TABLE C-1 Characteristics of State Traumatic Brain Injury (TBI) Programs by State, 2005
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Alabama Alabama Department of Rehabilitation Services Population: 4,447,100 2,780 hospitalized with TBI 24,351 emergency department (ED) visits for TBI 1,630 TBI disabled |
Implementation: 1997, 1998, 1999, 2000 Post-Demonstration: 2001, 2002, 2004 |
Alabama’s statewide TBI advisory board was established within the Department of Rehabilitation Services in 1986. Its 35 members are appointed by the commissioner of the Department of Rehabilitation Services. Board members consist of 85% agency staff; 15% consumers/family. The board meets quarterly. It engages in advocacy, collaboration, education, planning, and the development and monitoring of the implementation of a statewide TBI action plan. |
Alaska Alaska Department of Health and Social Services Population: 626,932 459 hospitalized with TBI 2,953 ED visits for TBI 177 TBI disabled |
Planning: 2000, 2002 Implementation: 2003, 2004, 2005 |
Alaska’s statewide TBI advisory board was established within the Division of Mental Health/Developmental Disabilities in 2000. The 20–24 board members consist of 21% agency staff; 50% consumers/family; 29% elected other members. The board has monthly teleconferences and meets quarterly. It engages in advocacy, collaboration, information/referral, planning in addition to overseeing the statewide TBI resource/needs assessment, and eventual development of a statewide TBI action plan. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): Trust fund State agency: Rehabilitation Services Year funding source established: 1993 Annual amount(s): $1.2 million Number served: 678 (information and referral); 1,359 (services) (2001–2002) Alabama’s trust fund is supported through fines on impaired drivers with driving under the influence (DUI) convictions at $100 per conviction. A portion of revenue is used to support a TBI registry; remaining funds provide direct or purchased services. |
Alabama has a trauma registry, TBI registry, and surveillance system. The TBI registry is mandated in statute, and data are reported to Alabama’s Department of Public Health. Consumers are contacted 3 months post injury and provided with information and linkage to resources. |
—Alabama’s Interactive Community-Based Model (ICBM) pairs survivors with a care coordinator to address preemployment issues, is a model for other states. —Alabama enacted graduated drivers’ license legislation in 2001–02. —Alabama’s expanded ICBM model to children in 2001 has served 518 children through Children’s Rehabilitation Services Division. —Alabama developed a screening tool, training for domestic violence providers in 2004 (five referrals made to vocational rehabilitation for employment services); implemented TBI screening for children in public schools, materials for educators. |
State TBI funding source(s): General revenue State agencies: Public Health; Mental Health/Developmental Disabilities Year funding source(s) established: 2001, 2001 Annual amount(s): $106,000, $105,000 (2001–2002) Number served: Not available, unknown Funding to Alaska’s Division of Mental Health/Developmental Disabilities serves as match for HRSA grant. |
Alaska has a trauma registry and surveillance system funded by the federal Centers for Disease Control and Prevention (CDC). |
—Alaska’s statewide TBI advisory board has 50% consumer/family representation in an extremely rural area. —Alaska is developing a Medicaid rehabilitation services pilot for persons with TBI who have mental illness and functional limitations. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Arizona Arizona Department of Economic Security State population: 5,130,632 4,114 hospitalized with TBI 25,229 ED visits for TBI 1,689 TBI disabled |
Implementation: 1997, 1998, 1999 Post-Demonstration: 2001 |
Arizona’s statewide TBI advisory board was established by statute within the Department of Economic Security, Rehabilitation Services Administration in 1992. The 18-member board is appointed by Arizona’s governor. It consists of 11% nonvoting agency staff; 39% consumers/family; 44% others. The board meets at least quarterly and addresses both brain and spinal cord injury issues, and engages in collaboration, education, funding decisions, information/referral, planning, and policy development. The board has produced curricula and resources for personal care assistants, other health care providers, families, teachers, and administrators. |
Arkansas Arkansas Department of Education State population: 2,673,400 1,263 hospitalized with TBI 15,225 ED visits for TBI 1,019 TBI disabled |
Planning: 2001, 2002 |
Arkansas’ statewide TBI advisory board was established within the University of Arkansas Medical School System in 2001. Of its 24 members, 46% are agency staff; 50% are consumers/family; 4% are other. The advisory board was established jointly by the Arkansas Department of Health and the Partners Program to conduct a statewide TBI resource/needs assessment and develop a statewide TBI action plan. It meets on an as-needed basis. |
California California Department of Mental Health |
Planning: 1999, 2001 |
California’s statewide TBI advisory board was established within the Department of Mental Health in 1999. Its 20 members are appointed by the director of the Department of Mental Health. They consist of 70% |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): Trust fund, Title V State agencies: Rehabilitation Services, Health Year funding source(s) established: 1992, 2001 Annual amount(s): $1.8–2.4 million, Number served: Not available A trust fund was established by statute, and is supported by surcharges on civil and criminal fines, penalties, forfeitures. The trust fund pays for prevention activities, case support, match against federal funding for vocational rehabilitation services, HRSA grant, staff positions, training, information, and referral. Title V funds augment service coordination, training/education, and prevention activities of service coordinators. |
Arizona has a trauma registry and surveillance system. |
—Arizona’s HRSA-funded resource cards have been replicated in other states. —Continuum of care teams in Arizona have built referral protocols, $200,000 which link children and families with resources. —Arizona’s trust fund provided a one-time appropriation of $3 million to sustain operation of two trauma centers in 2001–02. |
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Arkansas has been nationally recognized for instituting a model Olmstead plan,b which provides community long-term care support services for individuals with mental disabilities and brain injuries. |
State TBI funding source(s): Trust fund State agency: Mental Health Year funding source established: 1988 |
California has a TBI surveillance system. |
—California has caregiver resource centers for caregivers of adults with onset of cognitive and neurological impairments. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
California State population: 33,871,648 22,413 hospitalized with TBI 108,698 ED visits for TBI 7,274 TBI disabled |
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agency staff; 30% consumers/families. The board meets quarterly and is engaged in advocacy, collaboration, and planning, and will produce the statewide TBI resource/needs assessment and statewide TBI action plan. |
Colorado Colorado Department of Human Services State population: 4,301,261 3,206 hospitalized with TBI 21,054 ED visits for TBI 1,214 TBI disabled |
Planning: 1999 Implementation: 2001, 2002, 2003 Post-Demonstration: 2004 *TBI-specific Medicaid waiver (1995) |
Colorado’s statewide TBI advisory board, initially established in 1998 in Colorado’s Department of Human Services, Office of Behavioral Health and Housing, was designated lead coordinating agency for TBI by executive order in 2000. Its 32 members are elected by membership, and consist of 38% agency staff; 43% consumers/family; 19% others. The board meets quarterly and engages in advocacy, collaboration, education, information/referral, planning, and statewide TBI action plan development and implementation. |
Connecticut Connecticut Department of Social Services |
Planning: 2003, 2004 *TBI-specific Medicaid waiver (1999) |
Connecticut’s statewide TBI advisory board is no longer active. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
Annual amount(s): $1.1 million Number served: 622 A trust fund is supported by 66% of State Penalty Fund revenues from vehicle code violations. Approximately $950,000 was used to provide services to 622 persons in FY 2001; a portion was used for personnel costs and evaluations. Another portion wa used to draw down $620,000 in federal vocational rehabilitation funds, serving 30 persons. |
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—Attempts to repeal California’s safety helmet law in 2001–02 were defeated. |
State TBI funding source(s): Trust fund, TBI-specific Medicaid waiver State agencies: Human Services, Health Care Policy Year funding source(s) established: 2002, 1995 Annual amount(s): $2.5 million (est.); $5,202,549 Number served: TBD, 284 (2001–2002) Trust fund legislation imposes $10 and $15 surcharges for certain traffic convictions, requires 5% of funds be used to educate parents, educators, and nonmedical professionals in identifying TBI and assisting persons to seek proper medical care; 65% for services; 30% for research to promote understanding and treatment of TBI. |
Colorado has a trauma registry and surveillance system. |
—Colorado has a CDC-funded Craig Hospital Data Collection Project. —Colorado established a TBI trust fund in 2002; created 13-member board. |
State TBI funding source(s): General revenue, TBI-specific Medicaid waiver State agencies: Social Services, Social Services Year funding source(s) established: |
Connecticut has a trauma registry. |
—A person-centered plan is required for all Medicaid TBI waiver recipients in Connecticut. —Connecticut legislature asked Department of |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Connecticut State population: 3,405,565 1,518 hospitalized with TBI 8,494 ED visits for TBI 568 TBI disabled |
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Delaware Delaware Department of Health and Social Services State population: 783,600 1,294 hospitalized with TBI 2,731 ED visits for TBI 483 TBI disabled |
Planning: 1997, 1998 *TBI-specific Medicaid waiver (2002) |
Delaware does not have a distinct statewide TBI advisory board; however, the Governor’s Advisory Council on Aging and Adults with Physical Disabilities formed in 1997 does have a TBI steering committee. The TBI steering committee has 28 members, appointed by the division director, including 30% agency staff; 50% consumers/family; 20% others. It meets as needed when directed by the division director, is engaged in advocacy, collaboration, education, and funding decisions. It prepared a report on Delaware’s statewide TBI resource/needs assessment and developed a coma guide. |
District of Columbia D.C. Department of Health State population: 572,059 651 hospitalized with TBI 3,268 ED visits for TBI 219 TBI disabled |
Planning: 1997, 1998 Implementation: 1999, 2000, 2001 Post-Demonstration: 2002, 2003 |
The District of Columbia established a TBI advisory board within the D.C. Department of Health in 1997. The advisory board has 25 members appointed by the director of the Department of Health or a bureau chief. They include 50% agency staff; 20% consumers/family; 30% others. The board meets quarterly and engages in advocacy, collaboration, education, and planning. It played a role in development of Healthy People 2010 plan, has provided testimony on registry bill, provides technical assistance in planning and implementing grant activities, and was |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
1985, 1999 Annual amount(s): $2,027,330; $5,034,853 Number served: 2,240 (dup), 158 (2001–2002) General revenue is used for direct services. Some funds are used for services to class-action lawsuit members. Medicaid TBI waiver has 500 slots; 158 persons had been served as of April 2002. |
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Public Health to study how a TBI registry could be developed and report back. —Connecticut legislature passed legislation establishing group home pilot for older adults with TBI/acquired brain injury in 2005. |
State TBI funding source(s): General revenues, TBI-specific Medicaid waiver State agencies: Health and Social Services, Health and Social Services Year funding source(s) established: 2001, 2002 Annual amount(s): $209,000, not yet implemented (2003) Number served: Unknown, unknown |
Delaware has a trauma registry and surveillance system. |
—Delaware received Olmstead Systems Change and Assistive Technology grants from the Centers for Medicare and Medicaid Services (CMS) to improve their community long-term care support services for individuals with brain injury and mental illness. —Disability Commission was created in the state in 2001–02. |
The District of Columbia has no TBI-specific state funding at this time. |
The District of Columbia has no data collection system in place but is working toward an Intentional and Unintentional Injury registry, which will include TBI. There are also plans for mandatory injury reporting for |
—Collaboration with faith communities aims to improve education and care regarding TBI in community settings. —Collaboration between the TBI advisory board and other stakeholders is reportedly moving D.C. to mandatory injury reporting. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
District of Columbia |
involved in an injury reporting bill for 2002. |
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Florida Florida Department of Health State population: 15,982,378 12,719 hospitalized with TBI 65,345 ED visits for TBI 4,373 TBI disabled |
Implementation: 1997, 1998, 1999, 2000 Post-Demonstration: 2001, 2003, 2004 *TBI-specific Medicaid waiver (1999) |
Florida has an advisory board that addresses needs of both TBI and spinal cord injury that was established by statute in 1985. The board’s 16 members are appointed by the secretary of Florida’s Department of Health. They include 50% consumers/family; 50% others such as physicians, advocacy organizations, etc. The board meets quarterly and is engaged in developing and maintaining standards for designation in acute and sub-acute care, inpatient and outpatient rehabilitation, and transitional living facilities. It also participates in advocacy, collaboration, education, funding, information/referral, and planning; approves product development; recommends legislative changes as needed, and produces an annual performance report. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
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hospitals, ambulatory clinics, Metropolitan Police Departments, D.C. Fire Department and Emergency Medical Services, and the Office of the Chief Medical Examiner. |
