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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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HEALTH LITERACY

AND CONSUMER-FACING
TECHNOLOGY

WORKSHOP SUMMARY

Joe Alper, Rapporteur

Roundtable on Health Literacy

Board on Population Health and Public Health Practice

Institute of Medicine

images

THE NATIONAL ACADEMIES PRESS

Washington, D.C.

www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

THE NATIONAL ACADEMIES PRESS     500 Fifth Street, NW     Washington, DC 20001

This activity was supported by contracts between the National Academy of Sciences and the Aetna Foundation; the Agency for Healthcare Research and Quality (HHSP233200900537P); Bristol-Myers Squibb; California Dental Association; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Health Resources and Services Administration (HHSH25034004T); Humana; Institute for Healthcare Advancement; Merck & Co., Inc.; National Institutes of Health; North Shore–Long Island Jewish Health System; Office of Disease Prevention and Health Promotion; and UnitedHealth Group. The views presented in this publication do not necessarily reflect the views of the organizations or agencies that provided support for the activity.

International Standard Book Number-13: 978-0-309-37690-7
International Standard Book Number-10: 0-309-37690-4
DOI: 10.17226/21781

Additional copies of this workshop summary are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.

Copyright 2015 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America

Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2015. Health literacy and consumer-facing technology: Workshop summary. Washington, DC: The National Academies Press.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

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The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Ralph J. Cicerone is president.

The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. C. D. Mote, Jr., is president.

The National Academy of Medicine (formerly the Institute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers for distinguished contributions to medicine and health. Dr. Victor J. Dzau is president.

The three Academies work together as the National Academies of Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The Academies also encourage education and research, recognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine.

Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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PLANNING COMMITTEE ON HEALTH LITERACY
AND CONSUMER-FACING TECHNOLOGY1

SUZANNE BAKKEN, Alumni Professor of Nursing and Professor of Biomedical Informatics, Columbia University School of Nursing

GILLIAN CHRISTIE, Health Innovation Analyst, The Vitality Institute

GARTH GRAHAM, President, Aetna Foundation

LINDA HARRIS, Division Director, Health Communication and eHealth Team, U.S. Department of Health and Human Services

PAMELA JEFFRIES, Vice Provost for Digital Initiatives, Johns Hopkins University

ANDREW PLEASANT, Senior Director for Health Literacy and Research, Canyon Ranch Institute

TED VICKEY, Founder and President, FitWell, Inc.

_______________

1 Institute of Medicine planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop summary rests with the workshop rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

ROUNDTABLE ON HEALTH LITERACY1

BERNARD ROSOF (Chair), Chief Executive Officer, Quality in Healthcare Advisory Group, LLC

MARIN P. ALLEN, Deputy Associate Director for Communications and Public Liaison and Director of Public Information, National Institutes of Health

WILMA ALVARADO-LITTLE, Principal and Founder, Alvarado-Little Consulting, LLC

SUZANNE BAKKEN, Alumni Professor of Nursing and Professor of Biomedical Informatics, Columbia University

CINDY BRACH, Senior Health Policy Researcher, Agency for Healthcare Research and Quality

GEM DAUS, Public Health Analyst, Health Resources and Services Administration

TERRY DAVIS, Professor of Medicine and Pediatrics, Louisiana State University Health Sciences Center

CHRISTOPHER DEZII, Director, Healthcare Quality and Performance Measures, Bristol-Myers Squibb Company

JENNIFER DILLAHA, Medical Director for Immunizations, Medical Advisor, Health Literacy and Communication, Arkansas Department of Health

ALICIA FERNANDEZ, Professor of Clinical Medicine, University of California, San Francisco

LAURIE FRANCIS, Senior Director of Clinic Operations and Quality, Oregon Primary Care Association

GARTH GRAHAM, President, Aetna Founation

LORI HALL, Consultant, Health Education, Eli Lilly and Company

LINDA HARRIS, Division Director, Health Communication and eHealth Team, U.S. Department of Health and Human Services

BETSY L. HUMPHREYS, Deputy Director, National Library of Medicine

MARGARET LOVELAND, Senior Director, Global Medical Affairs, Merck & Co.

LAURIE MYERS, Leader of Health Literacy Strategy, Merck & Co.

CATINA O’LEARY, President and Chief Executive Officer, Health Literacy Missouri

MICHAEL PAASCHE-ORLOW, Associate Professor of Medicine, Boston University School of Medicine

_______________

1 Institute of Medicine forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published workshop summary rests with the workshop rapporteur and the institution.

Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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TERRI ANN PARNELL, Principal and Founder, Health Literacy Partners, LLC

KIM PARSON, Strategic Consultant, Proactive Care Strategies, Humana

KAVITA PATEL, Managing Director for Clinical Transformation and Delivery, The Brookings Institute

ANDREW PLEASANT, Senior Director for Health Literacy and Research, Canyon Ranch Institute

LINDSEY A. ROBINSON, Thirteenth District Trustee, American Dental Association

STACEY ROSEN, Associate Professor of Cardiology and Vice President, Women’s Health, The Katz Institute for Women’s Health, Hofstra North Shore–Long Island Jewish School of Medicine

RIMA RUDD, Senior Lecturer on Health Literacy, Education, and Policy, Harvard School of Public Health

STEVEN RUSH, Director, Health Literacy Innovations, UnitedHealth Group

PAUL M. SCHYVE, Senior Advisor, Healthcare Improvement, The Joint Commission

MICHAEL VILLAIRE, Chief Executive Officer, Institute for Healthcare Advancement

EARNESTINE WILLIS, Kellner Professor in Pediatrics, Medical College of Wisconsin

MICHAEL WOLF, Professor, Medicine and Learning Sciences, Associate Division Chief–Research Division of General Internal Medicine, Feinberg School of Medicine, Northwestern University

WINSTON WONG, Medical Director, Community Benefit, Disparities Improvement and Quality Initiatives, Kaiser Permanente

Consultant

RUTH PARKER, Professor of Medicine, Pediatrics, and Public Health, Emory University School of Medicine

IOM Staff

LYLA M. HERNANDEZ, Senior Program Officer

MELISSA FRENCH, Associate Program Officer

ANDREW LEMERISE, Research Associate

ANGELA MARTIN, Senior Program Assistant (through April 3, 2015)

EMILY VOLLBRECHT, Senior Program Assistant (April 6, 2015, to present)

ROSE MARIE MARTINEZ, Director, Board on Population Health and Public Health Practice

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

Reviewers

This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published workshop summary as sound as possible and to ensure that the workshop summary meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this workshop summary:

MATT KREUTER, The Brown School, Washington University in St. Louis

SYDNEE LOGAN, U.S. Food and Drug Administration

JOSUHA SEIDMAN, Avalere Health

DAVID C. TORRES, MAXIMUS

Although the reviewers listed above have provided many constructive comments and suggestions, they did not see the final draft of the workshop summary before its release. The review of this workshop summary was overseen by Ned Calogne, The Colorado Trust. He was responsible for making certain that an independent examination of this workshop summary was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this workshop summary rests entirely with the rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

Acknowledgments

We are grateful to the sponsors of the Institute of Medicine Roundtable on Health Literacy who made it possible to plan and conduct the workshop on health literacy and consumer-facing technology, which this report summarizes. Sponsors from the U.S. Department of Health and Human Services are the Agency for Healthcare Research and Quality, Health Resources and Services Administration, National Institutes of Health, and Office of Disease Prevention and Health Promotion. Non-federal sponsorship was provided by the Aetna Foundation; Bristol-Myers Squibb; California Dental Association; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Humana; Institute for Healthcare Advancement; Merck & Co., Inc.; North Shore–Long Island Jewish Health System; and UnitedHealth Group.

The workshop presentations were extremely interesting and stimulating and we would like to thank each of the speakers for their time and effort. Speakers are Patricia Dykes, Read Holman, Dean Hovey, Elizabeth Jordan, Katherine Kim, Alex Krist, Lana Moriarty, Catina O’Leary, Alison Rein, Lygeia Ricciardi, Rebecca Schnall, and Winston Wong. Thanks also go to the excellent moderators Suzanne Bakken, Pamela Jeffries, and Bernard Rosof.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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Acronyms and Abbreviations

ACP American College of Physicians
AHRQ Agency for Healthcare Research and Quality
CDC Centers for Disease Control and Prevention
CHIP Children’s Health Insurance Program
EHR electronic health record
FDA U.S. Food and Drug Administration
FERPA Family Educational Rights and Privacy Act
GPS global positioning system
HHS U.S. Department of Health and Human Services
HIPAA Health Insurance Portability and Accountability Act
HITECH Health Information Technology for Economic and Clinical Health
HRSA Health Resources and Services Administration
IDEA Innovation, Design, Entrepreneurship and Action Lab
IOM Institute of Medicine
LIJ Long Island Jewish
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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NCAI National Congress of American Indians
NCI National Cancer Institute
NIH National Institutes of Health
NLM National Library of Medicine
ONC Office of the National Coordinator for Health Information Technology
PCORI Patient-Centered Outcomes Research Institute
PROSPECT Promoting Respect and Ongoing Safety through Patient-centeredness, Engagement, Communication, and Technology
WIC Special Supplemental Nutrition Program for Women, Infants, and Children
USPSTF U.S. Preventive Services Task Force
VA U.S. Department of Veterans Affairs
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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The proliferation of consumer-facing technology and personal health information technology has grown steadily over the past decade, and has certainly exploded over the past several years. Many people have embraced smartphones and wearable health-monitoring devices to track their fitness and personal health information. Providers have made it easier for patients and caregivers to access health records and communicate through online patient portals. However, the large volume of health-related information that these devices can generate and input into a health record can also lead to an increased amount of confusion on the part of users and caregivers.

The Institute of Medicine convened a workshop to explore health literate practices in health information technology and then provide and consider the ramifications of this rapidly growing field on the health literacy of users. Health Literacy and Consumer-Facing Technology summarizes the discussions and presentations from this workshop, highlighting the lessons presented, practical strategies, and the needs and opportunities for improving health literacy in consumer-facing technology.

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