Name, Website, and Sponsor | Description | Method of Data Collection |
Autism and Developmental Disabilities Monitoring (ADDM) Network http://www.cdc.gov/ncbddd/autism/addm.html Sponsor: Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities |
The ADDM Network is a group of CDC-funded programs that determine the prevalence of autism spectrum disorders (ASDs) in U.S. communities. ADDM sites collect data using the same surveillance methods, which are modeled after the CDC Metropolitan Atlanta Developmental Disabilities Surveillance Program. | Screening and abstraction of existing health and education records containing professional assessments of the children’s developmental progress at health care or education facilities |
Survey Topics Related to Children | Mental Health Topics and Questions Related to Children | Populations and Periodicity |
Child demographic characteristics, including sex, race/ethnicity, and year of birth Previous diagnoses of intellectual disability and cerebral palsy Use of special education services Previous and current special education exceptionality (eligibility) classification Results from standardized developmental assessments (such as IQ) |
Previous diagnosis of ASD Clinical features, symptoms, and behaviors associated with ASD, intellectual disability, or cerebral palsy Age of child when first symptoms noted and at first diagnosis of ASD, intellectual disability, or cerebral palsy Other developmental and mental disorders that occur with ASD, intellectual disability, and cerebral palsy (e.g., attention deficit hyperactivity disorder [ADHD]) |
Selected sample based on grantees. Fourteen ADDM Network sites for 2008. Children aged 8 years with evidence documented in abstracted evaluations indicating the presence of autistic disorder; pervasive developmental disorder, not otherwise specified; or Asperger’s disorder. Biennial (even years): 2000, 2002, 2004, 2006, and 2008. |
Name, Website, and Sponsor | Description | Method of Data Collection |
National Health and Nutrition Examination Survey (NHANES) http://www.cdc.gov/nchs/nhanes.htm Sponsor: CDC National Center for Health Statistics |
NHANES is designed to assess the health and nutritional status of adults and children in the United States. The survey combines interviews and physical examinations. |
In-person household interviews Nutritional assessments Laboratory tests Physical examinations DNA repository |
Survey Topics Related to Children | Mental Health Topics and Questions Related to Children | Populations and Periodicity |
Health care use Mental, behavioral, and emotional problems of children Numerous diseases, medical conditions, and health indicators |
Age/topic/method/dates: 12+/Depression screener/ (CAPI)/2005, 2006 12–19/Conduct disorders/ (ACASI)/1999 on 8–19/Depression/ (CDISC)/2000–2004 8–15/ADHD/(parent CDISC)/2000–2004 8–15/Conduct disorders/(parent CDISC)/2000–2004 8–15/Depression/(parent CDISC)/2000–2004 No data yet published. Use of mental health care services Activity limitations because of poor physical or mental health Mental disorder diagnosis using the National Institute of Mental Health Diagnostic Interview Schedule for Children (1999–2004: generalized anxiety disorder and panic disorder; 2000–2004: eating disorders, elimination disorders, major depression/dysthymic disorder, ADHD, and conduct disorder); ages 8–15 years, varying by module Depression screener (PHQ-9; since 2005) Mentally unhealthy days (since 2001) |
Nationally representative sample. 5,000 people per year, including approximately 1,000 persons aged 12–19 years. Oversampling, which changes periodically; in 2011–2012 and 2013–2014, oversample of Hispanics, blacks, Asians, and older adults. |
Name, Website, and Sponsor | Description | Method of Data Collection |
National Survey of Children’s Health (NSCH) http://www.cdc.gov/nchs/slaits/nsch.htm Sponsor: Health Resources and Services Administration Administrator: CDC National Center for Health Statistics |
NSCH examines the physical and emotional health of children aged 0–17 years, emphasizing factors that might relate to the well-being of children. | Telephone interviews, with National Immunization Survey sampling frame |
Survey Topics Related to Children | Mental Health Topics and Questions Related to Children | Populations and Periodicity |
Physical, emotional, and dental health Children with special health care needs Health care access, use, and barriers |
Questions asked for ADHD, depression, anxiety, oppositional defiant disorder, behavioral or conduct problems, autism, developmental delay, Tourette syndrome: Has a doctor or other health care provider ever told you that selected child (SC) had…? Does SC currently have…? Would you describe his/her … as mild, moderate, or severe? In case of ADHD, a fourth question is asked: Is SC currently taking medication for ADD or ADHD? Results not yet published. Activity, social, or learning limitation resulting from mental, emotional, or behavior problems Common acute and chronic conditions (including learning disability, ADHD, depression, anxiety, behavior and conduct disorders, ASD, Tourette syndrome, and epilepsy) Social behavior, emotional difficulties, and school engagement Mental health care treatment and services used |
Representative sample nationally and within each state of households with children. Data collected from responsible adult by telephone. Approximately 95,000 children aged ≤17 years. Periodic: data collected approximately every 4 years and currently available for 2003, 2007, and 2011–2012. |
Name, Website, and Sponsor | Description | Method of Data Collection |
National Survey on Drug Use and Health (NSDUH) Sponsor: Substance Abuse and Mental Health Services Administration |
NSDUH data are used to provide national and state-level estimates on the use of tobacco products, alcohol, illicit drugs (including nonmedical use of prescription drugs), and mental illness in the United States | In-person household interviews |
Survey Topics Related to Children | Mental Health Topics and Questions Related to Children | Populations and Periodicity |
Health conditions Health care use |
Designed to produce drug and alcohol use incidence and prevalence estimates and report the consequences and patterns of use and abuse in the general U.S. civilian population ages 12 and older. Since 1994, questions added on mental health and access to care. Treatment for youth ages 12–17 is defined as receiving treatment or counseling for problems with behaviors or emotions from specific mental health or other health professionals in school, home, or from other outpatient or inpatient settings in the past year A module on lifetime and past year prevalence of major depressive episode (MDE), severity of the MDE as measured by role impairments, and treatment for depression was administered to adults ages 18 or older and youth ages 12–17, from 2004 to 2006; 8.5 percent of youth had an episode of MDE in the past 12 months (see http://oas.samhsa.gov/2k8/youthDepress/youthDepress.pdf) Lifetime and past year major depressive episode Level of impairment resulting from major depressive disorder, substance use, and substance use disorder Mental health service use |
State and nationally representative sample. 7,200 primary sampling units each year and approximately 70,000 respondents aged ≥12 years, including 23,000 aged 12–17 years and 23,000 aged 18–25 years. Annual and continuous since 1992. Data includes 397 Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) diagnoses. |
Name, Website, and Sponsor | Description | Method of Data Collection |
National Comorbidity Survey-Adolescent Supplement (NCS-A) |
National psychiatric epidemiologic survey of adolescents ages 3–17 | Adolescent interviews and information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent’s mental health and its correlates |
REFERENCES
Merikangas, K. R., S. Avenevoli, E. J. Costello, D. Koretz, and R. C. Kessler. 2009. National comorbidity survey replication adolescent supplement (NCS-A): I. Background and measures. Journal of the American Academy of Child & Adolescent Psychiatry 48(4):367–379.
Perou, R., R. H. Bitsko, S. J. Blumberg, P. Pastor, R. M. Ghandour, J. C. Gfroerer, S. L. Hedden, A. E. Crosby, S. N. Visser, L. A. Schieve, S. E. Parks, J. E. Hall, D. Brody, C. Simile, W. W. Thompson, J. Baio, S. Avenevoli, M. D. Kogan, and L. N. Huang. 2013. Mental health surveillance among children—United States, 2005–2011. Morbidity and Mortality Weekly Report 62(2):1–35.
Survey Topics Related to Children | Mental Health Topics and Questions Related to Children | Populations and Periodicity |
Lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders: anxiety disorders, mood disorders, behavior disorders, substance disorders Identify risk and protective factors for the onset and persistence of these disorders Describe patterns and correlates of service use for these disorders |
Survey of 10,148 adolescents. | |
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