National Academies Press: OpenBook
« Previous: 6 Conclusions and Recommendations
Suggested Citation:"References." Institute of Medicine and National Research Council. 2008. The National Children's Study Research Plan: A Review. Washington, DC: The National Academies Press. doi: 10.17226/12211.
×
Page 141
Suggested Citation:"References." Institute of Medicine and National Research Council. 2008. The National Children's Study Research Plan: A Review. Washington, DC: The National Academies Press. doi: 10.17226/12211.
×
Page 142
Suggested Citation:"References." Institute of Medicine and National Research Council. 2008. The National Children's Study Research Plan: A Review. Washington, DC: The National Academies Press. doi: 10.17226/12211.
×
Page 143
Suggested Citation:"References." Institute of Medicine and National Research Council. 2008. The National Children's Study Research Plan: A Review. Washington, DC: The National Academies Press. doi: 10.17226/12211.
×
Page 144
Suggested Citation:"References." Institute of Medicine and National Research Council. 2008. The National Children's Study Research Plan: A Review. Washington, DC: The National Academies Press. doi: 10.17226/12211.
×
Page 145
Suggested Citation:"References." Institute of Medicine and National Research Council. 2008. The National Children's Study Research Plan: A Review. Washington, DC: The National Academies Press. doi: 10.17226/12211.
×
Page 146

Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

References Ainsworth, M.D., and Bell, S.M. (1970). Attachment, exploration, and separation: Illustrated by the behavior of one-year-olds in a strange situation. Child Development, 41(1), 49-67. Akinbami, L.J. (2006). The state of childhood asthma, United States, 1980-2005. (Advance data from Vital and Health Statistics, no. 381.) Hyattsville, MD: National Center for Health Statistics. Arbes, S.J., Jr., Gergen, P.J., Vaughen, B., and Zeldin, D.C. (2007). Asthma cases attributable to atopy: Results from the Third National Health and Nutrition Examination Survey. Journal of Allergy and Clinical Immunology, 120(5), 1138-1145. Barlow, S.E., and the Expert Committee. (2007). Expert committee recommendations regard- ing the prevention, assessment, and treatment of child and adolescent overweight and obesity: Summary report. Pediatrics, 120(Suppl. 4:S), 164-192. Benjamini, Y., and Hochberg, Y. (1995). Controlling the false discovery rate: A practical and powerful approach to multiple testing. Journal of the Royal Statistical Society, Series B: Methodological, 57, 289-300. Ben-Shlomo, Y., and Kuh, D. (2002). A life course approach to chronic disease epidemiology: Conceptual models, empirical challenges and interdisciplinary perspectives. International Journal of Epidemiology, 31, 285-293. Beskow, L.M., Burke, W., Merz, J.F., Barr, P.A., Terry, S., Penchaszadeh, V.B., Gostin, L.O., Gwinn, M., and Khoury, M.J. (2001). Informed consent for population-based research involving genetics. Journal of the American Medical Association, 286(18), 2315-2321. Bloom, B., and Cohen, R.A. (2007). Summary health statistics for U.S. children: National Health Interview Survey, 2006. Vital and Health Statistics, Series 10(234). Hyattsville, MD: National Center for Health Statistics. Bloom, M.S., Buck, L., Schisterman, E.F., Liu, A., and Kostyniak, P.J. (2007). Maternal serum PCB concentrations across critical windows of human development. Environmental Health Perspectives, 115, 1320-1324. Cardon, L.R., and Bell J.I. (2001) Association study designs for complex diseases. Nature Reviews Genetics, 2(2), 91-99. 141

