Appendix B
Workshop Agenda
DECEMBER 15, 2016
8:00 am | Registration and Breakfast |
8:30 am | Overview of the Roundtable on Quality Care for People with Serious Illness |
Leonard D. Schaeffer, University of Southern California (Chair) | |
James Tulsky, MD, Harvard Medical School (Vice Chair) Roundtable on Quality Care for People with Serious Illness | |
Overview of the Workshop | |
Rebecca Kirch, JD, National Patient Advocate Foundation JoAnne Reifsnyder, PhD, RN, Hospice and Palliative Nurses Association | |
Planning Committee Co-Chairs | |
8:45 am | Session 1: Integrating the Patient, Caregiver, and Family Voice into Person-Centered Care: Gaps, Challenges, and Opportunities |
Moderator: Amy Berman, BSN, LHD, The John A. Hartford Foundation |
Caregiver‒Clinician Pediatric Palliative Care Perspective | |
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Caregiver‒Clinician Adult Palliative Care Perspective | |
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Patient and Family Beliefs and Values in the Context of Spirituality | |
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Panel Discussion, Audience Q & A | |
10:30 am | Break |
10:45 am | Session 2: Addressing Sociocultural Differences in Care for Seriously Ill Children and Adults |
Moderator: Robert A. Bergamini, MD, Mercy Clinic Children’s Cancer and Hematology, Supportive Care Coalition | |
Addressing health equity and quality-of-life priorities and concerns experienced by patients and caregivers among geographically and ethnically diverse and vulnerable populations | |
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Opportunities for addressing health disparities through chaplaincy/spiritual care services and support, including cultural humility/sensitivity | |
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Promoting dignity, quality of life, and health outcomes for underserved populations and addressing ethnicity and poverty effects on preferences and care | |
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Identifying and honoring preferences in the context of reducing racial disparities—addressing health disparities through improved communication and other strategies | |
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Panel Discussion, Audience Q & A | |
12:30 pm | Lunch |
1:20 pm | Session 3: Integrating Person-Centered Care Across Ages, Diagnoses, and Disciplines |
Moderator: Terry Altilio, LCSW, ACSW, Mount Sinai Beth Israel Medical Center | |
Nurturing healthier connections between patients, caregivers, and clinicians through skilled communication emphasizing honesty, empathy, and hope | |
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Team-based prehabilitation and rehabilitation services integration as complement to palliative care and other supportive services focused on addressing patient and caregiver quality-of-life goals and priorities | |
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Special issues and needs in caring for seriously ill infants and their families, including identifying parent values and preferences in the context of perinatal and neonatal care and developing strategies for teams and a relationship-centered approach | |
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Opportunities for extending health system reach in addressing patient and family needs for spiritual and other care throughout the continuum using community-based chaplaincy and other services | |
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Panel Discussion, Audience Q & A | |
3:15 pm | