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APPENDIX III COMMITTEE BIOGRAPHIES Sheldon Greene, M.D. (Chair) Sheldon Greenfield is the Director of the Primary Care Outcomes Research Institute at Tufts University School of Medicine, Professor of Medicine and Community Medicine at Tufts University School of Medicine, and Adjunct Professor of Public Health, Harvard School of Public Health. He is an internist, having completed his residency at the Beth Israel Hospital in Boston where he began to work on clinical algorithms for nurse practitioners in the early 70's. He has pioneered research in increasing patients' participation in care and using outcomes to determine the value of that participation. He was Medical Director of the Medical Outcome Study (MOS), which sought to compare systems of care, specialties, various aspects of interpersonal care and resource use to outcome. He was Principal Investigator of the Type II Diabetes Patient Outcome Research Team (PORT). He was Co-director of the RAND-UCLA Center for Health Policy Study. He is former President of the Society of General Internal Medicine and was Chairman of the Health Care Technology Study Section for the Agency for Health Care Policy and Research. He was the 1995 recipient of the PEW Health Professions Commission Award for lifetime achievement in Primary Care Research. In ~ 997, he received the Glaser Award of the Society for General Internal Medicine. He is a member of the Institute of Medicine. He is Chairman of the Diabetes Quality Improvement Program, a joint venture of the Centers for Medicare and Medicaid Services, the National Committee for Quality Assurance, and the American Diabetes Association (ADA). He has been appointed Chair of the Provider Recognition Committee for the ADA, and is the 1999 recipient of the Novartis Global Outcomes Leadership Award of the International Society for Pharmacoeconomic Research. He was a member of the Institute of Medicine Committee on the National Quality Report on Health Care Delivery. 189
1 90 GUIDANCE FOR THE NATIONAL HEALTH CARE DISPARITIES REPORT Lu Ann Aday, Ph.D. Lu Ann Aday, Ph.D., is Lorne Bain Distinguished Professor in Public Health and Medicine at the University of Texas School of Public Health. She received her doctorate in sociology from Purdue University, and was formerly Associate Director for Research at the Center for Health Administration Studies of the University of Chicago. Dr. Aday's principal research interests have focused on indicators and correlates of health services utilization and access. She has conducted major national and community surveys and evaluations of national demonstrations and published extensively in this area, including thirteen books dealing with conceptual or empirical aspects of research on access to health and health care for vulnerable populations. Her most recent books - all of which have been published in second editions - include At Risk in America: The Health and Health Care Needs of Vulnerable Populations in the United States (Iossey-Bass, ISt ea., 1993; 2n~ ea., 2001~; Designing and Conducting Health Surveys: A Comprehensive Guidle (Iossey-Bass, 1St ea., 1989; 2n~ ea., 1996~; and Evaluating the Healthcare System: Effectiveness, Efficiency, and Equity (Health Administration Press, 1St ea., 1993; 2n~ ea., 1998~. She received the University of Texas at Houston Health Science Center Excellence in Scholarship Award; John P. McGovern Outstanding Teacher Award; Committee on the Status of Women Distinguished Professional Woman Award; and the Minnie Stevens Piper Foundation Award for Excellence in Teaching. Dr. Aday is a Member of the Institute of Medicine of the National Academy of Sciences. John Z. Ayanian, M.D., M.P.P. Dr. Ayanian is an Associate Professor of Medicine and Health Care Policy at Harvard Medical School and Brigham and Women's Hospital, where he practices general internal medicine. His research focuses on quality of care and access to care for major medical conditions, including colorectal cancer and myocardial infarction. He has extensive experience in the use of cancer registries to assess outcomes and evaluate the quality of cancer care. In addition, he has studied the effects of race and gender on access to kidney transplants and on quality of care for other medical conditions. Dr. Ayanian is Deputy Editor of the journal Medical Care, a Robert Wood Johnson
APPENDIX III 191 Foundation Generalist Physician Faculty Scholar, and a Fellow of the American College of Physicians. He is currently a member of the Institute of Medicine Committee on the Consequences of Uninsurance. James Bernstein, M.H.A. Currently serving as the Assistant Secretary for Health, Mr. Bernstein oversees the North Carolina Nepal lments of Facility Services, Medical Assistance, Mental Health, Minority Health, Public Health, and Rural Health. ~ 1973, Mr. Bernstein founded the nation's first Office of Rural Health, which has become the model for the nation in helping rural communities develop their own health care systems. Now known as the Office of Research, Demonstrations, and Rural Health Development, Mr. Bernstein's agency has further expanded its work and serves as the research and development arm of the