142 THE NATIONAL CHILDREN’S STUDY RESEARCH PLAN Centers for Disease Control and Prevention. (2007). Birth defects. Available: http://www.cdc. gov/ncbddd/bd/default.htm [accessed October 5, 2007]. Cole, T.J., Bellizzi, M.C., Flegal, K.M., and Dietz, W.H. (2000). Establishing a standard defini- tion for child overweight and obesity worldwide: International survey. British Medical Journal, 320, 1240-1243. Colhoun, H.M., McKeigue, P.M., and Davey Smith, G. (2003). Problems of reporting genetic associations with complex outcomes. Lancet, 361, 865-872. Croen, L.A., Grether, J.K., Hoogstrate, J., and Selvin, S. (2002). The changing prevalence of autism in California. Journal of Autism and Developmental Disorders, 32, 207-215. Currie, M.B., and Gruber, J. (1996a). Health insurance eligibility, utilization of medical care, and child health. Quaterly Journal of Economics, 111(2), 431-466. Currie, M.B., and Gruber, J. (1996b). The efficacy and cost of recent expansions of Medicaid eligibility for pregnant women. Journal of Political Economy, 104(6), 1263-1296. Department of Gender and Women’s Health, Family and Community Health, and World Health Organization. (2001). Putting women first: Ethical and safety recommendations for research on domestic violence against women. Geneva: World Health Organization. Drotar, D. (Ed.). (1998). Measuring health-related quality of life in children and adolescents: Implications for research and practice. Mahwah, NJ: Lawrence Erlbaum Associates. Eiser, C., and Morse, R. (2001). Quality-of-life measures in chronic disease of childhood. Health Technology Assessment, 5(4), 1-157. English, S.B., and Butte, A.J. (2007) Evaluation and integration of 49 genome-wide experi- ments and the prediction of previously unknown obesity-related genes. Bioinformatics, 23(21), 2910-2917. Federal Interagency Forum on Child and Family Statistics. (2005). America’s children: Key national indicators of well-being, 2005. Washington, DC: U.S. Government Printing Office. Fox, C.S., Heard-Costa, N., Cupples, L.A., Dupuis, J., Vasan, R.S., and Atwood, L.D. (2007). Genome-wide association to body mass index and waist circumference: The Framingham Heart Study 100K project. BioMed Central Medical Genetics, 8(Suppl. 1), S18. Freedman, M.L., Reich, D., Penney, K.L., McDonald, G.J., Mignault, A.A., Patterson, N., Gabriel, S.B., Topol, E.J., Smoller, J.W., Pato, C.N., Pato, M.T., Petryshen, T.L., Kolone, L.N., Lander, E.S., Sklar, P., Henderson, B., Hirschhorn, J.N., and Altshuler, D. (2004). Assessing the impact of population stratification on genetic association studies. Nature Genetics, 36(4), 388-393. French, S.A., Story, M., and Perry, C.L. (1995). Self-esteem and obesity in children and ado- lescents: A literature review. Obesity Research, 3, 479-490. Gibb, B.E., Alloy, L.B., Walshaw, P.D., Conner, J.S., Shen, G.H.C., and Villari, A.G. (2006). Predictors of attributional style change in children. Journal of Abnormal Child Psychol- ogy, 34(30), 425-439. Haines, J.L., and Pericak-Vance, M.A. (1998). Approaches to gene mapping in complex diseases. New York: John Wiley & Sons. Hawkins, S.S., and Law, C. (2006). A review of risk factors for overweight in preschool chil- dren: A policy perspective. International Journal of Pediatric Obesity, 1(4), 195-209. Hayes, M.G., Pluzhnikov, A., Miyake, K., Sun, Y., Ng, M.C., Roe, C.A., Below, J.E., Nicolae, R.I., Konkashbaev, A., Bell, G.I., Cox, N.J., and Hanis, C.L. (2007). Identification of type 2 diabetes genes in Mexican Americans through genome-wide association studies. Diabetes, 56(12), 3033-3044. Hayes, V.E. (1997). Families and children’s chronic conditions: Knowledge development and methodological considerations. Scholarly Inquiry for Nursing Practice, 11, 259-290.

