a local to global scale, identifies necessary goals for the system, and formulates the path towards integrated disease control systems and a cancer-free future. This framework is a crucial step in establishing an effective, efficient, and accountable system for controlling cancer and other diseases.", url = "https://nap.nationalacademies.org/catalog/25438/guiding-cancer-control-a-path-to-transformation", year = 2019, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Laura Aiuppa and Maria Hewitt and Sharyl J. Nass", title = "Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop", isbn = "978-0-309-47298-2", abstract = "The 2006 Institute of Medicine (IOM) consensus study report From Cancer Patient to Cancer Survivor: Lost in Transition made recommendations to improve the quality of care that cancer survivors receive, in recognition that cancer survivors are at risk for significant physical, psychosocial, and financial repercussions from cancer and its treatment. Since then, efforts to recognize and address the unique needs of cancer survivors have increased, including an emphasis on improving the evidence base for cancer survivorship care and identifying best practices in the delivery of high-quality cancer survivorship care. \n\nTo examine progress in cancer survivorship care since the Lost in Transition report, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop in July 2017, in Washington, DC. Workshop participants highlighted potential opportunities to improve the planning, management, and delivery of cancer survivorship care. This publication summarizes the presentations and discussions from the workshop.", url = "https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a", year = 2018, publisher = "The National Academies Press", address = "Washington, DC" }