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State TBI funding source(s): Tobacco settlement, Medicaid TBI waiver, trust fund State agencies: Health, Health, Health Year funding source(s) established: 2000, 1999, 1988 Annual amount(s): $270,000; $4,300,000; $15,000,000 Number served: Approximately 850; up to 300; 3,167 (case management)/1,183 (other) A trust fund derives revenue from a percentage of fees levied from traffic-related fines, surcharges for diving and boating under the influence convictions, and temporary license tags. A portion of the proceeds provides matching funds for the state’s Medicaid TBI waiver and supports research, case management and other staffing components for operating the registry, and various contracts. |
Florida has a trauma registry and TBI registry. All hospitals, attending physicians, public, private, and social agencies are required to report all new moderate-to-severe brain injuries to the central registry. A case manager is required to contact the individual within 10 working days to determine eligibility for Brain and Spinal Cord Injury Program services, and to assist coordinating all state, federal, and community resources. |
—Florida has a Nursing Home Deinstitutionalization and Diversion Project. —Florida has specialty motorcycle tag in which 25% of funds collected annually go to the Brain and Spinal Cord Injury Program. —State appropriations increased for TBI-specific Medicaid waiver slots in 2005. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Georgia Brain and Spinal Injury Trust Fund Commission State population: 8,186,453 5,581 hospitalized 40,787 ED visits for TBI 2,729 TBI disabled |
Planning: 1997 Implementation: 1998, 1999, 2000 Post-Demonstration: 2004 |
Georgia’s statewide TBI advisory board was created in 1994. It is located within the Brain and Spinal Cord Injury Trust Fund Commission. Its 21 members include 33% agency staff; 33% consumers/family members; 33% others as appointed by the Advisory Board chairperson. The TBI advisory board meets bimonthly and is engaged in collaboration, education, funding decisions, information/referral, and planning. |
Hawaii Hawaii Department of Health State population: 1,211,537 339 hospitalized with TBI 3,460 ED visits for TBI 232 TBI disabled |
Planning: 1999, 2000 Implementation: 2002, 2003, 2004 |
Hawaii’s statewide TBI advisory board was established by state statute in 1997. Its nine members are appointed by the director of the Department of Health. The board consists of 44% consumers/family members and 56% others (trauma centers, rehabilitation facilities, private providers, maternal and child health representatives, neuropsychiatric institute). The board meets monthly. It engages in advocacy, collaboration, education, planning, and legislative advocacy, and produces the statewide TBI action plan. |
Idaho Idaho Department of Health and Welfare State population: |
Planning: 2000, 2001 Implementation: 2003, 2004, 2005 *TBI-specific |
Idaho’s statewide TBI advisory board was established in 2000 and is located within the Department of Health and Welfare/Medicaid. Its 35 members are appointed by the director of that agency. They include representatives from three regional councils: 31% agency staff, 68% consumers/family, |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): Trust fund State agency: Brain and Spinal Injury Trust Fund Commission Year funding source established: 1998 Annual amount(s): $2,339,708 Number served: 1,883 The Commission distributes just over $2 million per year to individuals with TBI. Georgia does not have a Medicaid waiver specific to persons with TBI, but 30 slots in its Independent Care Medicaid waiver have been set aside for persons with TBI. |
Georgia has a trauma registry, TBI registry, and surveillance system. |
SB582 moved operation of the state’s TBI registry from the Division of Rehabilitation Services to the Brain and Spinal Injury Trust Fund Commission. |
State TBI funding source(s): Special fund State agencies: Developmental Disabilities/Health Year funding source established: 2002 Annual amount: $600,000 (est.) Number served: Not available Hawaii passed legislation in 2002 creating a special TBI fund supported by fines from traffic violations. The state is developing criteria to access funds, anticipated for a TBI-specific Medicaid waiver match, registry, case management, and other direct services. |
Hawaii does not have systems for collecting TBI-related data. The state hopes to establish a registry with special funds. |
—Hawaii has person-centered Planning and Circle of Supports. —Hawaii passed legislation creating a special TBI fund in 2002. |
State TBI funding source(s): TBI-specific Medicaid waiver State agency: Medicaid Year funding source established: 1998 Annual amount(s): $546,674 Number served: 23 |
Idaho has a trauma registry. |
—Idaho has been awarded a CMS Real Choices Systems Change Grant and a HRSA Telehealth Grant. —Idaho passed trauma registry legislation in |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Idaho 1,293,953 599 hospitalized with TBI 7,330 ED visits for TBI 490 TBI disabled |
Medicaid waiver (1998) |
37% private providers. The TBI advisory board meets quarterly and engages in advocacy, collaboration, education, information/referral, and planning. |
Illinois Illinois Department of Human Services State population: 12,419,293 7,896 hospitalized with TBI 37,257 ED visits for TBI 2,493 TBI disabled |
Planning: 1997, 1998 Implementation: 2000, 2001, 2002 *TBI-specific Medicaid waiver (1999) |
Illinois’ statewide TBI advisory board, located within the Hawaii Department of Human Services, was established by statute in 1994. Its 29 members are appointed by the governor. They include 28% agency staff; 28% consumers/family; 44% others. The statute specifies that the TBI advisory board, in addition to including agency staff and consumers/family, is to include neurosurgeons, orthopedic surgeons, and rehabilitation specialists. The board meets quarterly and is engaged in collaboration, education, funding, decision, information, referral, planning, and development of a statewide TBI action plan for both TBI and spinal cord injury survivors. |
Indiana No lead state agency for TBI State population: 6,080,485 3,702 hospitalized with TBI 25,527 ED visits for TBI 1,708 TBI disabled |
Planning: 1999 *TBI-specific Medicaid waiver (2001) |
None. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
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2002. |
State TBI funding source(s): General revenue, TBI-specific Medicaid waiver State agencies: Rehabilitation Services, Rehabilitation Services Year funding source(s) established: 1999, 1999 Annual amount(s): $300,000; $5,823,376 Number served: 1,200; 1,400 |
Illinois has a trauma registry and a TBI registry. A general statute mandates reporting to the Department of Public Health, but trauma centers are most likely to comply. The Department of Public Health provides data, without identifiers, to the statewide TBI advisory board to use for planning. There is no formal followup with families/consumers. |
Medicaid waiver case managers use a holistic approach to helping consumers address their needs. |
State TBI funding source(s): TBI-specific Medicaid State agency: Bureau of Aging and In-Home Services Year funding source established: 2001 Annual amount(s): $1,523,948 Number served: 150 |
There is currently no registry for TBI data in Indiana. |
The Indiana Protection and Advocacy system is funded with an HRSA federal TBI P&A grant and is in the process of collaborating with state agencies to identify a suitable lead agency. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Iowa Iowa Department of Public Health State population: 2,926,324 2,160 hospitalized with TBI 11,019 ED visits for TBI 737 TBI disabled |
Planning: 1997 Implementation: 1998, 1999, 2000 Post-Demonstration: 2001, 2002, 2003 *TBI-specific Medicaid waiver (1996) |
Iowa’s statewide TBI advisory board was established by statute in 1989. The board is located within the Bureau of Health Promotion and Disability in the Iowa Department of Public Health. Its 20 members are appointed by the governor. The board consists of 50% consumers/family member and 50% professionals, advocates, etc. Agency staff serve as ex officio members. The board meets quarterly and engages in advocacy, collaboration, information and referral, planning, and is responsible for developing and publishing the statewide TBI resource/needs assessment and statewide TBI action plan. |
Kansas Kansas Department of Social and Rehabilitation Services |
Planning: 2001, 2002 Implementation: 2003, 2004, 2005 *TBI-specific |
Kansas’ statewide TBI advisory board was established in 2001 and is located within the Department of Social and Rehabilitation Services. Its 21 members evolved from the TBI-specific Medicaid waiver steering committee and include 38% agency staff; 29% consumers/family; 33% others. The |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): General revenue, TBI-specific Medicaid waiver State agencies: Public Health, Public Health Year funding source(s) established: 1989, 1996 Annual amount(s): $68,885; $2,057,722 (match) Number served: 1,000 (information and referral), 50 (Peer); 150 $68,885 is used to leverage additional funding. |
Iowa has a trauma registry and a TBI registry. The TBI registry is established in statute. Data are reported to Department of Public Health, Bureau of Emergency Medical Services, but followup contact is not conducted. |
—As part of HRSA grant activities, Iowa developed a discharge planner model and peer support network to meet information, support, and service linkage needs of families experiencing brain injury—known as the Iowa Brain Injury Resource Network functioning in 18 locations with 22 peer mentor volunteers. —Brain Injury Association of Iowa and Iowa’s statewide TBI advisory board pushed to get a seat on new Mental Health/Developmental Disabilities Commission, 2002. —Iowa passed legislation redesigning Department of Mental Health, Developmental Disabilities, and TBI (includes TBI in name and services, 2004. —Iowa passed legislation designating Department of Public Health as lead state agency for TBI, $6.0 million appropriated to eliminate Medicaid waiver waiting lists, 2005. |
State TBI funding source(s): TBI-specific Medicaid waiver, no-fault insurance State agency: Department Social and Rehabilitation Services Year funding source established: 1991 |
Department of Health and Environment is developing a trauma registry. |
—Kansas implemented the first TBI-specific Medicaid waiver. It focuses on rehab and independent living and incorporates self-directed supports. Kansas was also |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Kansas State population: 2,926,324 1,460 hospitalized with TBI 10,932 ED visits for TBI 732 TBI disabled |
Medicaid waiver (1991) |
TBI advisory board meets at least quarterly and is conducting a statewide TBI resource/needs assessment that will guide its future activities. |
Kentucky Kentucky Cabinet for Health Services/Department of Mental Health and Mental Retardation State population: 4,041,769 1,857 hospitalized with TBI 18,274 ED visits for TBI 1,223 TBI disabled |
Planning: 1999 Implementation: 2003, 2004, 2005 *TBI-specific Medicaid waiver (1999) |
Kentucky’s statewide TBI advisory board, located in the Cabinet for Health Services, was established BY statute in 1998 in conjunction with the passage of Kentucky’s trust fund legislation. The board’s nine members include three positions mandated by legislation and six appointed by Kentucky’s governor: 22% agency staff; 33% consumers/Family; 45% others (secretary of cabinet of health services, state epidemiologist, Brain Injury Association of Kentucky, neurosurgeon, neuropsychologist, rehabilitation specialist, social worker, three consumers/family). It has an ad hoc committee to address issues broader than trust fund management and meets as needed but not less frequently than quarterly. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
Annual amount(s): $7.5 million Number served: 118 —The TBI-specific Medicaid waiver has a rehabilitation focus with individuals typically remaining in service for 3–5 years, after which they may move to a different Medicaid waiver if they need lifelong support. —No-fault insurance pays 85% of lost wages up to $900/month for 12 months; at least $4,500 medical and $4,500 rehab costs; $25/day for 1 year in substitution benefits; $2,000 funeral costs; AND $900/month survivor benefits. Law covers pedestrians hit by a car as well as persons injured in a car. |
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one of the first states to develop a teacher training/technical assistance project using a mini-team approach—the Neurological Disabilities Support Project. —$2.5 million additional dollars were appropriated in Kansas to increase Medicaid match in 2002. |
State TBI funding source(s): Trust fund, TBI-specific Medicaid waiver State agencies: Mental Health/Mental Retardation; Mental Health/Mental Retardation Year funding source(s) established: 1998, 1999 Annual amount(s): $2.2 million Number served: 500, 95 of 110 A trust fund was established by statute and is funded with surcharges onfines for moving violations, DUI violations, overweight trucks, etc. A trust fund provides $125,000 for the registry, $2.75 million for direct services, and $60,000 for administrative costs. Fines/revenue were increased in 2004. |
Kentucky has a TBI registry established in statute. The TBI registry is not population based, reporting is not mandatory, and there is no followup. |
—A legislative task force was established in Kentucky 2002 to address need for long-term residential care, decriminalization of brain injury, and long-term case management. Legislation expanded trust fund capabilities by including court costs. —Legislation passed adding TBI as eligibility category for Department of Mental Health & Mental Retardation and Developmental Disabilities services, 2005. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Louisiana Louisiana Department of Social Services/Louisiana Rehabilitation Services State population: 4,468,976 2,816 hospitalized with TBI 26,214 ED visits for TBI 965 TBI disabled |
No Federal TBI Program grants received. |
In Louisiana, an advisory board within the Department of Rehabilitation Services serves as the trust fund board for TBI and spinal cord injury. Its 13 members are appointed by the governor. They include 8% agency staff; 30% consumers/family; 62% mandatory others (director of Rehabilitation Services; executive director of the Brain Injury Association of Louisiana; the executive director of the Spinal Cord Injury Association; nominated psychologist; survivor of TBI and spinal cord injury; family member of each; presidents of medical society, hospital association, dental association, House, Senate). The board meets quarterly. |
Maine Maine Department of Human Services State population: 1,274,923 519 hospitalized with TBI 4,534 ED visits for TBI 303 TBI disabled |
Planning: 2003, 2004 Implementation: 2005 |
