MEASURING
SERIOUS EMOTIONAL
DISTURBANCE
IN CHILDREN
WORKSHOP SUMMARY
Krisztina Marton, Rapporteur
Committee on National Statistics and
Board on Behavioral, Cognitive, and Sensory Sciences,
Division of Behavioral and Social Sciences and Education
and
Board on Health Sciences Policy, Institute of Medicine
THE NATIONAL ACADEMIES PRESS
Washington, DC
THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001
This activity was supported by Contract No. HHSP233201400020B/HHSP23337002 between the National Academy of Sciences and the U.S. Department of Health and Human Services. Support of the work of the Committee on National Statistics is provided by a consortium of federal agencies through a grant from the National Science Foundation (No. SES-1024012). Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of the organization or agency that provided support for the project.
International Standard Book Number-13: 978-0-309-38818-9
International Standard Book Number-10: 0-309-38818-X
DOI: 10.17226/21865
Additional copies of this report are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.
Copyright 2016 by the National Academy of Sciences. All rights reserved.
Printed in the United States of America
Suggested citation: National Academies of Sciences, Engineering, and Medicine. (2016). Measuring Serious Emotional Disturbance in Children: Workshop Summary. K. Marton, Rapporteur. Committee on National Statistics and Board on Behavioral, Cognitive, and Sensory Sciences, Division of Behavioral and Social Sciences and Education. Board on Health Sciences Policy, Institute of Medicine. Washington, DC: The National Academies Press.
The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Ralph J. Cicerone is president.
The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. C. D. Mote, Jr., is president.
The National Academy of Medicine (formerly the Institute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers for distinguished contributions to medicine and health. Dr. Victor J. Dzau is president.
The three Academies work together as the National Academies of Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The Academies also encourage education and research, recognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine.
Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org.
This page intentionally left blank.
STEERING COMMITTEE FOR THE WORKSHOP
ON INTEGRATING NEW MEASURES OF SERIOUS
EMOTIONAL DISTURBANCE IN CHILDREN INTO
THE SUBSTANCE ABUSE AND MENTAL HEALTH
ADMINISTRATION’S DATA COLLECTION PROGRAMS
KATHLEEN RIES MERIKANGAS (Chair), National Institute of Mental Health, U.S. Department of Health and Human Services
GLORISA CANINO, School of Medicine, University of Puerto Rico
MICHAEL DAVERN, NORC at the University of Chicago
GRAHAM KALTON, Westat, Rockville, MD
KRISZTINA MARTON, Study Director
JEANNE RIVARD, Senior Program Officer
MICHAEL SIRI, Program Associate
COMMITTEE ON NATIONAL STATISTICS
LAWRENCE D. BROWN (Chair), Department of Statistics, Wharton School, University of Pennsylvania
JOHN M. ABOWD, School of Industrial and Labor Relations, Cornell University
MARY ELLEN BOCK, Department of Statistics, Purdue University
DAVID CARD, Department of Economics, University of California, Berkeley
MICHAEL E. CHERNEW, Department of Health Care Policy, Harvard Medical School
DON A. DILLMAN, Department of Sociology, University of Washington
CONSTANTINE GATSONIS, Center for Statistical Sciences, Brown University
JAMES S. HOUSE, Survey Research Center, Institute for Social Research, University of Michigan
MICHAEL HOUT, Department of Sociology, New York University
SALLIE KELLER, Virginia Bioinformatics Institute at Virginia Tech, Arlington, VA
LISA LYNCH, Office of the Provost, Brandeis University
THOMAS MESENBOURG, U.S. Census Bureau (retired)
SARAH NUSSER, Department of Statistics, Iowa State University
COLM O’MUIRCHEARTAIGH, Harris School of Public Policy Studies, University of Chicago
RUTH PETERSON, Criminal Justice Research Center, Ohio State University
EDWARD H. SHORTLIFFE, Departments of Biomedical Informatics, Columbia University and Arizona State University
CONSTANCE F. CITRO, Director
BRIAN HARRIS-KOJETIN, Deputy Director
BOARD ON BEHAVIORAL, COGNITIVE, AND SENSORY SCIENCE
SUSAN T. FISKE (Chair), Department of Psychology and Woodrow Wilson School of Public and International Affairs, Princeton University
LAURA L. CARSTENSEN, Department of Psychology, Stanford University