N.C. Department of Health and Human Services. The Office is the lead agency for nine Medicaid managed care demonstrations covering 230,000 patients. In 1982, Mr. Bernstein founded the N.C. Foundation for Advanced Health Programs, a non-pro fit solely supported by private grant funding to carry out wide-ranging projects on health care delivery. Serving as its first and only President, he has secured private grant funding for a variety of projects, ranging from school health to pharmacy assistance for indigents to cost-effective health care delivery. Mr. Bernstein has served as President of the National Rural Health Association, and for six years as a member of the Prospective Payment Assessment Commission. He also has served on the Board of Directors of the Winthrop Rockefeller Foundation; and as program director of Practice Sights: State Primary Care Development Strategies, a Robert Wood Johnson Foundation national program. He is a Senior Research Fellow with the Sheps Center for Health Services Research at the University of North Carolina at Chapel Hill. Joseph Betancourt, M.D., M.P.H. Joseph Betancourt's primary interests include cross-cultural medicine, minority recruitment into the health professions, and minority health/health policy research. As a member of the Institute for Health Policy and Program Director for Multicultural Education at Massachusetts General Hospital (MGH), Dr. Betancourt's research has
1 92 GUIDANCE FOR THE NATIONAL HEALTH CARE DISPARITIES REPORT focused on: 1) correlating domains of cross-cultural communication and interpersonal processes of care in minority populations to adherence, utilization and outcomes; 2) developing a framework for cultural competence as both a health policy initiative and quality measure; and 3) exploring root causes for racial/ethnic disparities in heath. He is currently a Principal Investigator on a grant from the Centers for Medicare and Medicaid Services (CMS) entitled "Hispanic Health Services Utilization: Defining and Exploring Disparities" and on a grant from the Commonwealth Fund entitled "Cultural Competence in Health Care: A Practical Synthesis for Multilevel Policy Implementation." He is also Co-investigator on a National Cancer Institute grant entitled "Understanding Racial Differences in Lung Cancer Treatment." Dr. Betancourt is a member of the Institute of Medicine's Committee on Understanding and Eliminating Racial/Ethnic Disparities in Health Care. He is the author of several publications, co-editor of the special issue of Patient Care on eliminating racial and ethnic disparities in health, and a co-author of a paper published in Annals of Internal Medicine entitled "Cross- Cultural Primary Care: A Patient-Based Approach." Dr. Betancourt received his Bachelor of Science from the University of Maryland, his medical degree from the UMDNI-New Jersey Medical School, and completed his residency in Eternal Medicine at the New York Hospital-Cornell Medical Center. Following residency, he completed The Commonwealth Fund-Harvard University Fellowship in Minority Health Policy, and received his master's degree in public health from the Harvard School of Public Health. He served as Associate Director of the Center for Multicultural and Minority Health at New York Presbyterian Hospital-Weill Medical College of Cornell University before returning to Harvard. E. Richard Brown, Ph.D. Richard Brown is Professor of Community Health Sciences and Health Services in the UCLA School of Public Health and is the Director of the UCLA Center for Health Policy Research. He received his Ph.D. in sociology of education from the University of CaTifornia- Berkeley. Dr. Brown has studied and written extensively about a broad range of issues and policies that affect the access of disadvantaged populations to health care. His recent research focuses on health
APPENDIX III 193 insurance coverage, the lack of coverage, and the effects of public policies, managed care, and market conditions on access to health services, particularly for disadvantaged populations, Latinos and other racial and ethnic groups, and immigrants. Dr. Brown is the principal investigator for the new California Health Interview Survey (CHIS), one of the nation's largest ongoing health surveys, which is specially designed to be inclusive of California's ethnic and racial diversity. CHTS covers a broad range of health issues, including health status and conditions, a broad array of public health issues, and health insurance and access to care. CHIS results are disseminated to a very wide and diverse set of constituencies. Dr. Brown previously led a UCLA research team that pioneered the adaptation of the National Health Interview Survey to develop state-level estimates of health status and conditions, health care access, and the use of services. He also has been extensively involved in the analysis and development of public policies, with particular emphasis on health care reform. He served as a full-time senior consultant to the President's Task Force on National Health Care Reform, for which he co-chaired the work group on coverage for low-income families and individuals. He also has served as health policy adviser to two members of the United States Senate and several candidates for President. Dr. Brown has served on several National Academy of Science study committees, including the Committee on the Prevention and Control of Sexually Transmitted Diseases and the Committee on the Health and Adjustment of Immigrant Children and Families. He is a past President of the American Public Health Association. Kevin FiscelIa, M.D., M.P.H. Kevin FiscelIa is an Associate Professor in the Departments of Family Medicine and Community and Preventive Medicine, University of Rochester School of Medicine and Dentistry. He is a practicing family physician and serves as Co-director of Community Medicine in the Department of Family Medicine, HIV clinical