Maine’s statewide TBI advisory board, located within the Department of Human Services, was established in April 2002. The 25-member board was formed by joint invitation of the department director and the executive director of the Brain Injury Association of Maine. Activities of this new group focus on establishing a lead state agency for TBI; creating a mission statement, bylaws, and common definition for brain injury; and positioning itself to obtain a federal TBI Program grant from HRSA. The board meets bimonthly. |
Maryland Maryland Department of Health and Mental Hygiene State population: 5,296,486 4,614 hospitalized with TBI 15,383 ED visits for TBI |
Planning: 1998 Implementation: 1999, 2000, 2001 Post-Demonstration: 2003, 2004 *TBI-specific Medicaid waiver (2003) |
Maryland’s statewide TBI advisory board, located within the Department of Health and Mental Hygiene, was established in 1998. State legislation passed in 2005 established the board statutorily. Target membership is 31 members. In 2003, Maryland reported 18 voting and 3 ex officio members appointed by the Mental Hygiene Administration. The board included 46% agency staff; 18% consumers/family; 36% others. The board meets six times per year. It is responsible for Maryland’s statewide TBI action plan, |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): Trust fund State agency: Rehabilitation Services Year funding source established: 1993 Annual amount(s): $1.3 million Number served: 259 A trust fund was established by statute in 1993. It is funded by fees attached to fines for speeding, reckless operation, and DUI convictions. Trust fund spent $2.7 million in 2001–2002 because of a prior surplus. |
Louisiana has a trauma registry that is not population based, a TBI registry, and a surveillance system. The TBI registry is established in statute. Reporting is mandatory but does not include followup contact. |
Louisiana’s governor issued an executive order directing state agencies to develop short- and long-term plans to provide community-based services to individuals with disabilities and elderly who need long-term care, 2004. |
Maine’s Medicaid state plan specifically targets persons with TBI in its rehab services package. Persons with TBI also benefit from a higher reimbursement rate for nursing facility services. Contingent upon eligibility criteria, they may also access Medicaid adults with developmental disabilities waivers. The number of persons benefiting from these services or expenditures is not available. |
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Maine’s Medicaid state plan rehabilitation package. |
State TBI funding source(s): General revenues, TBI-specific Medicaid waiver State agencies: Mental Hygiene, Mental Hygiene Year funding source(s) established: 1996, 2002 Annual amount(s): $1.2 million Number served: 14 The TBI-specific Medicaid waiver was implemented in 2003, when results were reported, so there is no |
Maryland has a trauma registry, TBI registry, and surveillance system. TBI registry is established in statute. Reporting to the Office of Injury Prevention, Department of Health and Mental Hygiene is |
—Maryland’s “all-payer system” established equitable rates for Maryland hospitals and ensures that individuals are able to obtain acute-care services regardless of income or insurance benefits. It is the only state in the United States with this system. —Maryland developed a TBI pilot case |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Maryland 1,856 TBI disabled |
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and is involved in collaboration, education, information/referral, and planning. |
Massachusetts Massachusetts Executive Office of Health and Human Services/Massachusetts Rehabilitation Commission State population: 6,349,097 2,835 hospitalized with TBI 10,200 ED visits for TBI 683 TBI disabled |
Implementation: 2000, 2001, 2002 *TBI-specific Medicaid waiver (2002) |
Massachusetts’ statewide TBI advisory board, established in 1985, is located within the Rehabilitation Commission. Its 18 members are nominated by the membership and appointed by the chair. They include 22% agency staff; 65% consumers/family; 11% others. The board meets quarterly and engages in advocacy, collaboration, education, funding decisions, and planning. |
Michigan Michigan Department of Community Health State population: 9,938,444 5,893 hospitalized with TBI 34,054 ED visits for TBI 2,279 TBI disabled |
Planning: 1998 Implementation: 2001, 2002, 2003 Post-Demonstration: 2004 |
Michigan’s statewide TBI advisory board, located in the Department of Community Health, was established in 1999. Its 54 members are appointed by the lead state agency for TBI. They include 33% agency staff; 13% consumers/family; 54% others. The board has five committees that meet monthly, and the full board meets twice per year. The board has produced brochures for consumers and professionals, and a resource guide, and a website. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
history yet. |
mandatory but does not include followup contact. |
management project within the mental health system. —Maryland awarded an Independence Plus waiverc to assist individuals with disabilities to reside in their own homes, 2004. |
State TBI funding source(s): General revenues, trust funds (2), TBI-specific Medicaid waiver State agencies: Rehabilitation Commission, Rehabilitation Commission, Rehabilitation Commission Year funding source(s) established: 1985, 1991, 2002 Annual amount(s): $6.1 million, $750,000 Number served: 520; 720 (information and referral), 40 (services); 250 slots |
Massachusetts has a trauma registry. |
—Massachusetts was one of the first states to develop a state TBI program using general revenue funds to pay for a range of services. —Massachusetts worked with three culturally diverse communities to improve outreach and referral to state services. |
State TBI funding source(s): General revenues, no-fault insurance State agencies: Community Health, Office of Financial and Insurance Services Year funding source(s) established: 2000, 1972 Annual amount(s): $1.0 million Number served: Not available $100,000 in general revenue is matched for the HRSA available for services to individuals. In Michigan, persons with Diagnostic and Statistical Manual–IV diagnosis |
Michigan has a trauma registry; legislation authorizing it sunsetted in 1995. The state’s HRSA grant focuses on developing an integrated data collection system. Analysis of data from Medicaid, hospital discharge, ED visits, vital statistics, and |
Michigan’s self-determination movement and Medicaid choice waiver.d |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Michigan continued |
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Minnesota Minnesota Department of Human Services State population: 4,919,479 2,796 hospitalized with TBI 15,467 ED visits for TBI 1,470 TBI disabled |
Implementation: 1997, 1998, 1999 Post-Demonstration: 2002, 2003 *TBI-specific Medicaid waiver (1992) |
Minnesota’s statewide TBI advisory board, established in 1990 by statute, is located within the Department of Human Services. The board must have no fewer than 10 and no more than 30 members appointed by the commissioner of the Department of Human Services. It includes 50% consumers/family; 50% providers or advocates. State staff are ex officio. The board meets bimonthly, engages in advocacy, collaboration, education, funding decisions, information/referral, and planning. |
Mississippi Mississippi Department of Rehabilitation Services State population: 2,844,658 |
Planning: 1997 *TBI/spinal cord injury (SCI) Medicaid waiver (2001) |
Mississippi has an advisory board that serves both TBI and SCI. It was established by statute in 1996 and is located within Mississippi’s Department of Rehabilitative Services. Its 10 members are appointed by the director of Department of Rehabilitation Services. The board consists of 60% consumers/family; 40% others. The board meets bimonthly and is engaged |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
are eligible for mental health/developmental disabilities services. HRSA-funded data project shows 80,000 persons with TBI diagnosis who are receiving Medicaid-funded services. No-fault insurance pays all medical costs up to 85% of an individual’s income to a ceiling of $4,027/month, $20/day replacement services (e.g., yard work), and $1 million property maximum. |
insurance companies is being conducted to determine TBI incidence and costs since 1997. 23 hospitals are participating in collection of ED statistics. |
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State TBI funding source(s): Trust fund, TBI-specific Medicaid waiver State agencies: Health, Human Services Year funding source(s) established: 1991, 1992 Annual amount(s): $350,000; $17,017,589 Number served: Not available, 495 Persons whose driver’s license has been revoked must pay a surcharge to the revocation fee. As of July 2003, surcharge was increased from $145 to $380. 5% is credited to a TBI/spinal cord injury account to be disbursed as follows: 35% for contracted services to help persons with TBI access supports, and 65% to maintain the registry. |
Minnesota has a trauma registry, TBI registry, and surveillance system. The TBI registry is established in statute, requires mandatory reporting, and includes followup contact at 3 months post injury. |
—In 1993, state hospitals for the mentally ill in Minnesota began screening new admissions for TBI. Personal care services under the Medicaid state plan include cognitive and behavioral supports. —Crisis support became available as a rehabilitation option to persons with TBI in the state in 2002. |
State TBI funding source(s): Trust fund, TBI/SCI Medicaid waiver State agencies: Rehabilitation Services, Rehabilitation Services Year established: 1996, 2001 Annual amount(s): $1.3–$2.0 million, unavailable Number served: 436; 400 slots/41 served |
Mississippi has a trauma registry, TBI registry, and surveillance system. The TBI registry is mandated by statute. Data are reported to the Department of |
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State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Mississippi 1,533 hospitalized with TBI 16,432 ED visits for TBI 1,100 TBI disabled |
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in advocacy, collaboration, education, funding decisions, and planning, and monitors the trust fund. |
Missouri Missouri Department of Health and Senior Services State population: 5,595,211 4,575 hospitalized with TBI 28,797 ED visits for TBI 1,129 TBI disabled |
Implementation: 1997, 1998, 1999, 2000 Post-Demonstration: 2001, 2002, 2004 |
Missouri’s statewide TBI advisory board was initially established by executive order in 1985 and, statute in 1986 and is housed in the Office of Administration. In 2005, it was transferred by executive order to the Missouri Department of Health and Senior Services. The board’s members are appointed: 21 members by the governor and 4 by the state legislature. They include 32% agency staff; 27% consumers/family; 41% others. The board meets bimonthly and has initiated the registry, funding for services, and a trauma center; sponsors conferences; and functions as an internal advocate for several agencies and departments within the state. It has produced reports, training modules, and educational booklets; maintains a web page; and has developed a playground safety program. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
A trust fund was established by state statute and is supported by a $25 surcharge on DUI violations and a $4 surcharge on other moving vehicle violations. It funds prevention, the registry, and direct services. |
Health, which contracts with the Department of Rehabilitation Services to maintain the registry. Resource information sent to families; no further followup. |
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State TBI funding source(s): General revenue, Trust fund State agencies: Health and Senior Services, Health and Senior Services Year funding source(s) established: General revenue funding for the TBI advisory board, 1985; general revenue for state-contracted services and for Missouri’s Rehabilitation Center, FY 1986; Trust fund, 2002 Annual amount(s): $106,000 (planning/policy/council prior to 2000 was general revenue, shifted to trust fund in 2001); $41,750 (prevention); $1,724,298 (general revenue direct contractual services/service coordination); $10,907,435 Missouri (rehabilitation center, but not broken out for specific TBI services) Number served: 443 (rehabilitation), not available |
Missouri has a trauma registry, TBI registry, and surveillance system. The TBI registry was established by statute (1986). Reporting of surveillance data to the Missouri Head Injury Advisory Council is required, but there is not a followup contact system. Data are used for injury control and prevention program as well. |
—Division of Special Education developed four training modules for educators. Missouri has provided training to case managers on person-centered planning. —Trust fund legislation was passed in 2002. —Developed data linkages project across all state agencies that has continued through Office of Administration; early information and referral protocols with trauma centers/rehab centers; core competences for direct-care providers and service coordinators that are being adopted across special health care needs programs. —Legislation repealed comprehensive day rehab and other Medicaid optional services for adults, 2005 —Head Injury Program (GR) was cut by ~$800,000, 2005 for FY 2006. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Montana Montana Department of Public Health and Human Services State population: 902,195 452 hospitalized with TBI 5,578 ED visits for TBI 373 TBI disabled |
Planning: 2001, 2002 Implementation: 2003, 2004, 2005 |
Montana’s statewide TBI advisory board, located within the Department of Public Health and Human Services, was established in 2001. Its 14 members are appointed by the Department of Public Health and Human Services. They include 21% agency staff; 29% consumers/family; 50% others. There is a broad-based interagency task force that addresses a wide range of issues and reports to the official TBI advisory board, which meets three times each year. |
Nebraska Nebraska Department of Education State population: 1,711,263 824 hospitalized with TBI 6,799 ED visits for TBI 339 TBI disabled |
Planning: 2000, 2001 Implementation: 2002, 2003, 2004 *TBI-specific Medicaid waiver (2002) |
Nebraska’s statewide TBI advisory board, located within the Department of Education, was established by statute in 1999. Its 15 members are appointed by the commissioner of education. They include 20% agency staff; 47% consumers/family; 33% others. The board meets quarterly and is engaged in collaboration and planning activities. It also produces a report to the state legislature. |
Nevada Nevada Office of Community-Based Services State population: 1,998,257 1,342 hospitalized with TBI 11,652 ED visits 780 TBI disabled |