JENNIFER S. COLE, Department of Linguistics, University of Illinois at Urbana-Champaign
JUDY R. DUBNO, Department of Otolaryngology-Head and Neck Surgery, Medical University of South Carolina
ROBERT L. GOLDSTONE, Department of Psychological and Brain Sciences, Indiana University
DANIEL R. ILGEN, Department of Psychology, Michigan State University
NINA G. JABLONSKI, Department of Anthropology, Pennsylvania State University
JAMES S. JACKSON, Institute for Social Research, University of Michigan
NANCY G. KANWISHER, Department of Brain and Cognitive Sciences, Massachusetts Institute of Technology
JANICE KIECOLT-GLASER, Department of Psychology, Ohio State University College of Medicine
WILLIAM C. MAURER, School of Social Sciences, University of California, Irvine
JOHN MONAHAN, School of Law, University of Virginia
STEVEN E. PETERSEN, Department of Neurology and Neurological Surgery, Washington University School of Medicine, St. Louis
DANA M. SMALL, Department of Psychiatry, Yale University School of Medicine
TIMOTHY J. STRAUMAN, Department of Psychology and Neuroscience, Duke University
ALLAN R. WAGNER, Department of Psychology, Yale University
JEREMY M. WOLFE, Brigham and Women’s Hospital and Departments of Ophthalmology and Radiology, Harvard Medical School
BARBARA A. WANCHISEN, Director
BOARD ON HEALTH SCIENCES POLICY
JEFFREY KAHN (Chair), Department of Health Policy & Management and Berman Institute of Bioethics, Johns Hopkins University
ELI Y. ADASHI, Warren Alpert Medical School, Brown University
WYLIE BURKE, Department of Bioethics and Humanities, University of Washington
R.A. CHARO, Law School and the Department of Medical History and Bioethics, University of Wisconsin–Madison
LINDA H. CLEVER, California Pacific Medical Center, San Francisco
BARRY S. COLLER, Allen and Frances Adler Laboratory of Blood and Vascular Biology, Rockefeller University
LEWIS R. GOLDFRANK, Ronald O. Perelman Department of Emergency Medicine, New York University Langone Medical Center
BERNARD A. HARRIS, JR., Vesalius Ventures, Houston, TX
MARTHA N. HILL, Department of Community-Public Health, Johns Hopkins University School of Nursing
STEVEN E. HYMAN, Stanley Center for Psychiatric Research, Broad Institute, Cambridge, MA
ALAN M. JETTE, Department of Health Law, Policy & Management, Boston University School of Public Health
PATRICIA A. KING, Georgetown University Law Center
STORY C. LANDIS, National Institute of Neurological Disorders and Stroke, U.S. Department of Health and Human Services
HARRY T. ORR, Department of Laboratory Medicine and Pathology, University of Minnesota, Minneapolis
UMAIR A. SHAH, Harris County Public Health and Environmental Services, Houston, TX
ROBYN STONE, LeadingAge, Washington, DC
SHARON TERRY, Genetic Alliance, Washington, DC
REED V. TUCKSON, Tuckson Health Connections, LLC, Sandy Springs, GA
ANDREW M. POPE, Director
Acknowledgment of Reviewers
This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the Report Review Committee of the National Academies of Sciences, Engineering, and Medicine. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process.
We thank the following individuals for their review of this report: William Copeland, Center for Developmental Epidemiology, Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine; Susanna Visser, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention; Jerry West, Mathematica Policy Research, Washington, DC; and Alan M. Zaslavsky, Department of Health Care Policy, Harvard Medical School.
Although the reviewers listed above provided many constructive comments and suggestions, they were not asked to endorse the content of the report nor did they see the final draft of the report before its release. The review of this report was overseen by Brian Baird, president, 4Pir2 Communication, Edmonds, Washington. Appointed by the National
Academies of Sciences, Engineering, and Medicine, he was responsible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this report rests entirely with the rapporteur and the institution.
Contents
National Data on the Prevalence of Mental Disorders
The Role of Measuring Functional Impairment
Ongoing Federal Child Mental Health Surveillance Systems
Impairment Data from the Medical Expenditure Panel Survey
3 MEASUREMENT CHALLENGES FOR POPULATION SURVEYS
Advantages and Disadvantages of the Strengths and Difficulties Questionnaire
4 DESIGN AND ESTIMATION OPTIONS
Lessons from the National Survey of Children’s Health
Considerations in Multiphase Studies