REFERENCES 143 Herman-Giddens, M.E., Slora, E.J., Wasserman, R.C., Bourdony, C.J., Bhapkar, M.V., Koch, G.G., and Hasemeier, C.M. (1997). Secondary sexual characteristics and menses in young girls seen in office practice: A study from the PROS network. Pediatrics, 99(4), 505-512. Himes, J.H. (2006). Examining the evidence for recent secular changes in the timing of puberty in U.S. children in light of increases in the prevalence of obesity. Molecular and Cellular Endocrinology, 254-255, 13-21. Hirschorn, K., Fletcher, L.D., Goldmilow, L., Howell, R.R., Lebel, R.R., McCabe, E.R., McGinniss, M.J., Milunsky, A., Pelias, M.Z., Pyeritz, R.E., Sujansky, E., Thomson, B.H., and Zinberg, R.E. (1999). Duty to reconnect. Genetics in Medicine, 1(4), 171-172. Hobbs, N., Perrin, J.M., and Ireys, H.T. (1985). Chronically ill children and their families. San Francisco: Jossey-Bass. Institute of Medicine. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care, B.D. Smedley, A.Y. Stith, and A.R. Nelson (Eds.). Washington, DC: The National Academies Press. Institute of Medicine. (2006). Preterm birth: Causes, consequences, and prevention. Commit- tee on Understanding Premature Birth and Assuring Healthy Outcomes, R.E. Behrman and A.S. Butler (Eds.). Washington, DC: The National Academies Press. Institute of Medicine. (2007). Nutrition standards for foods in schools: Leading the way toward healthier youth. Committee on Nutrition Standards for Foods in Schools, V.A. Stallings and A.L. Yaktine (Eds.). Washington, DC: The National Academies Press. Ioannidis, J.P.A. (2005). Why most published research findings are false. PLoS Medicine, 2(8), e124. Ioannidis, J.P.A., Ntzani, E.E., Trikalinos, T.A., and Contopoulos-Ioannidis, D.G. (2001). Rep- lication validity of genetic association studies. Nature Genetics, 29, 306-309. Israel, B., Eng, E., Schulz, A., and Parker, E. (Eds.). (2005). Methods in community-based participatory research for health. San Francisco: Jossey-Bass. Jacobson, J.L., and Jacobson, S.W. (1996). Intellectual impairment in children exposed to polychlorinated biphenyls in utero. New England Journal of Medicine, 335, 783-789. Kalsbeek, W.D. (2003). Sampling minority groups in health surveys. Statistics in Medicine, 22, 1527-1549. Kalsbeek, W.D., Botman, S.L., Massey, J.T., and Lu, P. (1994). Cost-efficiency and the number of allowable call attempts in the National Health Interview Survey. Journal of Official Statistics, 10(2), 133-152. Kohane, I.S., Mandl, K.D., Taylor, P.L., Holm, I.A., Nigrin, D.L.L., and Kunkel, M. (2007). Medicine reestablishing the researcher-patient compact. Science, 316(5826), 836-837. Krebs, N.F., Himes, J.H., Jacobson, D., Nicklas, T.A., Guilday, P., and Styne, D. (2007). As- sessment of child and adolescent overweight and obesity. Pediatrics, 120, S193-S228. Landrigan, P., Garg, A., and Droller, D.B. (2003). Assessing the effects of endocrine disrup- tors in the National Children’s Study. Environmental Health Perspectives, 111(13), 1678-1682. Lesler, J.T., and Kalsbeek, W.D. (1992). Nonsampling errors in surveys. New York: John Wiley & Sons. Lohmueller, K.E., Pearce, C.L., Pike, M., Lander, E.S., and Hirschhorn, J.N. (2003). Meta- analysis of genetic association studies supports a contribution of common variants to susceptibility to common disease. Nature Genetics, 33(2), 177-182. Malin, B.A. (2005). An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future. Journal of the American Medical Informatics Association, 12(1), 28-34.