Planning: 1997, 2005 |
Nevada’s statewide TBI advisory board was created in 1993, but it had difficulty continuing to meet on a formal basis. Former board members continue to collaborate informally and have provided input to a 10-year strategic plan that includes persons with TBI. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): Medicaid Home and Community-based Waiver Program State agency: Public Health Year funding source established: Unknown Annual amount(s): Not available Number served: 97 Montana does not have a TBI-specific Medicaid waiver, but special services in the state’s Medicaid Home and Community-based waiver for the elderly and disabled may be used by persons with TBI. |
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Montana’s ability to piggyback on an existing Medicaid home and community-based waiver program is cost-effective. Post-acute rehabilitation services are reported to be exceptional. |
State TBI funding source(s): TBI-specific Medicaid waiver State agency: Not available Year funding source established: 2002 Annual amount(s): Not available Number served: 35 TBI-specific Medicaid waiver is a model waiver focusing on adult residential/supp living, ages 18–64. |
Nebraska has a trauma registry and TBI/SCI registry that is population based and established in statute. Data are reported to the Nebraska Department of Public Health and Human services but the registry does not include followup contact. |
Nebraska’s registry was reauthorized by the state legislature in 2002. |
State TBI funding source(s): General revenus, tobacco settlement State agencies: Community-Based Services, Community Enrichment Year funding source(s) established: 1992, 2000 Annual amount(s): $300,000; $5.0 million Number served: 10, Not available General revenue used for direct services. Tobacco settlement used to |
Nevada has a trauma registry. |
—Nevada’s incorporation of alternative medicine into rehabilitation services. —In 2002, Nevada received increases in personal care assistance, independent living service,s and equipment loans and defeated efforts to eliminate helmet law. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Nevada continued |
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New Hampshire New Hampshire Department of Health and Human Services/Division of Developmental Services State population: 1,235,786 466 hospitalized with TBI 3,980 ED visits for TBI 240 TBI disabled |
Planning: 1997, 1998 Implementation: 2000, 2001, 2002 Post-Demonstration: 2003, 2004 *TBI-specific Medicaid waiver (1993) |
New Hampshire has an advisory board that addresses TBI and spinal cord injury that was created by statute in 1998. The board’s composition is mandated in statute. The board includes 11 members designated by the governor, heads of the legislature, and department heads. It includes 11% agency staff; 33% consumers/family; 56% others (legislators, Brain Injury Association appointees, injury prevention center representative). The board meets quarterly and engages in advocacy, education, and planning. |
New Jersey New Jersey Department of Human Services State population: 8,414,350 4,630 hospitalized with TBI |
Implementation: 1999, 2000, 2001 Post-Demonstration: 2002, 2003, 2004 *TBI-specific Medicaid waiver (1993) |
New Jersey’s TBI advisory board, located within the Department of Human Services, was established in 1998 by executive order and by statute. The board’s 26 members include 31% agency staff; 27% consumers/family; 42% others. The board meets quarterly and actively engages in advocacy, collaboration, education, and planning. New Jersey’s Federal TBI Program grant from HRSA focused on children’s |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
build a rehabilitation center at a college with therapist training programs. |
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State TBI funding source(s): General revenue, general revenue, general revenue, TBI-specific Medicaid waiver State agencies: Brain Injury Association of New Hampshire, Developmental Services, Developmental Services, Developmental Services, Medicaid Year funding source(s) established: 1993, 1993, 2002, 1993 Annual amount(s): $50,000; $50,000; $200,000; $5,657,499 Number served: Not available; 720; not avalable; 85 The Brain Injury Association of New Hampshire contract funds support New Hampshire’s TBI registry. Other general revenue supports information and referral, case management, and some direct services. New Hampshire’s Division of Developmental Services provides match for Medicaid state plan services. Medicaid TBI waiver spending authorized at $7.6 million; unused funds support services for non-waiver-covered persons. |
New Hampshire has a TBI registry. The TBI registry is population based and is established in statute. Reporting to the TBI registry is mandatory; data are reported to New Hampshire Hospital Association. A followup/outreach mechanism, which begins with initial contact in the acute hospital setting, is being piloted. |
—Focus of HRSA Implementation Grant in New Hampshire is to build neurobehavioral service capacity. —Additional general revenues was received in 2002 in New Hampshire and will be used to establish a statewide case management system. Any excess will be used for prevention, respite, home modifications, and family support. |
State TBI funding source(s): Trust fund, TBI-specific Medicaid waiver State agencies: Human Services, Human Services Year funding source(s) established: 2002, 1993 Annual amount(s): $3.4 million; $14,557,615 Number served: Not available, 250 |
New Jersey has a trauma registry and a surveillance system. |
—New Jersey offers cash and counseling; Medicaid buy-in for employed individuals; and mentoring program for persons with TBI (HRSA grant). —New Jersey passed legislation establishing Brain Injury Research |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
New Jersey 18,953 ED visits for TBI 1,268 TBI disabled |
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sports injuries, and developing guides for public school staff. |
New Mexico New Mexico Department of Health State population: 1,819,046 954 hospitalized with TBI 9,233 ED visits for TBI 618 TBI disabled |
Implementation: 2001, 2002, 2003 |
New Mexico’s TBI advisory board, located within the state’s Developmental Disabilities Planning Council, was established by statute in 1997. Its 18 members are appointed by the governor. They include 17% agency staff; 40% consumers/family; 43% others. The board meets quarterly and is engaged in a broad range of activities, including advising the Department of Health on funding recommendations. The board anticipates forming a subcommittee to suggest a drug formulary. |
New York New York Department of Health State population: 18,976,457 12,840 hospitalized with TBI 51,185 ED visits 5,159 TBI disabled |
Implementation: 1997, 1998, 1999, 2000 Post-Demonstration: 2001, 2002, 2004 *TBI-specific Medicaid waiver (1995) |
New York’s TBI advisory board, located in the Department of Health, was established by statute in 1994. The statute mandates the participation of representatives from state agencies and others appointed by the governor or leaders of the New York legislature. The board’s 19 members include 42% agency staff; 31% consumers/family; 26% others. The board meets quarterly and engages in advocacy, collaboration, education, planning, and analysis. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
A trust fund was established by statute and is funded by surcharges on motor vehicle registrations. |
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Act, making New Jersey the first state with dedicated funding for research on TBI, 2004. —New Jersey developed a TBI family and peer support program involving clergy and the faith community, as well as families and consumers. |
State TBI funding source(s): Trust fund State agency: Health Year funding source(s) established: 1997 Annual amount(s): $2.0 million Number served: 572 A trust fund was established by statute by a combination of $600,000 in general revenue and $5 from each traffic violation fee. $100,000 has been used for HRSA grant match; remaining funds have been allocated to direct services. |
New Mexico has a trauma registry. |
—Crisis services and life skills training are available statewide in New Mexico. —New Mexico’s governor signed legislation authorizing a Medicaid home and community-based waiver that could be used for individuals with TBI, 2005. |
State TBI funding source(s): General revenue, general revenue, TBI-specific Medicaid waiver State agencies: Various, Health, Medicaid Year funding source(s) established: 1995, 1995, 1995 Annual amount(s): $2.0 million, $4.0 million, Not available Number served: Not available; 750; 1,000 The $2.0 million appropriation supports various planning and policy activities. The $4.0 million pays for rent subsidies and housing support to waiver recipients. |
New York has a trauma registry and a surveillance system. |
—New York’s TBI program provides rent subsidies and housing supports to waiver participants. A Neurobehavioral Resource Project trains staff; and service providers; consults on crises; and provides technical and clinical support to TBI providers. —Participated in CMS pilot of participant evaluation survey for individuals served by Medicaid TBI waiver. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
North Carolina North Carolina Division of Mental Health, Developmental Disabilities, and Substance Abuse Services State population: 8,049,313 4,485 hospitalized with TBI 36,883 ED visits for TBI 2,468 TBI disabled |
Implementation: 1997, 1998, 1999 Post-Demonstration: 2001 |
North Carolina’s TBI advisory board evolved from a task force established in 1995 to write North Carolina’s statewide TBI action plan. The current advisory board has been in effect since 1998 but is not mandated. It has 30 members invited by a TBI specialist. It includes 43% agency staff; 15% consumers/family; 42% others. The board uses subcommittees and meets monthly. |
North Dakota North Dakota Department of Human Services State population: 642,200 267 hospitalized with TBI 2,281 ED visits for TBI 153 TBI disabled |
Planning: 2003, 2004 *TBI-specific Medicaid waiver (1994) |
North Dakota’s TBI advisory board, located within the Department of Human Services, was established in 2001. Its 20 members are appointed by the director of the Division of Aging. They include 50% agency staff; 10% consumer/family; 40% others. The board meets quarterly and is involved in advocacy, planning, collaboration, education, and funding activities. |
Ohio Ohio Rehabilitation Services Commission |
Implementation: 1998, 1999, 2000 Post-Demonstration: 2002, 2003, 2004 |
Ohio’s TBI advisory board, located in the Ohio Rehabilitation Services Commission, was established by state statute in 1990. The 1990 statute mandates the involvement on the TBI advisory board of agency directors/designees and others appointed |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): General revenue, general revenue State agency: Mental Health/Developmental Disabilities/Substance Abuse Services; Vocational Rehabilitation Independent Living Year funding source(s) established: 1993, 1999 Annual amount(s): $1,596,702; $251,627 Number served: 1,519,446 $400,000 will be appropriated as a Medicaid TBI waiver match. Wide range of consumer supports provided case by case. The Division of Vocational Rehabilitation Services supports two positions and case service for independent living. |
North Carolina has a trauma registry which captures information on persons treated at 21 of its 115 hospitals. North Carolina attempted to establish a TBI registry, but efforts were ineffective due to no mandatory requirement to report. |
—North Carolina’s inclusion of TBI within developmental disabilities definition enables people of all ages with TBI to use developmental disabilities agency service coordination and broad developmental disabilities funding. —North Carolina’s General Assembly authorized a Medicaid TBI waiver and a bike helmet law for ages 0–16. |
State TBI funding source(s): TBI-specific Medicaid waiver State agency: Human Services Year funding source established: 1994 Annual amount(s): $580,982 Number served: 32 (37 slots) Persons with TBI in North Dakota may also be served under programs designed for those not eligible for Medicaid waiver but who need personal and homemaker services through Aging Services. |
North Dakota has a trauma registry. |
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State TBI funding source(s): General revenue State agency: Rehabilitation Services Commission Year funding source established: 1990 |
Ohio has a trauma registry and is a Model Systems site. |
—Ohio has collaborated with the Ohio Legal Rights on housing initiative and on a Medicaid guide. It is contracting with a development specialist to |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Ohio State population: 11,353,140 7,607 hospitalized with TBI 38,624 ED visits for TBI 2,585 TBI disabled |
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by the executive director of Ohio’s Rehabilitation Services Commission. The board’s 21 members include 47% agency staff; 33% consumers/family; 25% others. The board meets six times per year and engages in a wide range of activities; it has produced guides and an incidence report. |
Oklahoma Oklahoma Department of Health State population: 3,450,654 2,560 hospitalized with TBI 18,398 ED visits for TBI 817 TBI disabled |
Planning: 1997, 1998 Implementation: 1999, 2000, 2001 Post-Demonstration: 2003, 2004 |
Oklahoma’s TBI advisory board was established in 1991 and was appointed by the governor. A revised TBI advisory board was established in 1997 in the Oklahoma Department of Health to better address Federal TBI Program mandates. The board has 26 members of whom 68% are agency staff and 32% are consumers/family. The board engages in activities that include reviewing and approving grant project products and curricula. The full board meets quarterly; task forces meet six to eight times a year. |
Oregon Oregon Department of Education State population: 3,421,399 2,828 hospitalized with TBI 17,964 ED visits for TBI 1,202 TBI disabled |
Planning: 1997 Implementation: 1998, 1999, 2000 Post-Demonstration: 2001, 2002, 2004 |
Oregon’s TBI advisory board was established in 1997 with the state’s federal TBI Program Planning grant from HRSA. The TBI advisory board’s 42 members are invited by the state Department of Education or nominated by their agencies. They include 21% agency staff; 38% consumers/family; 64% others. The board’s executive committee has met often. The board focuses on federal TBI Program grants from HRSA and sustainability. The full board meets as needed. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
Annual amount(s): $346,000 Number served: Not available General revenue provides funding for planning, prevention, research, services, and development. Persons with TBI who meet eligibility requirements may access one of six Medicaid waivers (three nursing facility level of care and three intermediate level of care facilities for people with mental retardation). |
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educate public policy makers. —Medicaid waivers may be used for individuals with TBI. —The Ohio legislature awarded an additional $50,000 for TBI-related services in tight budget times, 2002. |
Oklahoma is in the process of developing a Medicaid waiver. Individuals who meet eligibility criteria can currently access one of four other waivers. |
Oklahoma has a trauma registry and a surveillance system. |
—Oklahoma has improved discharge planning practices. —Oklahoma has increased funding for a trauma system approved by the legislature in 2002. —Oklahoma passed legislation establishing Consumer-Directed Personal Assistance and Support Services for adults with disabilities, 2004. |
Adults with TBI in Oregon can access the Medicaid aging and disabled waiver if they meet eligibility requirements. |
Oregon has a trauma registry. |
Oregon’s TBI Consult Team funded by the Department of Education provides support to local educators; the Oregon Brain Injury Research Network provides information. An executive order created the governor’s TBI task force and recommended a TBI trust fund, 2002. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Pennsylvania Pennsylvania Department of Health State population: 12,281,054 8,550 hospitalized with TBI 41,282 ED visits for TBI 2,762 TBI disabled |
Planning: 2001, 2002 Implementation: 2003, 2004, 2005 *TBI-specific Medicaid waiver (2002) |
Pennsylvania’s TBI advisory board, located within the Department of Health, was established in 2001. Its 18 members are appointed by the secretary of the Department of Health. They include 44% agency staff; 34% consumers/family; 22% others. The board meets monthly, and its current focus is on statewide TBI resource/needs assessment and developing a statewide TBI action plan. |
Rhode Island Rhode Island Department of Human Services State population: 1,048,319 531 hospitalized with TBI 2,500 ED visits for TBI 214 TBI disabled |
Planning: 1999, 2000 Implementation: 2002, 2003, 2004 |
Rhode Island’s TBI advisory board was established by state statute in 1986. Its 13 members are appointed by the governor and include 31% agency staff; 31% consumers/family; 38% others. The board meets monthly and engages in advocacy, education, and planning, and makes funding recommendations to the governor. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): Trust fund, TBI-specific Medicaid waiver State agencies: Health, Public Welfare, Insurance Year funding source(s) established: 1985, 2002, 1980s Annual amount(s): $3.0 million; not available; not applicable Number served: 175; 50 slots; unknown A trust fund was established by statute It is funded by DUI and moving violations and provides services and coordination to adults with incomes at or below 300% of the federal poverty level. A catastrophic loss fund was available 1984–1989 to auto accident victims, but it is almost exhausted as claimants have hit the $1.0 million lifetime limit. |
Pennsylvania has a trauma registry and surveillance system. |
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State TBI funding source(s): General revenue State agency: Human Services Year funding source established: 1986 Annual amount(s): $2,000 Number served: Not available The Department of Human Services provides funding from general revenue to the Brain Injury Association of Rhode Island to provide informationand referrals. Rhode Island does not have a TBI-specific Medicaid waiver, but more than 700 persons with TBI access services from five other Medicaid waivers. |
Rhode Island has a TBI registry, mandated in statute and population based. Data are reported to the Department of Health, which sends out resource information to individuals with brain injury and families within 3–6 months. |
Rhode Island’s new habilitation waiver is expected to serve as many as 25 persons with TBI. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
South Carolina South Carolina Department of Disabilities and Special Needs State population: 4,012,012 2,203 hospitalized with TBI 20,551 ED visits for TBI 908 TBI disabled |
Planning: 1997, 1998 Implementation: 2000, 2001, 2002 Post-Demonstration: 2004 *TBI-specific head and spinal cord injury (HASC) Medicaid waiver (1995)e |
South Carolina’s TBI advisory board was established in 1997. Initial membership on the board was by invitation of the South Carolina Department of Disabilities and Special Needs, the lead state agency for TBI. The TBI advisory board is becoming an independent entity, and new members are selected by the board. Of its 40 members, 35% are agency staff; 38% are consumers/family members; 27% are others. The board meets quarterly and engages in range of activities, including statewide TBI action plan development, data collection and reporting on comprehensive rehabilitation, employment and residential services. |
South Dakota State population: 754,844 341 hospitalized with TBI 3,845 ED visits for TBI 257 TBI disabled |
No Federal TBI Program grants received |
Profile not available |
Tennessee Tennessee Department of Health State population: 5,689,283 3,575 hospitalized with TBI |
Implementation: 2000, 2001, 2002 Post-Demonstration: 2003, 2004 |
Tennessee’s TBI advisory board, located within the Department of Health, was established by state statute in 1993. Its nine members are appointed by the governor. The board consists of 33% agency staff; 55% consumers/family members; 11% others. The board meets quarterly and engages in advocacy, collaboration, funding decisions, planning activities, and developing program policies. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): General revenue, TBI-specific Medicaid waiver State agencies: Department of Disabilities and Special Needs, Medicaid Year funding source(s) established: 1994, 1995 Annual amount(s): $6.0 million, not available Number served: 600, 50 |
South Carolina has a surveillance system and a CDC-funded followup project that may lead to development of a TBI registry. |
South Carolina has an individuals rehabilitation support project to prepare persons for return to work for greater independence. |
General revenue in the state includes appropriations, Medicaid match for TBI/SCI waiver, and money collected from a surcharge on DUI fines. The Medicaid waiver has 440 slots, most occupied by individuals with spinal cord injury. Approximately 100 persons with TBI use the state’s Medicaid mental retardation and developmental disabilities waiver. |
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State TBI funding source(s): General revenue, trust fund State agencies: Vocational Rehabilitation, Health Year funding source(s) established: 1998, 1993 Annual amount(s): $108,000; $750,000 Number served: 40; 2,603 |
Tennessee has a trauma registry and a TBI registry. The TBI registry was established by statute and is population based. Reporting to the Department of Health is |
—Beginning in 1999, the Tennessee TBI program developed distance learning to train TBI providers. To date, 754 professionals have attended sessions. —The Tennessee legislature defeated repeal of the helmet law in 2002. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Tennessee 27,860 ED visits for TBI 1,864 TBI disabled |
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Texas Texas Department of Health and Human Services State population: 20,851,820 14,229 hospitalized with TBI 85,593 ED visits for TBI 5,728 TBI disabled |
Planning: 1997, 1998 Implementation: 2000, 2001, 2002 Post-Demonstration: 2004 |
Texas’ TBI advisory board, located in the Texas Health and Human Services Commission, was established in 1997. Its 21 members are appointed by the commission and include 38% agency staff; 38% consumers/family; 24% others. The board meets quarterly and addresses long-term services and systems coordination, engages in advocacy, collaboration, education, information and referral, and planning. It has produced concussion cards and “First Steps” brochures. |
Utah Utah Department of Human Services State population: 2,233,169 1,410 hospitalized with TBI 10,065 ED visits for TBI 549 TBI disabled |
Planning: 2001, 2002 Implementation: 2003, 2004 *TBI-specific Medicaid waiver (1996) |
Utah’s TBI advisory board, located within the Department of Health, was established in 2001. Its 28 members are appointed by the bureau director. The board composition is as follows: 35% agency staff, 22% consumers/family; 22% health care providers; 21% advocacy or research groups. The board meets quarterly. It has focused on statewide TBI resource/needs assessment and statewide TBI action plan development. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
General revenue supports TBI at the Tennessee Rehabilitation Center, which also receives $98,000 from trust fund. Remaining trust funds are used for planning, registry, services, information, and referral. A trust fund was established by legislation and is supported by fines on motor vehicle violations. |
mandatory. Follow up occurs within 6 months post injury with information brochure. |
—Tennessee increased fines/revenue for trust fund, 2004. |
State TBI funding source(s): Trust fund State agency: Rehabilitation Commission Year funding source established: 1991 Annual amount(s): $10.0–10.5 million Number served: 450 A trust fund, established by statute, serves TBI and spinal cord injury and pays for eligible inpatient medical rehabilitation, outpatient rehabilitation-focused, post-acute cognitive. The trust fund is payer of last resort, and recipients must be Rancho IV or higher and at least 16 years old upon completion of rehabilitation. |
Texas has a trauma registry, surveillance system, and TBI registry. The TBI registry was established by statute and is population based. Reporting to the Department of Health, Injury Epidemiology and the surveillance program is mandatory. The registry does not include followup contact. |
Eight legislative issues related to TBI were addressed by Texas in 2002. Most of them involved including or directing services or amending laws to benefit TBI survivorship. |
State TBI funding source(s): TBI-specific Medicaid waiver State agency: Health Services Year funding source established: 1996 Annual amount(s): $1,391,570 Number served: 68 Children receive services through Utah’s mental retardation/developmental disabilities waiver and the public school system. |
Utah has a trauma registry and a surveillance system. |
Utah’s governor signed legislation that adds/defines acquired brain injury as an eligible diagnosis for the state’s Division of People with Disabilities. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Vermont Vermont Division of Vocational Rehabilitation State population: 608,827 228 hospitalized with TBI 2,385 ED visits for TBI 160 TBI disabled |
Planning: 2001, 2002 Implementation: 2004, 2005 *TBI-specific Medicaid waiver (1994) |
Vermont’s TBI advisory board, located within the Vermont Division of Vocational Rehabilitation, was established in September 2002. Its 24 members are appointed by the Division of Vocational Rehabilitation. They include one-third each of agency staff, consumers/family, others. In 2003, outside consultants were chairing meetings every 2–3 months until the board could be fully established. The steering committee met every 2–3 weeks. The board undertakes broad activities, but its initial focus was on the HRSA grant. |
Virginia Virginia Department of Rehabilitation Services State population: 7,078,515 4,586 hospitalized with TBI 28,711 ED visits for TBI 1,921 TBI disabled |
Planning: 1998, 1999 Implementation: 2002, 2003, 2004 |
Virginia’s TBI advisory board, located within the state Department of Rehabilitation Services, was established in 1986 by executive order. Its 31 members were appointed initially and sustained by election. They include 52% agency staff; 23% consumers/family; 25% others. The board, which meets at least quarterly, advises the commissioner of the Department of Rehabilitation Services and is involved with development and implementation of strategic plan. |
Washington Washington Department of Social and Health Services |
Planning: 2000, 2001 Implementation: 2003, 2004, 2005 |
Washington’s TBI advisory board was established in Washington in 2000 and is located within the Department of Social and Health Services. Its 25 members are appointed by the division director. The board includes 40% agency staff; 50% consumers/family; 10% others. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
State TBI funding source(s): TBI-specific Medicaid waiver State agency: Vocational Rehabilitation Year funding source established: 1994 Annual amount(s): $2,151,635 Number served: 50 |
Vermont has a trauma registry. |
Vermont’s person-centered Medicaid TBI waiver. |
State TBI funding source(s): General revenues, Trust fund State agencies: Rehabilitation Services, Rehabilitation Services Year funding source(s) established: 1984, 1998 Annual amount(s): $1,801,000; $1.1 to 1.5 million Number served: Unknown General revenues support registry (also federal vocational rehabilitation funds), direct services, long-term rehabilitation case management. Virginia’s trust fund was established in statute and is supported by drivers’ license reinstatement fees. It is used to fund research and grants to community rehabilitation providers. Persons with TBI in Virginia can access one of six Medicaid waivers if eligible. |
Virginia has a trauma registry and TBI registry. |
—Virginia’s Department of Rehabilitation Services developed and annually sponsors a Life Skills Trainer Program for individuals and organizations interested in obtaining more training working with persons with TBI. —Virginia’s general assembly approved using some trust fund money to hire a staff person to manage the trust fund. |
Washington does not have any dedicated TBI-specific funding sources, but for people with disabilities housing supplements are provided up to 6 months from the Civil Penalties Fund to assist transition from nursing homes. |
Washington has a trauma registry. |
|
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Washington State population: 5,894,121 4,147 hospitalized with TBI 25,763 ED visits for TBI 1,724 TBI disabled |
|
The board meets monthly and is engaged in collaboration and planning and in producing the statewide TBI action plan. |
West Virginia West Virginia Division of Rehabilitation Services State population: 1,808,344 770 hospitalized with TBI 8,033 ED visits for TBI 538 TBI disabled |
Planning: 1997 Implementation: 1999, 2000, 2001 Post-Demonstration: 2002, 2004 |
West Virginia has an advisory board, located in West Virginia’s Division of Rehabilitation Services, that serves both TBI and spinal cord injury. The board was established by statute in 1996. Its has 23 members, of whom 39% are agency staff and 61% are consumers/family. State agency representatives serve as ex officio members; consumers/family are appointed by the governor. The board meets quarterly and addresses broad issues. |