1 94 GUIDANCE FOR THE NATIONAL HEALTH CARE DISPARITIES REPORT coordinator at a federally qualified community health center, and medical director of a methadone maintenance program. His research focuses on disparities in health and health care quality related to socio-economic status (SES), race, and ethnicity. He recently completed a study supported by the Robert Wood Johnson Foundation and the Health Care Financing Organization that compared socioeconomic disparities in health care in HMOs with those in indemnity plans. He also recently completed a report for the National Quality Forum, entitled, "Using Existing Measures to Monitor Minority Health Care Quality." He is currently working on a project funded by the Agency for Healthcare Research and Quality (AH:RQ) that examines the impact of adjustment for patient SES on physician practice profiles and is preparing a report for AHRQ on state-of-the-art quality measurement for minority and vulnerable populations. Marsha Lillie-Blanton, D.P.H. Marsha Lillie-Blanton is a vice-president of the Henry I. Kaiser Family Foundation, where she directs policy research on access to care for vulnerable populations. Prior to joining the foundation, Dr. Lillie-Blanton served as Associate Director of Health Services Quality and Public Health Issues at the U.S. General Accounting Office. Dr. Lillie-Blanton has over fifteen years of work experience in health policy research and management positions, including serving formerly as Associate Director of the Kaiser Commission on the Future of Medicaid. From 1990-94, Dr. Lillie-Blanton was an assistant professor of health policy and management at the Johns Hopkins University School of Public Health. She currently holds an adjunct faculty position in the School of Public Health, and her primary research interests are in the areas of substance abuse, HIV/AIDS, and minority health. She has authored and co-authored numerous reports and publications. Her efforts in directing the work of eight teams of researchers analyzing data from the National Medical Expenditure Survey resulted in the publication Achieving Equitable Access: Studies of Health Care Issues Affecting Hispanics and African Americans. Dr. Lillie-Blanton is both a health policy researcher and a public health practitioner who is active in civic and local affairs. She currently serves as a member of the Medicaid Advisory Committee of the D.C.
APPENDIX III 195 Department of Health and the National Advisory Council for the Agency for Health Care Policy and Research. She is also an elected member of the National Academy of Social Insurance. Dr. Lillie- Blanton received a bachelor's degree from Howard University and a master's and doctoral degree from the Johns Hopkins University School of Public Health. Michael Marmot, Ph.D., M.P.H., F.R.C.P. Michael Marmot is Professor of Epidemiology and Public Health and Director of the International Centre for Health and Society (established in 1994) at University College London. He has previously held research posts at the University of California (Berkeley); the University of Sydney, Australia; and the London School of Hygiene & Tropical Medicine. His research interests center on the epidemiology and prevention of cardiovascular disease, and the social and cultural determinants of disease, with a particular focus on psychosocial factors and nutrition. He is currently Principal Investigator of the Whitehall studies of British civil servants, and Principal Investigator of the newly launched English Longitudinal Study of Aging. Together with the National Centre for Social Research, the International Centre for Health and Society conducts the Health Surveys for England and Scotland. New research initiatives include investigating social gradients in health in the Japanese, investigating causes of East-West differences in coronary heart disease, and pursuing an initiative on psychological triggers of biological pathways of disease. Professor Sir Michael was awarded an MRC Research Professorship in 1995. He was a member of the Chief Medical Officer's Committee on Medical Aspects of Food Policy and of the Chief Medical Officer's Working Group on "Our Healthier Nation"; a member of the MacArthur Foundation Network on Socio-Economic Status and Health; and a member of the Royal Commission on Environmental Pollution. He served on the Scientific Advisory Group of the Independent Inquiry into Health Inequalities chaired by Sir Donald Acheson, which reported in November 1998. He was knighted by HM The Queen in 2000.
