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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Policy and
Research Needs to
Maximize Independence
and Support Community Living

WORKSHOP SUMMARY

Joe Alper and Sarah Domnitz, Rapporteurs

Forum on Aging, Disability, and Independence

Board on Health Sciences Policy

Institute of Medicine

Division of Behavioral and Social Sciences and Education

Images

THE NATIONAL ACADEMIES PRESS

Washington, DC

www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001

This activity was supported by the Administration for Community Living (Contract No. HHSP233201400020B/HHSP23337027); Alliance for Home Health Quality and Innovation; Consumer Technology Association Foundation; The Gerontological Society of America; Health Resources and Services Administration (Contract No. HHSH250201500001I/HHSH25034002T); The John A. Hartford Foundation; LeadingAge; National Institute on Disability, Independent Living, and Rehabilitation Research (Contract No. HHSP233201400020B/HHSP23337036); Paraprofessional Healthcare Institute; Qualcomm Incorporated (Contract No. NAT-301711); U.S. Department of Defense (Contract No. HU0001-15-1-0007); and U.S. Department of Veterans Affairs (Contract No. VA268-12-P-0014). Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number-13: 978-0-309-39106-1
International Standard Book Number-10: 0-309-39106-7
Digital Object Identifier: 10.17226/21893

Additional copies of this workshop summary are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.

Copyright 2016 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America

Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2016. Policy and research needs to maximize independence and support community living: Workshop summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
×

Image

The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Ralph J. Cicerone is president.

The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. C. D. Mote, Jr., is president.

The National Academy of Medicine (formerly the Institute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers for distinguished contributions to medicine and health. Dr. Victor J. Dzau is president.

The three Academies work together as the National Academies of Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The Academies also encourage education and research, recognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine.

Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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PLANNING COMMITTEE FOR A WORKSHOP ON POLICY AND RESEARCH NEEDS TO MAXIMIZE INDEPENDENCE AND SUPPORT COMMUNITY LIVING1

TERRY T. FULMER (Co-Chair), President, The John A. Hartford Foundation

FERNANDO TORRES-GIL (Co-Chair), Professor and Director, Center for Public Research on Aging, Luskin School of Public Affairs, University of California, Los Angeles

JAMES C. APPLEBY, Executive Director and Chief Executive Officer, The Gerontological Society of America

MARY BRADY, Consultant, Home Use Devices and Medical Device Labeling

MARGARET L. CAMPBELL, Senior Scientist for Planning and Policy Support, National Institute on Disability, Independent Living, and Rehabilitation Research

THOMAS E. EDES, Director, Geriatrics & Extended Care Operations, U.S. Department of Veterans Affairs

ROBERT ESPINOZA, Vice President of Policy, PHI

STEVE EWELL, Executive Director, Consumer Technology Association Foundation

ROBERT HORNYAK, Director, Office of Performance and Evaluation, Administration for Community Living

ROBERT JARRIN, Senior Director, Government Affairs, Qualcomm Inc.

TERESA L. LEE, Executive Director, Alliance for Home Health Quality and Innovation

LARRY MINNIX, President and Chief Executive Officer, LeadingAge

MATT QUINN, East Coast Managing Director, Healthcare and Life Sciences, Intel Corp.

JACK W. SMITH, Director, Health Services Policy and Oversight, Office of the Assistant Secretary of Defense for Health Affairs, U.S. Department of Defense

MICHELLE M. WASHKO, Deputy Director, National Center for Health Workforce Analysis, Health Resources and Services Administration

___________________

1 The National Academies of Sciences, Engineering, and Medicine’s planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop summary rests with the workshop rapporteurs and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
×

Project Staff

SARAH DOMNITZ, Program Officer

TRACY A. LUSTIG, Senior Program Officer

Y. CRYSTI PARK, Senior Program Assistant

ANDREW M. POPE, Director, Board on Health Sciences Policy

Consultant

JOE ALPER, Consulting Writer

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
×

FORUM ON AGING, DISABILITY, AND INDEPENDENCE1

TERRY T. FULMER (Co-Chair), The John A. Hartford Foundation

FERNANDO TORRES-GIL (Co-Chair), University of California, Los Angeles

JAMES C. APPLEBY, The Gerontological Society of America

MARGARET L. CAMPBELL, National Institute on Disability, Independent Living, and Rehabilitation Research

THOMAS E. EDES, U.S. Department of Veterans Affairs

ROBERT ESPINOZA, PHI

STEVE EWELL, Consumer Technology Association Foundation

ROBERT HORNYAK, Administration for Community Living

ROBERT JARRIN, Qualcomm Inc.

TERESA L. LEE, Alliance for Home Health Quality and Innovation

LARRY MINNIX, LeadingAge

JACK W. SMITH, U.S. Department of Defense

MICHELLE M. WASHKO, Health Resources and Services Administration

Forum on Aging, Disability, and Independence Staff

SARAH DOMNITZ, Forum Co-Director

TRACY A. LUSTIG, Forum Co-Director

Y. CRYSTI PARK, Senior Program Assistant

GOOLOO WUNDERLICH, Senior Program Officer

ANDREW M. POPE, Director, Board on Health Sciences Policy

RICK ERDTMANN, Director, Board on the Health of Select Populations

___________________

1 The National Academies of Sciences, Engineering, and Medicine’s forums do not issue, review, or approve individual documents. The responsibility for the published workshop summary rests with the workshop rapporteurs and the institution.

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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Reviewers

This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published summary as sound as possible and to ensure that the summary meets institutional standards for clarity, objectivity, and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this workshop summary:

ERIN ITURRIAGA, National Heart, Lung, and Blood Institute

LISA McGUIRE, Centers for Disease Control and Prevention

WENDY NILSEN, National Science Foundation

MICHELLE PUTNAM, Simmons College

RENÉ SEIDEL, The SCAN Foundation

Although the reviewers listed above have provided many constructive comments and suggestions, they did not see the final draft of the workshop summary before its release. The review of this summary was overseen by RONALD T. ACKERMANN, Northwestern University. He was responsible for making certain that an independent examination of this summary was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this summary rests entirely with the rapporteurs and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Policy and Research Needs to Maximize Independence and Support Community Living: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21893.
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Living independently and participating in one’s community are priorities for many people. In many regions across the United States, there are programs that support and enable people with disabilities and older adults to live where they choose and with whom they choose and to participate fully in their communities. Tremendous progress has been made. However, in many cases, the programs themselves – and access to them – vary not only between states but also within states. Many programs are small, and even when they prove to be successful they are still not scaled up to meet the needs of the many people who would benefit from them. The challenges can include insufficient workforce, insufficient funding, and lack of evidence demonstrating effectiveness or value.

To get a better understanding of the policies needed to maximize independence and support community living and of the research needed to support implementation of those policies, the National Academies of Sciences, Engineering, and Medicine convened a public workshop in October 2015. Participants explored policies in place that promote independence and community living for older adults and people with physical disabilities, and identified policies and gaps in policies that can be barriers to independence and the research needed to support changing those policies. This report summarizes the presentations and discussions from the workshop.

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