Wisconsin Wisconsin Department of Health and Family Services State population: 5,363,675 2,728 hospitalized with TBI 20,067 ED visits for TBI 1,343 TBI disabled |
Planning Grant: 1997, 1998 Implementation: 1999, 2000, 2001 Post-Demonstration: 2002, 2004 *TBI-specific Medicaid waiver (1995) |
Wisconsin’s statewide TBI advisory board, created in 1998, is an ad hoc committee of the Developmental Disabilities Council. The 17-member committee includes 31% agency staff; 38% consumers/family; 31% others. The lead state agency for TBI, the Wisconsin Department of Health and Family Services, recommends appointments to the ad hoc committee. The committee meets five times per year. It addresses a wide range of issues and engages in collaboration, education, and planning. |
TBI-Specific State Funding |
Availability of TBI-Related Data |
Promising Practices and Recent Legislation Related to TBI |
A medical institution income exemption allows persons to have money to maintain their home. Persons with TBI may use the Medicaid aging and disabled waiverf based on functional abilities rather than diagnosis. |
|
|
State TBI funding source(s): General revenue State agencies: Division of Rehabilitation Services Year funding source established: 1998 Annual amount(s): $250,000 Number served: 7,551 7,551 persons received information and referral services; 80 also received case management and direct services. Persons may also use Medicaid mental retardation and developmental disabilitiesg or aging and disabled waivers if eligible. |
West Virginia has a trauma registry, TBI registry, and CDC-funded surveillance system. The TBI registry is established in statute. The Division of Rehabilitation Services contracts data collection. It currently does not include followup contact. |
—West Virginia has developed a transportation guidebook, accreditation standards, and a resource coordination model. —A resolution was passed to study dedicated funding for TBI/spinal cord injury, 2002. —Medicaid mental retardation and developmental disabilities and aging and disabled waivers may be used by TBI eligibles. |
State TBI funding source(s): TBI-specific Medicaid waiver State agency: Department of Health and Family Services Year funding source established: 1995 Annual amount(s): $14,397,750 Number served: 225 522 persons with TBI are also served via other Medicaid waivers in Wisconsin. The state’s lead agency for TBI provides matching funds to support the Medicaid TBI waiver. |
Wisconsin does not have any formal reporting mechanisms but is in the process of developing a TBI registry. Current HRSA grant activities include development of an annual report based on hospital discharge information. |
Wisconsin uses personal futures planning for all programs and has developed a short screening tool to identify persons with TBI in the Federal Temporary Assistance for Needy Families Program who have barriers to employability. |
State, Lead State Agency for TBI, and Other Informationa |
Federal TBI Program Grant(s) Received from HRSA |
Statewide TBI Advisory Board |
Wyoming Wyoming Department of Health State population: 493,782 281 hospitalized with TBI 3,426 ED visits for TBI 229 TBI disabled |
Planning: 2005 *TBI-specific Medicaid home and community-based waiver (2001) |
A task force of Wyoming’s Developmental Disabilities Advisory Board serves as Wyoming’s statewide TBI advisory board. This task force is located in the Wyoming’s Division of Developmental Disabilities within the Department of Health. Its eight members are appointed by the director of the Division of Developmental Disabilities. They include 5% agency staff; 70% consumers/family; 25% providers. The task force meets periodically. It engages in a wide range of activities, including advocacy for and approval of a Medicaid home and community-based waiver for individuals with acquired brain injury. |
NOTE: Data displayed in this table are compiled from state self-reports collected by the National Association of Head Injury Administrators (NASHIA). Programs or accomplishments reported in this table may be unique to an individual state. aState population numbers are from the 2000 U.S. Census. Estimated data on the number of individuals with TBI hospitalization, emergency department (ED) visits, and number of individuals disabled as a result of TBI are from the most recent Centers for Disease Control and Prevention (CDC) TBI Surveillance Program and National Center for Health Statistics data as of May 20, 2005. bOn June 22, 1999, the U.S. Supreme Court held in Olmstead v. L.C. that the unnecessary segregation of individuals with disabilities in institutions may constitute discrimination based on disability. The court ruled that the Americans with Disabilities Act may require states to provide community-based services rather than institutional placements for individuals with disabilities. cThe goal of the Independence Plus Grant, initiated in 2001 by the Centers for Medicare & Medicaid Services (CMS), is to develop a federal waiver that will allow individuals with disabilities to direct their own individual budget and choose the services and supports that best meet their needs in the community. dA Medicaid choice waiver allows states to implement managed care delivery systems, or otherwise limit individuals’ choice of provider under Medicaid. |
TABLE C-2 Accomplishments of State Traumatic Brain Injury (TBI) Programs by State, 1997–2005
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Alabama |
Implementation: 1997, 1998, 1999, 2000 |
Alabama Department of Rehabilitation Services |
Post-Demonstration: 2001, 2002, 2004 |
Alaska |
Planning: 2000, 2002 |
Alaska Department of Health and Social Services |
Implementation: 2003, 2004, 2005 |
Arizona |
Implementation: 1997, 1998, 1999 |
Arizona Department of Economic Security |
Post-Demonstration: 2001 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
Though Alabama had initiated and sustained significant TBI systems changes previously, Alabama’s Federal TBI Program grants from HRSA have led the state to identify other important issues to be addressed—for example, the need to address catastrophic insurance coverage, the potential for a TBI-specific Medicaid home and community-based services waiver, and the addition of personal care and targeted case management as optional services under Medicaid. |
|
Alaska continues to incorporate TBI into existing systems. The state is working to raise awareness of TBI issues in the school setting so as to improve educational outcomes for students with TBI. The state is also incorporating TBI issues in other complementary federal grant projects, such as the federal Substance Abuse and Mental Health Services Administration’s jail diversion program, as well as the compacting process with the federal Indian Health Service. |
|
Despite Arizona’s many sustained accomplishments and systems changes, the Federal TBI Program grants from HRSA have helped the state identify the need for additional systems changes—for example, coordination among systems serving children, development of TBI service standards, identification of children with TBI, and mitigating policy and program eligibility differences among service programs that limit the delivery of services. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Arizona |
|
Arkansas |
Planning: 2001, 2002 |
Arkansas Department of Education |
|
California |
Planning: 1999, 2001 |
California Department of Mental Health |
|
Colorado |
Planning: 1999 |
Colorado Department of Human Services |
Implementation: 2001, 2002, 2003 |
|
Post-Demonstration: 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
and Child Health Bureau, Office for Children with Special Health Care Needs. |
|
|
With additional funding, Arkansas plans to improve educational services to students with TBI; implement hospital discharge and school re-entry procedures; and develop an infrastructure to facilitate leadership and advocacy skills among the brain injury community. Another important area of need, according to the statewide TBI needs/resources assessment, is development and coordination of community long-term supports, including housing and employment services. |
|
Although limited resources have temporarily precluded active implementation of California’s statewide TBI action plan, efforts continue at the grassroots level to increase awareness of TBI and improve access to existing services through statewide training, a new website, and the nationwide toll-free information hotline. Legislation has been introduced to extend the sunset date of California’s TBI Fund, and advocates continue to promote permanent establishment of the fund. |
|
Although Colorado’s TBI trust fund will be able to support some of the activities initiated under the Federal TBI Program grants from HRSA, there remain other issues, as identified by Colorado’s TBI action plan, that require focus—for example, development and integration of additional service coordination networks; training of professionals who serve and educate |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Colorado |
|
Connecticut |
Planning: 2003, 2004 |
Connecticut Department of Social Services |
|
Delaware |
Planning: 1997, 1998 |
Delaware Department of Health and Social Services |
|
District of Columbia |
Planning: 1997, 1998 |
D.C. Department of Health |
Implementation: 1999, 2000, 2001 |
|
Post-Demonstration: 2002, 2003 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
children and youth with TBI; and training of state agency personnel. As professionals in California become more aware of TBI-related issues, they will be better prepared to identify and coordinate state program and policy changes. |
|
|
Connecticut’s TBI advisory board members have drafted a bill to have the board legislatively mandated. Connecticut continues to develop the members of the advisory board and complete Connecticut’s TBI needs/resources assessment in order to create a statewide TBI action plan that will define the optimal coordination system of services and supports for individuals with TBI and their families in the state. |
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Delaware has received approval for a TBI-specific Medicaid TBI waiver and is currently in the process of implementation. Other issues identified in the statewide TBI action plan may be addressed in the future with additional funding. |
|
D.C. continues to work with appropriate stakeholders to ensure the sustainability of the D.C. TBI registry. D.C. is also addressing the transition process to daycare, preschool, middle and high school, as well as the transition to post-secondary options for infants, children, youth, and young adults with TBI. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Florida |
Implementation: 1997, 1998, 1999, 2000 |
Florida Department of Health |
Post-Demonstration: 2001, 2003, 2004 |
Georgia |
Planning: 1997 |
Brain and Spinal Injury Trust Fund Commission |
Implementation: 1998, 1999, 2000 |
|
Post-Demonstration: 2004 |
Hawaii |
Planning: 1999, 2000 |
Hawaii Department of Health |
Implementation: 2002, 2003, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
With each additional Federal TBI Program grant, Florida addresses yet another area in its statewide TBI action plan. Currently, state resources are being leveraged to improve the employment outcomes for individuals with TBI and their families. Florida has also been successful in integrating TBI issues in its Olmstead planninga and its Real Choice Systems Change Grant from the Centers for Medicare & Medicaid Services (CMS). |
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As the new lead state agency for TBI, Georgia’s Brain and Spinal Injury Trust Fund Commission is redeveloping the former statewide TBI advisory board as a permanent body to lead systems change. Additionally, efforts are underway to update the statewide TBI needs/resources assessment. The statewide TBI action plan has identified the need to increase access to transportation, neurobehavioral, and cognitive rehabilitation services; lifelong services; and supports that include rehabilitation and housing. |
|
Hawaii continues to educate the community about TBI through a speakers bureau and other mechanisms and develop the capacity of the statewide TBI advisory board members to lead systems change efforts. Among the priorities identified in the statewide TBI action plan are the need to gather and utilize reliable information from program evaluations, increase TBI awareness, and improve access to coordinated TBI services throughout the state. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Idaho |
Planning: 2000, 2001 |
Idaho Department of Health and Welfare |
Implementation: 2003, 2004, 2005 Illinois Planning: 1997, 1998 |
Illinois Department of Human Services |
Implementation: 2000, 2001, 2002 |
Indiana |
Planning: 1999 |
Indiana Department of Health |
|
Iowa |
Planning: 1997 |
Iowa Department of Public Health |
Implementation: 1998, 1999, 2000 |
|
Post-Demonstration: 2001, 2002, 2003 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
Idaho’s fall 2004 Virtual Grand Rounds were being coordinated with Washington State. Idaho also expected to continue its economic analysis in collaboration with the Real Choice Systems Change Grant from CMS; the development of the TBI Virtual Program Center; its continued coordination with state and federal community integration and self-determination efforts (e.g., Commission on Aging, Consortium of Idahoans with Disabilities, and Telehealth Idaho). |
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Illinois is working to implement elements of the statewide TBI action plan. For example, efforts continue to improve access to transportation, improve vocational rehabilitation services and employment outcomes, and increase access to educational services and institutions. |
|
Indiana has utilized a TBI Planning Grant to identify and begin to organize state resources. The state’s planning activities have provided valuable information that will help establish priorities for future TBI systems change activities. |
|
A priority for Iowa’s TBI program is to identify and secure alternative sources of financial support to ensure the long-term sustainability of projects initiated during the grant. Additionally, Iowa continues to work on developing and implementing Injury standards of care to ensure service |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Iowa |
|
Kansas |
Planning: 2001, 2002 |
Kansas Department of Social and Rehabilitation Services |
Implementation: 2003, 2004, 2005 |
Kentucky |
Planning: 1999 |
Kentucky Cabinet for Health Services/Department of Mental Health and Mental Retardation |
Implementation: 2003, 2004, 2005 |
Louisiana |
No Federal TBI Program grants received |
Louisiana Department of Social Services/Rehabilitation Services |
|
Maine |
Planning: 2003, 2004 |
Maine Department of Human Services |
Implementation: 2005 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
Resource Network.
