Appendix B
List of Registrants
Jacob Adetunji
U.S. Agency for International Development
Aimee Alexander
Centers for Disease Control and Prevention
Laura Amendola
University of Washington
Yutaka Aoki
National Center for Health Statistics
John Aquino
Bloomberg BNA
Christine Benally
Indian Health Service
Adam Berger
Institute of Medicine
Benjamin Berkman
National Human Genome Research Institute
Lew Berman
ICF International
Laura Beskow
Duke University
Barbara Biesecker
National Human Genome Research Institute
Leslie G. Biesecker (Steering Committee)
National Human Genome Research Institute
Marianna Bledsoe
George Washington University School of Medicine and Health Sciences
Stephen Blumberg
National Center for Health Statistics
Jeffrey Botkin (Steering Committee)
University of Utah
Wylie Burke (Steering Committee Chair)
University of Washington
Charlisse Caga-Anan
National Cancer Institute
Virginia Cain
National Center for Health Statistics
Charlotte Carlson
University of Michigan
Heather Carroll
Social & Scientific Systems, Inc.
Sarah Carter
J. Craig Venter Institute
Kee Chan
Boston University
Danyang Chen
Pennsylvania Department of Health
Mildred Cho (Steering Committee)
Stanford University School of Medicine
Yoonjoung Choi
U.S. Agency for International Development
Winnie Chung
Centers for Disease Control and Prevention
Constance Citro
CNSTAT, National Research Council
Ellen Wright Clayton (Steering Committee)
Vanderbilt University
Nancy Conrad
Conrad Foundation
Elizabeth Cooksey
Ohio State University
Deborah Cool
Medical student
Dana Crawford
Vanderbilt University
Lauren Creamer
National Center for Health Statistics
Eileen M. Crimmins (Steering Committee)
University of Southern California
Carla Cuthbert
Centers for Disease Control and Prevention
Daniel Day
Avalere Health
Nancy Dole
University of North Carolina at Chapel Hill
Nicole Dowling
National Center on Birth Defects and Developmental Disabilities
Jennifer Dreyfus
Dreyfus Consulting LLC
Aaliyah Eaves-Leanos
Food and Drug Administration
Kelly Edwards
University of Washington
Anna Ettinger
National Children’s Study
Altovise Ewing
Johns Hopkins Center to Reduce Cancer Disparities
Margaret Farrell
National Cancer Institute
Colleen Gallagher
MD Anderson Cancer Center
Rosella Gardecki
CHRR at Ohio State University
John Gardenier
Retired (formerly National Center for Health Statistics)
Turkan Gardenier
Pragmatica Corp.
Jeremy Garrett
Children’s Mercy Bioethics Center
Nina Gold
Harvard Medical School
John Greco
Marisa Greenberg
Pennsylvania State University
Hermann Habermann
National Research Council
Carolyn Halpern
University of North Carolina at Chapel Hill
Tina Hambuch
Illumina Clinical Services Laboratory
Melissa Hamilton
Virginia Department of Health
Jennifer Harris
Norwegian Institute of Public Health
Sumaira Hassan
Dow University of Health Sciences
Barrie Hayes
University of North Carolina at Chapel Hill
Robert Hauser
DBASSE, National Research Council
Jeannine Helm
National Institute of Dental and Craniofacial Research/National Institutes of Health
Ingrid Holm
Boston Children’s Hospital
Juell Homco
University of Oklahoma
Julie Hunter
IBM
Galina Inzhakova
Kaiser Permanente
Chazeman Jackson
Office of Minority Health, Department of Health and Human Services
Gail Jarvik
University of Washington
Steven Joffe
University of Pennsylvania
Sharon Kardia
University of Michigan
Dave Kaufman
Johns Hopkins University
Eimear Kenny
Icahn School of Medicine at Mount Sinai
Muin Khoury
Centers for Disease Control and Prevention
Sangmi Kim
Georgia Regents University
Corinna Koebnick
Kaiser Permanente
Steven Kornblau
University of Texas MD Anderson Cancer Center
Ellen Kramarow
National Center for Health Statistics
David Lacher
National Center for Health Statistics
Liz Langlois
Tulane University
Mariana Lazo
Johns Hopkins University
Marie Leahy
National Center for Health Statistics
Jung Lee
Genesis Strategic Solutions, Inc.
Johanne Levesque
Statistics Canada
Rongling Li
National Human Genome Research Institute
Neranga Liyanaarachchi
Postgraduate Institute of Medicine, Colombo
Nicole Lockhart
National Human Genome Research Institute
Amy Lossie
National Institutes of Health
Susan Lukacs
National Center for Health Statistics
Andrea Mackay
National Center for Health Statistics
Jennifer Madans
National Center for Health Statistics
Jennifer Malinowski
Vanderbilt University
Cathy McCarty
Essentia Institute of Rural Health
Martha McClintock
University of Chicago
Jean McEwen
National Human Genome Research Institute
Jenna McGwin
American Psychological Association
Scott Mclean
Statistics Canada
Geraldine McQuillan
National Center for Health Statistics
Lori Merrill
Westat
Danielle Metterville
Partners Center for Personalized Genetic Medicine
Julia Milton
Consortium of Social Science Associations
John Moye
National Children’s Study
Mugo Muita
United Nations High Commissioner for Refugees
Edgar Munoz
University of Texas Health Science Center
Carolyn Neal
National Center for Health Statistics
F. Javier Nieto
University of Wisconsin–Madison
Miki Nguyen
Kaiser Permanente Southern California
Sangeeta Panicker
American Psychological Association
Roxanne Parrott
Pennsylvania State University
Donald Patrick
University of Washington
Kathryn Porter
National Center for Health Statistics
Tabitha Powledge
Science writer and editor
Sandra Prucka
Eli Lilly and Company
Susan Queen
Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services
Kate Reed
The Jackson Laboratory
Teresa Rhodes
ALI
Henry Richardson
Georgetown University
Jeanne Rivard
National Research Council
Victor Rosa
PC
Gabriel Rosenfeld
National Cancer Institute
Lainie Ross
University of Chicago
Paul Scanlon
National Center for Health Statistics
Sheri Schully
National Cancer Institute
Murat Sincan
National Human Genome Research Institute
Julia Slutsman
National Institute of Child Health & Human Development
Teresa Solomon
The Rockefeller University
Edward Sondik
National Center for Health Statistics (retired)
James Sorace
Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services
Colleen Spees
Ohio State University
Erica Spotts
National Institutes of Health
Sylvia Trujillo
American Medical Association
Alicia Vargas
DC Cancer Registry, Department of Health
Christine Vaupel
Genoptix Medical Laboratory
Caer Rohrer Vitek
Mayo Clinic
Berna Watson
California Department of Public Health
Carol Weil
National Cancer Institute
David Weir
University of Michigan
Karen Whitaker
National Center for Health Statistics
Marc Williams
Geisinger Genomic Medicine Institute
Saba Wolday
Howard University
Susan Wolf
University of Minnesota–Minneapolis
Joseph Woodring
Centers for Disease Control and Prevention
Amber Worthington
Pennsylvania State University
Melanie Young
Environmental Protection Agency
Nicholas Zill
Independent psychologist
Oliver Zill
University of California, San Francisco
Shonia Zollicoffer
Centers for Disease Control and Prevention