144 THE NATIONAL CHILDREN’S STUDY RESEARCH PLAN Malin, B.A., and Airoldi, E. (2007). Confidentiality preserving audits of electronic medical record access. Medinfo, 12(Pt. 1), 320-324. Mangione-Smith, R., DeCristofaro, A.H., Setodji, C.M., Keesey, J., Klein, D., Adams, J.L., Schuster, M.A., and McGlynn, E.A. (2007). The quality of ambulatory care delivered to children in the United States. New England Journal of Medicine, 357, 1515-1523. Martin, J.A., Hamilton, B.E., Sutton, P.D., Ventura, S.J., Menacker, F., Kirmeyer, S., and Munson, M.S. (2007). Births: Final data for 2005. National Vital Statistics Reports, 56(6). Hyattsville, MD: National Center for Health Statistics. Mathews, T.J., and MacDorman, M.F. (2007). Infant mortality statistics from the 2004 period linked birth/infant death data set. National Vital Statistics Reports, 55(14). Hyattsville, MD: National Center for Health Statistics. Minkler, M., and Wallerstein, N. (Eds.). (2003). Community-based participatory research for health. San Francisco: Jossey-Bass. Molinari, E., Sartori, A., Ceccarelli, A., and Marchi, S. (2002). Psychological and emotional development, intellectual capabilities, and body image in short normal children. Journal of Endocrinological Investigation, 25, 321-328. Moonesinghe, R., Khoury, M.J., and Janssens, A.C.J.W. (2007). Most published research find- ings are false—But a little replication goes a long way. PLoS Medicine, 4(2), e28. National Bioethics Advisory Commission. (1999). Research involving human biological mate- rials: Ethical issues and policy guidance, Vol. 1. Rockville, MD: Author. National Institute of Child Health and Human Development. (2007). The National Children’s Study research plan. June 15 and Supplement September 17. National Research Council. (2007). Using the American Community Survey: Benefits and challenges. Panel on the Functionality and Usability of Data from the American Com- munity Survey, C.F. Citro and G. Kalton (Eds.). Washington, DC: The National Acad- emies Press. National Research Council and Institute of Medicine. (2000). From neurons to neighbor- hoods: The science of early childhood development. Committee on Integrating the Science of Early Childhood Development, J.P. Shonkoff and D.A. Phillips (Eds.). Washington, DC: National Academy Press. National Research Council and Institute of Medicine. (2004). Children’s health, the nation’s wealth. Committee on Evaluation of Children’s Health, Board on Children, Youth, and Families. Washington, DC: The National Academies Press. National Research Council and Institute of Medicine. (2005). Ethical considerations for re- search on housing-related health hazards involving children. Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families, B. Lo and M.E. O’Connell (Eds.). Washington, DC: The National Academies Press. New York Times. (2006, July 6). Size of military data theft grows to affect millions of troops. Newacheck, P.W., Budetti, P.P., and McManus, P. (1984). Trends in childhood disability. American Journal of Public Health, 74, 232-236. Newacheck, P.W., Budetti, P.P., Halfon, N. (1986). Trends in activity-limiting chronic condi- tions among children. American Journal of Public Health, 76, 178-184. Norman, R.J., Dewailly, D., Legro, R.S., and Hickey, T.E. (2007). Polycystic ovary syndrome. Lancet, 370, 685-697. Office of Extramural Research. (2007). Certificates of confidentiality kiosk. Available: http:// grants.nih.gov/grants/policy/coc/ [accessed May 2008]. Ogden, C.L., Flegal, K.M., Carroll, M.D., and Johnson, C.L. (2002). Prevalence and trends in overweight among U.S. children and adolescents. Journal of the American Medical Association, 288(14), 1728-1732.