|
quality and cost effectiveness, make case management available to all individuals with TBI, and ensure that the Brain Injury Association of Iowa is recognized as the single point of contact for statewide information and referral services. |
|
Kansas continues to address areas of need as identified by its statewide TBI action plan by promoting awareness of TBI within various professional communities; developing a screening tool and licensure process for substance abuse counselors; and further developing the statewide TBI advisory board. |
|
Kentucky is also working to address other issues as identified by the statewide TBI action plan: maximizing the ability of individuals with TBI and their families to plan for and support themselves in their homes and communities and establishing sustainable funding for needed services. |
|
Maine will address some of the issues identified in its statewide TBI action plan to improve the lives of individuals with TBI. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Maine |
|
Maryland |
Planning: 1998 |
Maryland Department of Health and Mental Hygiene |
Implementation: 1999, 2000, 2001 |
|
Post-Demonstration: 2003, 2004 |
Massachusetts |
Implementation: 2000, 2001, 2002 |
Massachusetts Executive Office of Health and Human Services/Rehabilitation Commission |
|
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
of the statewide TBI needs/resources assessment process. |
|
|
Maryland is continuing its efforts to increase statewide awareness of TBI and to ensure individuals with TBI and their families have access to the information they need to access appropriate services. |
|
Other needed systems change priorities identified in the Massachusetts statewide TBI action plan include the need to increase access to community-based services, family support services, school capacity to serve children with TBI, and the need for improved funding, among others. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Michigan |
Planning: 1998 |
Michigan Department of Community Health |
Implementation: 2001, 2002, 2003 |
|
Post-Demonstration: 2004 |
Minnesota |
Implementation: 1997, 1998, 1999 |
Minnesota Department of Human Services |
Post-Demonstration: 2002, 2003 |
Mississippi |
Planning: 1997 |
Mississippi Department of Rehabilitation Services |
|
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
Michigan is developing strategies to maximize the effective and efficient use of public funds, promote public-private partnerships, improve service coordination, and ensure TBI services and supports are comprehensive and support individually determined outcomes to the extent possible. |
|
Minnesota’s statewide TBI action plan identifies systems change needs in addition to work begun and sustained by the state’s Federal TBI Program grants from HRSA. These additional needs include improved access to pertinent information; better linkage to resources in various systems (e.g., education, work, behavioral health, etc.); coordinating with “border hospitals” in neighboring states; and outreach to the underserved. |
|
With an additional Federal TBI Program Planning Grant from HRSA, Mississippi plans to convene a statewide TBI advisory board, which will conduct a statewide TBI needs/resources assessment and formulate a statewide TBI action plan. As a |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Mississippi |
|
Missouri |
Implementation: 1997, 1998, 1999, 2000 |
Missouri Department of Health and Senior Services |
Post-Demonstration: 2001, 2002, 2004 |
Montana |
Planning: 2001, 2002 |
Montana Department of Public Health and Human Services |
Implementation: 2003, 2004, 2005 |
Nebraska |
Planning: 2000, 2001 |
Nebraska Department of Education |
Implementation: 2002, 2003, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
result of the initial planning phase, several significant systems change needs were identified. For example, it was learned that individuals with TBI and their families are often unaware of existing TBI services and supports and have difficulty accessing appropriate services and supports, or services and resources are unavailable in some communities. |
|
|
Missouri is working to implement a service coordination and Futures Planning model statewide, and to ensure that reliable, person-centered outcome data are utilized to evaluate programs. Other priorities identified in its statewide TBI action plan include: addressing the needs of individuals with behavioral issues; improving employment outcomes; addressing the unique needs of children with TBI. |
|
Montana continues to develop its information and referral program; create coordinated services within two Indian Reservations; and create training modules for providers and individuals with TBI and their families. Cultural competence is infused in the project via the Native American representation on the statewide TBI advisory board. |
|
Nebraska’s priorities, as identified by its statewide TBI action plan, are to increase awareness of the service and support needs of individuals with TBI and their families, increase the local availability of services and supports, and improve the |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Nebraska |
|
Nevada |
Planning: 1997, 2005 |
Nevada Office of Community-Based Services |
|
New Hampshire |
Planning: 1997, 1998 |
New Hampshire Department of Health and Human Services/Division of Developmental Services |
Implementation: 2000, 2001, 2002 |
Post-Demonstration: 2003, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
coordination of services and funding sources. |
|
Nevada has completed a number of important statewide planning and organizational activities. These efforts have identified the need to develop a coordinated approach to services and supports delivery, increase access to information and referral services, increase access to services and supports, and increase public awareness of TBI-related issues. |
|
New Hampshire is also working to address other issues as identified by the statewide TBI action plan: increasing the knowledge base and skills of professionals; developing statewide capacity to provide responsive service coordination and referral; and continuing to strengthen the statewide TBI advisory board. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
New Jersey |
Implementation: 1999, 2000, 2001 |
New Jersey Department of Human Services |
Post-Demonstration: 2002, 2003, 2004 |
New Mexico |
Implementation: 2001, 2002, 2003 |
New Mexico Department of Health |
|
New York |
Implementation: 1997, 1998, 1999, 2000 |
New York Department of Health |
Post-Demonstration: 2001, 2002, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
New Jersey continues to develop and disseminate educational materials for various audiences. New Jersey also integrates TBI in other disability initiatives, including Olmstead planning initiatives and its Real Choice Systems Change Grant from CMS. With the establishment of the New Jersey TBI Fund and a Brain Injury Research Fund, New Jersey has gained a significant boost ($3.4 million annually) toward the sustainability of its systems change efforts initiated with the Federal TBI Program. |
|
New Mexico is working with several contractors to conduct program evaluations of existing state TBI service and support systems. The results of these evaluations will help to guide future systems change activities. A refresher advocacy training course will be given to the 50 advocacy graduates in preparation for passage of the TBI-specific Medicaid waiver in the 2005 legislative session. |
|
New York continues to evaluate the efficacy and cost effectiveness of service and community reintegration. Other ongoing activities include increased service coordination, and collaboration with insurance companies and health maintenance organizations. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
North Carolina |
Implementation: 1997, 1998, 1999 |
North Carolina Division of Mental, Developmental Disabilities, and Substance Abuse Services |
Post-Demonstration: 2001 |
North Dakota |
Planning: 2003, 2004 |
North Dakota Department of Human Services |
|
Ohio |
Implementation: 1998, 1999, 2000 |
Ohio Rehabilitation Services Commission |
Post-Demonstration: 2002, 2003, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
In North Carolina, in addition to the systems changes addressed by Federal TBI Program grants, the statewide TBI action plan has identified a need to increase public awareness about TBI-related issues, develop rehabilitation programs that include prevocational and vocational rehabilitation with therapies, secure financing to support local service and support programs, and develop a regional information and resources infrastructure. |
|
North Dakota is working to establish a lead state agency for TBI and complete its statewide TBI needs/resources assessment. The results of this process will provide the information needed to develop a comprehensive statewide TBI action plan, which will provide the foundation and direction for future systems change activities in North Dakota. |
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Ohio is updating its joint Brain Injury Advisory Committee—Brain Injury Association of Ohio statewide TBI action plan and working with policy makers to ensure access to services and supports for persons with brain injury and their families. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Ohio |
|
Oklahoma |
Planning: 1997, 1998 |
Oklahoma Department of Health |
Implementation: 1999, 2000, 2001 |
|
Post-Demonstration: 2003, 2004 |
Oregon |
Planning: 1997 |
Oregon Department of Education |
Implementation: 1998, 1999, 2000 |
|
Post-Demonstration: 2001, 2002, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
personnel, TBI Collaborative Groups, support groups, and individuals with TBI and their families.
|
|
|
Oklahoma is sharing its discharge planning model improvement recommendations with hospitals and other groups. Oklahoma’s statewide TBI action plan has also identified a need to improve prevention of common secondary effects of TBI. |
|
Oregon continues to develop a single point of contact where individuals with TBI, families, and service and support providers can access information about TBI services and supports and to expand the Cadre Model to work with larger communities around the state. The state’s partners continue the legislative efforts begun under the grant. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Pennsylvania |
Planning: 2001, 2002 |
Pennsylvania Department of Health |
Implementation: 2003, 2004, 2005 |
Rhode Island |
Planning: 1999, 2000 |
Rhode Island Department of Human Services |
Implementation: 2002, 2003, 2004 |
South Carolina |
Planning: 1997, 1998 |
South Carolina Department of Disabilities and Special Needs |
Implementation: 2000, 2001, 2002 |
|
Post-Demonstration: 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
Pennsylvania continues to strengthen its interagency collaborations to address issues identified in its statewide TBI action plan, including the need for greater public awareness of TBI and the improvement in the quality of care and services for those with TBI and their families. |
|
Future activities include increasing public awareness of the causes and consequences of TBI, improving the TBI knowledge and skills of health and service professionals, improving access to information and resources on TBI for individuals with TBI and families, improving service coordination statewide, and increasing the focus on person-centered services and supports, among other issues. Also, Rhode Island continues to develop its Needs and Resource Directory as well as training videos. Legislation has been introduced to expand the Governor’s Permanent Advisory Council and to establish a trust fund to pay for expanded services for people with TBI and their families. |
|
Although South Carolina has a basic service structure in place and some dedicated funding for TBI, implementation of specialized employment preparation for individuals with TBI and TBI training for state agency staff and professionals remain important areas of need. |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
South Carolina |
|
South Dakota |
No Federal TBI Program grants received |
Tennessee |
Implementation: 2000, 2001, 2002 |
Tennessee Department of Health |
Post-Demonstration: 2003, 2004 |
Texas |
Planning: 1997, 1998 |
Texas Department of Health and Human Services |
Implementation: 2000, 2001, 2002 |
|
Post-Demonstration: 2004 |
Utah |
Planning: 2001, 2002 |
Utah Department of Human Services |
Implementation: 2003, 2004 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
|
|
Tennessee’s statewide TBI action plan has identified the need to secure sustainable financial support for TBI services and supports, improve access to the information and services individuals with TBI and their families need, and to improve service coordination. |
|
The Texas TBI program continues to participate with state agencies to ensure that barriers to coordinated and comprehensive TBI services and supports are eliminated, and to ensure that individuals with TBI and their families are appropriately served across the state. |
|
With its Implementation Grant, Utah began its analysis of current state policies for functionality and as a basis for promoting TBI-favorable systems change. Utah will also continue its efforts to develop a comprehensive information and referral system and improve the case |
State and Lead State Agency for TBI |
Federal TBI Program Grant(s) Received from HRSA |
Utah |
|
Vermont |
Planning: 2001, 2002 |
Vermont Division of Vocational Rehabilitation |
Implementation: 2004, 2005 |
Virginia |
Planning: 1998, 1999 |
Virginia Department of Rehabilitation Services |
Implementation: 2002, 2003, 2004 |
Washington |
Planning: 2000, 2001 |
Washington Department of Social and Health Services |
Implementation: 2003, 2004, 2005 |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
management and education services, among others, for those with TBI and their families. |
|
With its Planning Grant, Vermont made great strides in identifying the next steps in achieving systems change for those with TBI and their families. The Implementation Grant will allow Vermont to address a subset of the needs identified by the statewide TBI action plan. |
|
Virginia will continue to address needs identified by its statewide TBI action plan: regional resource centers, a central registry, neurobehavioral treatment, case management, personal assistance, improved employment outcomes, transportation, and individual/family support. |
|
Washington continues to further strengthen its various interagency collaborations and its statewide TBI advisory board to achieve the priorities as identified in the statewide TBI action plan, including the development of support for a housing option specifically for those with TBI. |
Accomplishments of the State TBI Program |
Continuing Efforts by the State |
|
West Virginia will continue to collaborate with other state projects including the Real Choice Systems Change Grant from CMS and the Nursing Home Transition Project to address other issues prioritized by the statewide TBI action plan: improved self advocacy training for individuals with TBI; and comprehensive and coordinated systems of services and supports, from hospital discharge to community integration, among others. |
|
Wisconsin is incorporating the TBI service delivery system into existing state and county services. The emphasis at this time is to develop further the statewide TBI advisory board; address the various needs of the Native American and other underserved populations; and explore sustainability options for activities initiated under Federal TBI Program grants. A partnership between the Brain Injury Association of Wisconsin and the Association for Retarded Citizens of Wisconsin continues as the organizations work to increase disability service capacity in rural areas. |
As of March 2005, Wyoming did not have results to report from its 2005 TBI Planning Grant from HRSA. |
|
SOURCE: Connors S, King A, Vaughn S. Guide to State Government Brain Injury Policies, Funding and Services. 1st ed. Bethesda, MD: NASHIA, 2003; King A, Vaughn SL. Guide to State Government Brain Injury Policies, Funding and Services. 2nd ed. Bethesda, MD: NASHIA, 2005. |
TABLE C-3 State-Based Protection and Advocacy (P&A) Systems for Individuals with Developmental Disabilities: Goals and Accomplishments Related to P&A for Individuals with Traumatic Brain Injury (PATBI) by State, 2005
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Alabama Alabama Disabilities Advocacy Program |
PATBI Grant: $150,000 |
|
Alaska Disability Law Center of Alaska |
PATBI Grant: $150,000 |
|
Arizona Arizona Center for Disability Law |
PATBI Grant: $150,931 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Alabama Disabilities Advocacy Program will continue to provide case advocacy for individuals with TBI, education and training regarding rights of those with TBI, and outreach to individuals with TBI residing in rural areas. |
|
The Disability Law Center of Alaska will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Arizona Center for Disability Law will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Alabama |
around the state targeting individuals with TBI, their families, and caregivers.
