to Drive Shared Decisions,
Roundtable on Value & Science-Driven Health Care
INSTITUTE OF MEDICINE
OF THE NATIONAL ACADEMIES
THE NATIONAL ACADEMIES PRESS
THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001
NOTICE: The workshop that is the subject of these workshop proceedings was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine.
This activity was supported by Grant No. 3463 between the National Academy of Sciences and the Gordon and Betty Moore Foundation and Grant No. 7781311 between the National Academy of Sciences and the Blue Shield of California Foundation. The views presented in this publication do not necessarily reflect the views of the organizations or agencies that provided support for the activity.
International Standard Book Number-13: 978-0-309-28896-5
International Standard Book Number-10: 0-309-28896-7
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Suggested citation: IOM (Institute of Medicine). 2014. Partnering with patients to drive shared decisions, better value, and care improvement: Workshop proceedings. Washington, DC: The National Academies Press.
THE NATIONAL ACADEMIES
Advisers to the Nation on Science, Engineering, and Medicine
The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences.
The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the Ntional Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. C. D. Mote, Jr., is president of the National Academy of Engineering.
The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine.
The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. C. D. Mote, Jr., are chair and vice chair, respectively, of the National Research Council.
PLANNING COMMITTEE ON PARTNERING WITH PATIENTS TO DRIVE SHARED DECISIONS, BETTER VALUE, AND CARE IMPROVEMENT1
CHRISTINE BECHTEL (Chair), Advisor and Former Vice President, National Partnership for Women & Families
TERRY ADIRIM, Director, Office of Special Health Affairs, Health Resources and Services Administration
LEAH BINDER, Chief Executive Officer, The Leapfrog Group
VERONICA GOFF, Vice President, Institute on Health Care Costs and Solutions, National Business Group on Health (formerly)
MARK GORMAN, Patient Advocate, Former Director of Survivorship Policy, National Coalition for Cancer Survivorship
PAUL GRUNDY, Global Director of Healthcare Transformation, IBM
ART LEVIN, Director, Center for Medical Consumers
JIM MANGIA, President and Chief Executive Officer, St. John’s Well Child & Family Center
LYN PAGET, Managing Partner, Health Policy Partners
ERIC RACINE, Vice President, Advocacy, Sanofi U.S.
SUSAN C. REINHARD, Director, Public Policy Institute, AARP
CRAIG ROBBINS, Medical Director, Clinical Guidelines (KP Colorado), Kaiser Permanente
JOHN SANTA, Director, Consumer Reports Health Ratings Center, Consumers Union
SUSAN SHERIDAN, Deputy Director, Patient Engagement, Patient-Centered Outcomes Research Institute
SUSAN BROWN TRINIDAD, Research Scientist, University of Washington
KATE BURNS, Program Assistant (from July 2013)
CLAUDIA GROSSMANN, Senior Program Officer
DIEDTRA HENDERSON, Program Officer (from March 2013)
ELIZABETH JOHNSTON, Program Assistant
VALERIE ROHRBACH, Senior Program Assistant
JULIA SANDERS, Senior Program Assistant (through August 2013)
ROBERT SAUNDERS, Senior Program Officer
LEIGH STUCKHARDT, Research Associate (through January 2013)
ISABELLE VON KOHORN, Program Officer (through September 2012)
BARRET ZIMMERMANN, Program Assistant (through October 2013)
J. MICHAEL MCGINNIS, Senior Scholar, Executive Director, Roundtable on Value & Science-Driven Health Care
1 Institute of Medicine planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop proceedings rests with the institution.
ROUNDTABLE ON VALUE & SCIENCE-DRIVEN HEALTH CARE1
MARK B. MCCLELLAN (Chair), Director, Engelberg Center, The Brookings Institution
DAVID BLUMENTHAL, President, The Commonwealth Fund
BRUCE G. BODAKEN, Former Chairman and Chief Executive Officer, Blue Shield of California
PAUL CHEW, Chief Science Officer and Chief Medical Officer, Sanofi U.S.
CAROLYN M. CLANCY, Director, Agency for Health Care Research and Quality (Ex Officio)
FRANCIS COLLINS, Director, National Institutes of Health (Ex Officio) (designee: Susan Shurin)
HELEN DARLING, President, National Business Group on Health
SUSAN DEVORE, Chief Executive Officer, Premier, Inc.
JUDITH FAULKNER, Founder and Chief Executive Officer, Epic Health Systems
THOMAS R. FRIEDEN, Director, Centers for Disease Control and Prevention (Ex Officio) (designee: Gail Janes)
PATRICIA A. GABOW, Former Chief Executive Officer, Denver Health
ATUL GAWANDE, General and Endocrine Surgeon, Brigham and Women’s Hospital
GARY L. GOTTLIEB, President and Chief Executive Officer, Partners HealthCare System
JAMES A. GUEST, President and Chief Executive Officer, Consumers Union
GEORGE C. HALVORSON, Chairman and Chief Executive Officer, Kaiser Permanente
MARGARET A. HAMBURG, Commissioner, Food and Drug Administration (Ex Officio) (designee: Peter Lurie)
JAMES HEYWOOD, Co-Founder and Chairman, PatientsLikeMe
RALPH I. HORWITZ, Senior Vice President, Clinical Evaluation Sciences, GlaxoSmithKline
PAUL HUDSON, Executive Vice President, AstraZeneca
BRENT C. JAMES, Chief Quality Officer, Intermountain Healthcare
MICHAEL M. E. JOHNS, Chancellor, Emory University
CRAIG JONES, Director, Vermont Blueprint for Health
GARY KAPLAN, Chairman and Chief Executive Officer, Virginia Mason Health System
DARRELL G. KIRCH, President and Chief Executive Officer, AAMC
RICHARD C. LARSON, Mitsui Professor, Massachusetts Institute of Technology
JAMES L. MADARA, Chief Executive Officer, American Medical Association
MARY D. NAYLOR, Director, NewCourtland Center, University of Pennsylvania
FARZAD MOSTASHARI, National Coordinator, Office of the National Coordinator for Health Information Technology (Ex Officio)
WILLIAM D. NOVELLI, Former Chief Executive Officer, AARP; Professor, Georgetown University
SAM R. NUSSBAUM, Chief Medical Officer, WellPoint, Inc.
JONATHAN B. PERLIN, Chief Medical Officer, HCA, Inc.
ROBERT A. PETZEL, Under Secretary for Health, Department of Veterans Affairs (Ex Officio)
RICHARD PLATT, Chair, Population Medicine, Harvard Medical School
JOHN W. ROWE, Former Chairman and Chief Executive Officer, Aetna; Professor, Columbia University
1Institute of Medicine forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published workshop summary rests with the institution.
JOE V. SELBY, Executive Director, Patient-Centered Outcomes Research Institute
MARK D. SMITH, President and Chief Executive Officer, California HealthCare Foundation
GLENN D. STEELE, President and Chief Executive Officer, Geisinger Health System
MARILYN TAVENNER, Administrator, Centers for Medicare & Medicaid Services (Ex Officio) (designee: Patrick Conway)
REED V. TUCKSON, Former Executive Vice President, UnitedHealth Group; Managing Director, Tuckson Health
MARY WAKEFIELD, Administrator, Health Resources and Services Administration (Ex Officio)
DEBRA B. WHITMAN, Executive Vice President, Policy and International, AARP
JONATHAN WOODSON, Assistant Secretary for Health Affairs, Department of Defense (Ex Officio)