REFERENCES 145 Ogden, C.L., Carroll, M.D., Curtin, L.R., McDowell, M.A., Tabak, C.J., and Flegal, K.M. (2006). Prevalence of overweight and obesity in the United States, 1999-2004. Journal of the American Medical Association, 295(13), 1549-1555. Ottawa Charter for Health Promotion. (1986). First International Conference on Health Promotion. Presented on November 21. Available: http://www.who.int/hpr/NPH/docs/ ottawa_charter_hp.pdf [accessed June 2008]. Peeters, A., Beckers, S., Verrijken, A., Roevens, P., Peeters, P., Van Gaal, L., and Van Hul, W. (2007). Variants in the FTO gene are associated with common obesity in the Belgian population. Molecular Genetics and Metabolism, 93(4), 481-484. Seymour, H., Roeper, T., and de Villiers, J. (2003a). The DELV-CT (criterion-referenced ver- sion). The diagnostic evaluation of language variation. San Antonio, TX: The Psycho- logical Corporation. Seymour, H., Roeper, T., and de Villiers, J. (2003b). The DELV-SC (screener). The iagnostic d evaluation of language variation. San Antonio, TX: The Psychological Corporation. Shalowitz, D.I., and Miller, F.G. (2005). Disclosing individual results of clinical research ap- plications of respect for participants. Journal of the American Medical Association, 294, 737-740. Sharpe, N.F. (1999). The duty to recontact: Benefit and harm. American Journal of Human Genetics, 65(4), 1201-1204. Singer, E. (2005). Access to research data: Reconciling risks and benefits. Journal of Law and Policy, 14(1), 85-114. Skelton, J.A., DeMattia, L., Miller, L., and Olivier, M. (2006). Obesity and its therapy: From genes to community action. Pediatric Clinics of North America, 53(4), 777-794. Stein, R.E., Bauman, L.J., Westbrook, L.E., Coupey, S.M., and Ireys, H.T. (1993). Framework for identifying children who have chronic conditions: The case for a new definition. Journal of Pediatrics, 122, 342-347. Tanner, J.M. (1962). Growth at adolescence. Oxford, England: Blackwell Scientific. Thompson, R.J., and Gustafson, K.E. (1999). Adaptation to chronic childhood illness. Wash- ington, DC: American Psychological Association. Tibshirani, R. (1996). Regression shrinkage and selection via the Lasso. Journal of the Royal Statistical Society B, 58, 267-288. Toledano, M.B., and Nelson, P.D. (2007). Male fertility-related disorders: Cause for concern or a stalking horse. Archives of Disease in Childhood, 92, 565-567. Vohr, B.R., Wright, L.L., Dusick, A.M., Perritt, W.K., Tyson, J.E., Steichen, J.J., Bauer, C.R., Wilson-Costello, D.E., and Mayes, L.C. (2004). Center differences and outcomes of extremely low birth weight infants. Pediatrics, 113, 781-789. World Health Organization. (1946). Preamble to the Constitution of the World Health Or- ganization as adopted by the International Health Conference. New York, June. Signed on 22 July 1946 by representatives of 61 states (Official Records of the World Health Organization, no. 2, p.100) and entered into force on 7 April 1946. World Health Organization. (2001). International classification of functioning, disability and health (ICF). Available: http://www.who.int/classifications/icf/en/ [accessed October 5, 2007].

Next: Biographical Sketches of Panel Members »
The National Children's Study Research Plan: A Review Get This Book
×
Buy Paperback | $53.00 Buy Ebook | $42.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

The National Children's Study (NCS) is planned to be the largest long-term study of environmental and genetic effects on children's health ever conducted in the United States. It proposes to examine the effects of environmental influences on the health and development of approximately 100,000 children across the United States, following them from before birth until age 21. By archiving all of the data collected, the NCS is intended to provide a valuable resource for analyses conducted many years into the future.

This book evaluates the research plan for the NCS, by assessing the scientific rigor of the study and the extent to which it is being carried out with methods, measures, and collection of data and specimens to maximize the scientific yield of the study.

The book concludes that if the NCS is conducted as proposed, the database derived from the study should be valuable for investigating hypotheses described in the research plan as well as additional hypotheses that will evolve. Nevertheless, there are important weaknesses and shortcomings in the research plan that diminish the study's expected value below what it might be.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  6. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  7. ×

    View our suggested citation for this chapter.

    « Back Next »
  8. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!