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Suggested Citation:"Appendix: Workshop Agenda." Institute of Medicine. 2007. Cancer-Related Genetic Testing and Counseling: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/11971.
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Page 121
Suggested Citation:"Appendix: Workshop Agenda." Institute of Medicine. 2007. Cancer-Related Genetic Testing and Counseling: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/11971.
×
Page 122
Suggested Citation:"Appendix: Workshop Agenda." Institute of Medicine. 2007. Cancer-Related Genetic Testing and Counseling: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/11971.
×
Page 123
Suggested Citation:"Appendix: Workshop Agenda." Institute of Medicine. 2007. Cancer-Related Genetic Testing and Counseling: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/11971.
×
Page 124

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Appendix Workshop Agenda Institute of Medicine National Cancer Policy Forum The Keck Center of the National Academies 500 5th Street, NW Keck 201 Washington, D.C. 20001 March 30, 2007 6:30 pm Thursday, March 29, 2007 at the Henley Park Hotel Dinner 8:00 am Friday, March 30, 2007 at the Keck Center, Room 101 Continental Breakfast 8:30 am Welcome, Opening Remarks, Approval of Minutes, Forum Updates, Other Business Harold Moses 9:15 am The Promise and Pitfalls of Cancer-Related Genetic Counseling and Testing Patricia A. Ganz, UCLA 121

122 cancer-RELATED GENETIC TESTING AND COUNSELING 9:55 am Current and Future Demand for Cancer-Related Genetic Counseling and Testing Services Robin Bennett, Senior Genetic Counselor, Clinic Manager, University of Washington Medical Center 10:35 am Break 10:50 am Implications of Home Tests and Direct to Consumer Advertising Gail Javitt, Law and Policy Director, Genetics and Public Policy Center, Johns Hopkins University 11:30 am Delivery and Research Issues-Healthcare Provider Supply and Preparedness Mark H. Greene, Chief, Clinical Genetics Branch, DCEG, NCI 12:10 pm Lunch 1:00 pm Delivery and Research Issues-Providing Community-Based Services Jeff Weitzel, Director, Department of Clinical Cancer Genetics, City of Hope Cancer Center 1:40 pm Delivery and Research Issues-Reaching Underserved Groups Chanita Hughes-Halbert, Director, Community and Minority Cancer Control Program, University of Pennsylvania 2:20 pm �������������������� Reimbursement Issues Debra Lochner Doyle, Manager, Genetic Services Section, Washington State Department of Health 3:00 pm Break 3:15 pm Psychological Impact on Patients and Families Marc Schwartz, Associate Professor of Oncology, Co-Director, Cancer Control, Georgetown University

APPENDIX: WORKSHOP AGENDA 123 3:55 pm Implications for Access to Health and Life Insurance Henry T. Greely, Professor Law and Genetics, Stanford Center for Biomedical Ethics, Stanford University 4:35 pm Concluding Remarks and Adjourn Harold Moses

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These proceedings of a workshop presented to the Institute of Medicine's (IOM) National Cancer Policy Forum on March 30, 2007, are the result of forum discussions about genetic testing and counseling at its meetings on June 16 and October 30, 2006. Those discussions, led by forum members Betty Ferrell and Patricia Ganz, noted that genetic testing and counseling are becoming more complex and important for informing patients and families of risks and benefits of certain courses of action, and yet organized expert programs are in short supply.

The subject matter involves not only the scientific and clinical aspects but also workforce and reimbursement issues, among others. Drs. Ferrell and Ganz proposed that the forum could provide a useful review of the various important implications of these issues by holding and reporting a workshop on the subject. They volunteered to work with staff to organize and lead such a workshop. The agenda for the workshop is reproduced in the appendix to these proceedings. It includes the presentations of the invited speakers and the comments of speakers, forum members, and others in attendance as transcribed and edited to eliminate redundancies, grammatical errors, and otherwise make them more readable. Cancer-Related Genetic Testing and Counseling : Workshop Proceedings summarizes the workshop.
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