|
|
Arkansas Disability Rights Center, Inc. |
PATBI Grant: $100,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
|
|
The Disability Rights Center is planning advocacy and outreach strategies for training medical technicians, first responders, and coaches and a public relations project utilizing Arkansas’ statewide TBI advisory board members’ stories in a press release. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
California Protection & Advocacy, Inc. |
PATBI Grant: $241,487 |
|
Colorado The Legal Center for People with Disabilities |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
Not available. |
Protection & Advocacy, Inc. in California will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Legal Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Connecticut Connecticut Protection & Advocacy for Persons with Disabilities |
PATBI Grant: $100,000 |
|
Delaware Community Legal Aid Society, Inc. |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
Connecticut Protection & Advocacy for Persons with Disabilities will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Community Legal Aid Society is researching a bill to raise the mandatory bicycle helmet age in Delaware from under 16 to under 18. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Delaware |
Exceptional Citizens to promote the timely and valid identification of students with TBI in implementation of Senate Bill 105.
|
|
District of Columbia University Legal Services |
PATBI Grant: $100,000 |
|
Florida Advocacy Center for Persons with Disabilities, Inc. |
PATBI Grant: $154,458 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
University Legal Services in D.C. will continue to provide outreach and education on TBI and advocate on behalf of people with TBI. |
|
The Advocacy Center for Persons with Disabilities, Inc., in Florida continues to work in the focus areas of its Federal PATBI Grant from HRSA, as well as respond to other requests for individual advocacy as they arise. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Florida |
services and supports; special education for children and youth with TBI; access to health care services; and mental health services. |
|
Georgia Georgia Advocacy Office, Inc. |
PATBI Grant: $116,532 |
|
Hawaii Hawaii Disability Rights Center |
PATBI Grant: $150,000 |
|
Idaho Comprehensive Advocacy, Inc. (Co-Ad, Inc.) |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Georgia Advocacy Office will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Hawaii Disability Rights Center anticipates providing the following services in the upcoming year: individual case advocacy for 45 individuals with TBI; information and referral to 180 individuals; training, education, and outreach to 197 groups; and the distribution of 6,600 TBI brochures. |
|
Co-Ad will continue its collaboration with the Brain Injury Association of Idaho and Idaho State University’s Institute on Rural Health. It will monitor and refine home and community-based services provided through Medicaid waivers; develop position statements and strategies on public policy issues affecting people with TBI; and influence |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Idaho |
|
|
Illinois Equip for Equality, Inc. |
PATBI Grant: $187,123 |
|
Indiana Indiana Protection and Advocacy Services |
PATBI Grant: $106,286 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
system change through direct and systemic advocacy. |
|
|
Equip for Equality will continue to implement its grant objectives nd provide aadvocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
Indiana continues to attempt to identify a lead state agency for procurement of additional Federal TBI Program grant monies to fund P&A activities. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Indiana |
|
|
Iowa Iowa Protection and Advocacy Services, Inc. |
PATBI Grant: $100,000 |
|
Kansas Kansas Advocacy & Protective Services |
PATBI Grant: $100,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
As Iowa moves toward a community-based service system, Iowa Protection and Advocacy Services will diligently and systemically advocate that persons with TBI be placed where they can receive habilitative and rehabilitative services as well as work with individuals with TBI in realizing and selecting appropriate placement and program service opportunities within community programs. |
|
Kansas Advocacy & Protective Services will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Kansas |
|
|
Kentucky Kentucky Protection & Advocacy |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
Kentucky Protection and Advocacy will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Louisiana Advocacy Center |
PATBI Grant: $150,000 |
|
Maine Disability Rights Center |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Advocacy Center in Louisiana will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Disability Rights Center in Maine will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Maryland Maryland Disability Law Center |
PATBI Grant: $102,472 |
|
Massachusetts Disability Law Center, Inc. |
PATBI Grant: $104,038 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Maryland Disability Law Center will continue efforts (through legislative advocacy, litigation, and otherwise) to eliminate unconstitutional confinement of persons with TBI found incompetent to stand trial but not promptly restored to competency or tried. The Maryland Disability Law Center will continue to provide community services access for those with TBI to avoid/eliminate unnecessary institutionalization. |
|
The Disability Law Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Michigan Michigan Protection and Advocacy Service, Inc. |
PATBI Grant: $175,055 |
|
Minnesota Minnesota Disability Law Center |
PATBI Grant: $150,638 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Michigan Protection and Advocacy Service will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Minnesota Disability Law Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Mississippi Mississippi Protection and Advocacy System for Developmental Disabilities, Inc. |
PATBI Grant: $100,000 |
|
Missouri Missouri Protection and Advocacy Services, Inc. |
PATBI Grant: $153,925 |
|
Montana Montana Advocacy Program |
PATBI Grant: $100,000 |
|
Nebraska Nebraska Advocacy Services, Inc. |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Mississippi Protection and Advocacy System for Developmental Disabilities will continue to identify persons with TBI who are being served by this office and provide outreach services. |
|
Missouri Protection and Advocacy Services will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
Not available |
The Montana Advocacy Program will continue to implement its grant objectives and advocate for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
Nebraska Advocacy Services will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Nebraska |
financial issues.
|
|
Nevada Nevada Disability Advocacy and Law Center |
PATBI Grant: $100,000 |
|
New Hampshire Disability Rights Center, Inc. |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
accessing services and supports to meet their needs. |
Not available. |
The Nevada Disability Advocacy and Law Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Disabilities Rights Center will continue to implement its grant objective and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
New Jersey New Jersey Protection & Advocacy, Inc. |
PATBI Grant: $167,640 |
|
New Mexico Protection & Advocacy System |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
New Jersey Protection & Advocacy, Inc., will continue and expand outreach, education, and promotion of self-advocacy to individuals with TBI, their families, providers, and service organizations. |
|
New Mexico’s Protection & Advocacy System will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
New York New York State Commission on Quality Care for Persons with Disabilities |
PATBI Grant: $169,023 |
|
North Carolina Governor’s Advocacy Council for Persons with Disabilities |
PATBI Grant: $115,864 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The PATBI Program will join the Brain Injury Association of New York State in training judges and attorneys regarding the needs of individuals with TBI; help people with TBI overcome barriers that interfere with access to benefits and services to which they are entitled; and continue working with the major state agencies to provide coordinated services for individuals with TBI and other correlated disabilities. |
The Governor’s Advocacy Council for Persons with Disabilities (GACPD), in collaboration with the Brain Injury Association of North Carolina, has held meetings throughout North Carolina to inform citizens about the work being done through the PATBI Grant. As a result, TBI-related calls and cases coming into GACPD have increased dramatically. The statewide meetings have also given GACPD insight into the needs of North Carolina’s TBI population. |
The Governor’s Advocacy Council for Persons with Disabilities is working with North Carolina’s TBI Advisory Council to shape the service delivery system for North Carolina’s TBI population. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
North Dakota Protection and Advocacy Project |
PATBI Grant: $150,000 |
|
Ohio Ohio Legal Rights Service |
PATBI Grant: $181,937 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
The Protection and Advocacy Project in North Dakota will continue to implement the grant objectives and advocate for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
The Ohio Legal Rights Service will continue to represent students with TBI on issues specific to the receipt of an appropriate education. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Ohio |
|
|
Oklahoma Oklahoma Disability Law Center, Inc. |
PATBI Grant: $100,000 |
|
Oregon Oregon Advocacy Center |
PATBI Grant: $100,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
Communicated with the Oklahoma Department of Health to establish a working relationship on issues related to traumatic brain injuries. |
The Oklahoma Disability Law Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and families in accessing services and supports to meet their needs. |
Not available. |
The Oregon Advocacy Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Oregon continued |
|
|
Pennsylvania Pennsylvania P&A, Inc. |
PATBI Grant: $186,451 |
|
Rhode Island Rhode Island Disability Law Center, Inc. |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
Pennsylvania P&A will continue to provide information on rights, resources, and self-advocacy to individuals with TBI, family members, and interested professionals where appropriate. Pennsylvania P&A will also collaborate with other stakeholders and external advocacy organizations to ensure inclusion of TBI service issues in all planning processes and program designs. |
|
The Rhode Island Disability Law Center will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
South Carolina Protection and Advocacy for People with Disabilities |
PATBI Grant: $150,000 |
|
South Dakota South Dakota Advocacy Services |
PATBI Grant: $150,000 |
|
Tennessee Tennessee P&A, Inc. |
PATBI Grant: $154,383 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
Protection and Advocacy for People with Disabilities in South Carolina will continue to provide advocacy and legal services related to community integration, employment, housing, and education. |
|
South Dakota Advocacy Services will continue to implement its grant objectives and advocate for individuals with TBI and their families in accessing services and supports to meet their needs. |
|
Tennessee P&A will continue efforts to have a P&A representative on Tennessee’s statewide TBI advisory board. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Tennessee |
by providing informational materials to 200 persons in institutional settings, and by authoring four articles on abuse and neglect on any website and/or in any newsletter.
|
|
Texas Advocacy, Inc. |
PATBI Grant: $178,147 |
|
Utah Disability Law Center |
PATBI Grant: $150,000 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
|
Advocacy, Inc., served 97 individuals with TBI P&A funds in fiscal year 2004. |
Advocacy, Inc., will continue to advocate for the development and availability of additional community support services for individuals with TBI in Texas. |
|
The Disability Law Center was a member of the planning committee for the conference of the Utah Trial Lawyers/Brain Injury Association of Utah planned for March 2005 and a member of Utah’s TBI program. The Disability Law Center was expected to conduct a focus group on March 17, 2005, with a TBI |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Utah |
|
|
Vermont Vermont Protection and Advocacy, Inc. |
PATBI Grant: $150,000 |
|
Virginia Virginia Office for Protection and Advocacy |
PATBI Grant: $111,141 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
of Utah’s Family and Professional Conference.
|
support group at a local hospital. |
|
Vermont Protection and Advocacy is scheduling trainings for individuals with TBI, family members, and service providers on legal resources for all areas of Vermont and working with the Vermont legislature and state agencies to expand services, supports, and funding available to individuals with TBI. |
The Virginia Office for Protection and Advocacy has developed a partnership with the Brain Injury Association of Virginia. |
The Virginia Office for Protection and Advocacy will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Virginia |
|
|
Washington Washington Protection and Advocacy |
PATBI Grant: $155,191 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
Washington Protection and Advocacy will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
West Virginia West Virginia Advocates, Inc. |
PATBI Grant: $100,000 |
|
Wisconsin Wisconsin Coalition for Advocacy |
PATBI Grant: $152,799 |
|
Accomplishments of the State-Based P&A System Under the Federal PATBI Grant |
Continuing Efforts Related to P&A for Individuals with TBI and Their Families |
|
West Virginia Advocates will continue to provide a TBI P&A program that is responsive to the needs of individuals with TBI and their families. |
|
The Wisconsin Coalition for Advocacy will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. |
State and State-Based P&A System for Individuals with Developmental Disabilitiesa |
Federal PATBI Grant Received from HRSA Period: 9/01/2004–8/31/2006 |
Goals Under the Federal PATBI Grant |
Wyoming Wyoming P&A |
PATBI Grant: $100,000 |
|
NOTE: Data displayed in this table are compiled from state self-reports collected by the National Association of Head Injury Administrators (NASHIA). Programs or accomplishments reported in this table may be unique to an individual state. aUnder the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.Code 6012), each state seeking a federal grant for protection and advocacy (P&A) services for individuals with developmental disabilities must establish a protection and advocacy system independent of service-providing agencies, to empower, protect, and advocate on behalf of persons with developmental disabilities. The Children’s Health Act of 2000 (P.L. 106-310) directed the Health Resources and Services Administration (HRSA) to make grants to state-based P&A systems to provide information, referral, and self-advocacy to individuals with TBI and their families. bOn June 22, 1999, the U.S. Supreme Court held in Olmstead v. L.C. that the unnecessary segregation of individuals with disabilities in institutions may constitute discrimination based on disability. The court ruled that the Americans with Disabilities Act may require states to provide community-based services rather than institutional placements for individuals with disabilities. |