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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2017. Integrating the Patient and Caregiver Voice into Serious Illness Care: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24802.
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Appendix A

Statement of Task

An ad hoc committee will plan, organize, and host a 1-day public workshop to examine issues pertaining to integrating the voice of patient and family caregivers into the delivery of care for people of all ages with serious illness. The workshop will feature invited presentations and panel discussions on topics that may include

  • Examination of the current challenges and needs related to integrating the patient and caregiver voice into serious illness care
  • Shared decision making in the context of serious illness care
  • Ways to enhance patient knowledge and understanding of treatment options
  • Ways to facilitate and support engagement of the patient and family caregivers in the decisions regarding serious illness care
  • Evidence gaps and challenges that may impede the integration of patient and family preferences into serious illness care, and opportunities to address them
  • Disparities in care related to social determinants of health, including factors such as age, race, ethnicity, socioeconomic status, and geography
  • Unique needs of pediatric patients and families
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2017. Integrating the Patient and Caregiver Voice into Serious Illness Care: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24802.
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The planning committee will develop the agenda for the workshop, select speakers and discussants, and moderate the discussions. Proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2017. Integrating the Patient and Caregiver Voice into Serious Illness Care: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24802.
×
Page 73
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2017. Integrating the Patient and Caregiver Voice into Serious Illness Care: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24802.
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Page 74
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Millions of people—infants, children, adults, and their families—are currently coping with serious illness in the United States. Efforts are intensifying to improve overall care quality through the delivery of person-centered and family-oriented services, for patients of all ages and across disease stages, care settings, and specialties. While aging Baby Boomers are increasing the proportion of patients in the Medicare population over time, the sickest and most vulnerable patients needing health system support and other services to meet their complex needs can be found across the age spectrum and in a broad range of care settings, from perinatal care to geriatric care.

Recognizing the need to thoughtfully consider and address the challenges and opportunities in efforts to improve care quality and value, the Roundtable on Quality Care for People with Serious Illness of the National Academies of Sciences, Engineering, and Medicine held the public workshop Integrating the Patient and Caregiver Voice into Serious Illness Care, on December 15, 2016, in Washington, DC. This workshop was the first in a series planned by the roundtable, and was designed specifically to bring together diverse personal perspectives and experiences about priorities and values that are important to patients and families coping with serious illness, and to consider solutions that support integration of these priorities and values in practice. This publication summarizes the presentations and discussions from the workshop.

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