1 96 GUIDANCE FOR THE NATIONAL HEALTH CARE DISPARITIES REPORT Doriane C. Miller, M.D. Doriane Miller joined the Robert Wood Johnson Foundation staff as program vice president in ~ 997. She brought the foundation 15 years' experience as a community-based primary care provider who had worked with underserved, minority populations with a special interest in mental health and substance abuse issues. She previously served as medical director of the Maxine Hall Health Center of the San Francisco Depa~-l~ent of Health, while also serving as assistant clinical professor of medicine in the Department of Medicine at San Francisco General Hospital, University of California, San Francisco. As a 1993 winner of an RWIF Community Health Leadership Award, she directed the Grandparents Who Care Support Group, which she co-founded in 1989. The program provides psychological help and community resources to relatives who are raising children because the children's' parents are mentally ill, incarcerated, or have substance abuse problems. At the foundation, she heads the Clinical Care Management Team of the Health Care Group. She is responsible for coordinating strategies and funding in the area of clinical care management and quality improvement, and serves on the Board of Directors of Grantmakers in Health. Dr. Miller continues her professional practice by volunteering at the Chandler Clinic in New Brunswick, New Jersey, a community health center serving a low income, predominantly minority community. Dr. Miller received her medical degree at the University of Chicago and completed her residency training at the University of California, San Francisco in primary care internal medicine. Eileen H. Peterson, M.S.P.H. Eileen Peterson oversees all research and evaluation functions for UnitedHealth Group's Center for Health Care Policy and Evaluation. She is responsible for a staff of research, analytic, and technical personnel engaged in the conduct of research projects in the areas of managed care effectiveness, quality of care evaluation and
APPENDIX III 197 improvement, and clinical and cost effectiveness studies. In addition to her management responsibilities, she has an active research interest in methods for measurement and evaluation of quality in health care. Currently, she is the contract manager for the Integrated Delivery System Research Network or Rapid-Response Research Network, which is the new model of f~eld-based research for the Agency for Healthcare Research and Quality (AHRQ). She is also the principal investigator of "Private Sector Data and Measures for the National Quality Report," which is a response to a congressional request for a report that will begin to shed light more systematically on the quality of care delivered in the U.S.. Previously, she led development of the Center's quality evaluation software, Quality Screening and Management (QSM), and the design of UnitedHealthcare's medical management information system. Before joining the Center, she had experience both as a clinician and researcher, focusing on the areas of children's health and chronic disease. She was involved with the conduct of clinical and population-based research at the University of Minnesota Medical School and the School of Public Health, and in the development of a research and analysis capacity at a large managed care health plan. She is an active consultant in the areas of managed care research and evaluation and serves as an advisor to AHRQ on its national research agenda. She has served on the advisory board for the National Policy Center for Children with Special Health Care Needs; and also is on the editorial board of Sage Publications for the book series, Managed Care Research. Eileen received bachelor's degrees with highest distinction in both business and nursing, and a master of science in public health from the University of Minnesota. Neil R. Powe, M.D., M.P.H., M.B.A Neil R. Powe is Professor of Medicine at the Johns Hopkins University School of Medicine, Professor of Epidemiology and Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health, and Director of the Welch Center for Prevention, Epidemiology and Clinical Research, a research and training center at the Johns Hopkins Medical Institutions focused on clinical and population-based research. His research has involved clinical epidemiology, health services research and patient outcomes research using prospective methods of randomized controlled trials and cohort
1 98 GUIDANCE FOR THE NATIONAL HEALTH CARE DISPARITIES REPORT studies, cost-effectiveness analysis, meta-analysis, and retrospective analyses of administrative databases and survey research. Dr. Powe has published more than 170 articles. Dr. Powe led the End-Stage Renal Disease Patient Outcomes Research Team and the ESRD Quality (EQUAL) Study. He has extensive experience in developing and measuring outcomes in chronic kidney disease. Dr. Powe has also studied racial differences in cardiovascular procedure use and kidney transplantation. Dr. Powe was a member of the TOM Committee on Measuring, Managing and Improving Quality of Care in the ESRD Treatment Setting. He has testified before the U.S. Congress on the role of patient outcomes research in improving the quality of care in the U.S. Medicare ESRD program and on how clinical evidence can be used in coverage decisions for new medical technology. Dr. Powe trained in internal medicine and epidemiology, receiving his M.D. degree from Harvard Medical School, his M.P.H. degree from Harvard School of Public Health, and his M.B.A. degree from the University of Pennsylvania. He completed residency at the Hospital of the University of Pennsylvania, where he was also a Robert Wood Johnson Clinical Scholar and fellow in the Division of General Internal Medicine. Dr. Powe is a member of the American Society of Clinical Investigation and a Fellow of the American College of Physicians. He is the recipient of several national awards, including the best article of year (2000) by the Academy for Health Services Research and Health Policy. He was named one of the leading African-American physicians in the U.S. (2001) by Black Enterprise magazine. David T. Takeuchi, Ph.D. David T. Takeuchi is Professor and Associate Dean of Research in the School of Social Work at the University of Washington. He is a sociologist with postdoctoral training in epidemiology and health services research. His research focuses on investigating the social, structural, and cultural contexts that are associated with different health outcomes, especially among racial and ethnic minorities. He also examines the use of health services in
APPENDIX III 199 different ethnic communities. He has published in a wide range of journals including the American Journal of Psychiatry, American Journal of Public Health, Archives of General Psychiatry, Contemporary Sociology, Journal of Community Psychology, Journal of Health and Social Behavior, Sociology of Education, and Social Forces. In addition to his scholarly work, he has assisted numerous community groups in conducting needs assessment and evaluation studies. He has written technical reports for community and state agencies on issues related to homelessness, discrimination confronting Hmong refugees and Filipino immigrants, multicultural education, Native Hawaiian health and mental health needs, and youth correctional programs.