Page 87 Cite

Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.

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Appendix B

Workshop Agenda

Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Medical Needs

December 9-10, 2015

The National Academies Keck Center
500 Fifth Street, NW
Washington, DC 20001

AGENDA

Day 1: Wednesday, December 9, 2015

8:30 a.m.	Welcome and Workshop Overview
8:45 a.m.	Introductory Session, “Perspectives from Individuals and Family Members” Moderator: Stephen M. Shore, Ed.D., Adelphi University J-Jaye Hurley, Parent Advocate and Autism Response Team Coordinator, Autism Speaks Jill Plevinsky, M.A., Founding Chair, Patient Advisory Council, ImproveCareNow Victoria Costello, M.F.A., Parent Advocate, Science Journalist, and Public Library of Science
10:00 a.m.	Keynote Presentation, “Disability Names and Numbers: Challenges and Opportunities in Nosology, Epidemiology, and Equity/Disparity” Moderator: Deborah Klein Walker, Ed.D., Abt Associates and American Orthopsychiatric Association Maureen S. Durkin, Ph.D., Dr.P.H., M.P.H., University of Wisconsin–Madison

Page 88 Cite

Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.

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11:00 a.m.	Panel One, “Children with Serious Medical Conditions and the Behavioral Health Implications” Moderator: Mary Ann McCabe, Ph.D., ABPP, George Washington University School of Medicine, George Mason University Anne E. Kazak, Ph.D., ABPP, Nemours Children’s Health System and Sidney Kimmel Medical School of Thomas Jefferson University Robin S. Everhart, Ph.D., Virginia Commonwealth University Amy J. Houtrow, M.D., Ph.D., M.P.H., Children’s Hospital of Pittsburgh of UPMC Torrie Dunlap, CPLP, Kids Included Together
1:30 p.m.	Panel Two, “Early Identification and Interventions for Developmental Disabilities Emerging in Childhood” Moderator: Craig J. Newschaffer, Ph.D., Drexel University Heather Johnson, DNP, FNP-BC, FAANP, Uniformed Services University of the Health Sciences Graduate School of Nursing Nathan A. Call, Ph.D., BCBA-D., Marcus Autism Center, Emory University School of Medicine Connie Kasari, Ph.D., University of California, Los Angeles David S. Mandell, Sc.D., University of Pennsylvania School of Medicine
3:15 p.m.	Panel Three, “Early Identification and Interventions for Youth and Adolescents with Serious Behavioral Health Conditions” Moderator: Kirsten Beronio, J.D., Office of the Assistant Secretary for Planning and Evaluation Mary Fristad, Ph.D., ABPP, Ohio State University Medical Center Robert K. Heinssen, Ph.D., ABPP, National Institute of Mental Health Lisa Dixon, M.D., M.P.H., Columbia University Medical Center and New York State Psychiatric Institute Shay Bilchik, J.D., Georgetown University Center for Juvenile Justice Reform

Page 89 Cite

Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.

×

4:45 p.m.	Armchair Discussion/Reflections from Moderators (full group Q and A) Moderator: Maureen S. Durkin, Ph.D., Dr.P.H., M.P.H., University of Wisconsin–Madison
5:30 p.m.	Closing Remarks and Adjourn

Day 2: Thursday, December 10, 2015

8:30 a.m.	Welcome, Brief Recap of Day 1, and Overview for Day 2
8:45 a.m.	Panel Four, “Media and Public Perceptions/Misperceptions of Children with Disabilities” Moderator: Andy Shih, Ph.D., Autism Speaks, and Donald Wertlieb, Ph.D., American Orthopsychiatric Association and Tufts University Steve Silberman, Science Writer and Author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity Susan M. Lanzoni, Ph.D., Historian of Science and Writer, Harvard University Victoria Costello, M.F.A., Parent Advocate, Science Journalist, and Public Library of Science Tony Foleno, M.A., The Ad Council Emily J. Willingham, Ph.D., Freelance Writer
10:30 a.m.	Interactive Breakout Group Sessions (unavailable to Webcast audience) Group 1: Considerations for when an evidence base is lacking Moderator: C. Hendricks Brown, Ph.D., Northwestern University, and Emily Lichvar, Ph.D., Center for Mental health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services Group 2: Community engagement and partnerships for development and implementation of solutions Moderator: Kelly J. Kelleher, M.D., The Research Institute at Nationwide Children’s Hospital, and Angela Lello, M.P.A., Autism Speaks

Page 90 Cite

Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.

×

	Group 3: This breakout group is offered to participants of both the December 7-8 “National Symposium on Designing Systems That Work for Children with Complex Health Care Needs” and the December 9-10 “Workshop on Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Medical Needs” Moderators: Andy Shih, Ph.D., Autism Speaks, and Ed Schor, M.D., Lucile Packard Foundation for Children’s Health
11:45 a.m.	Report-back from breakout groups
12:45 p.m.	Workshop Reflections
1:00 p.m.	Adjourn Workshop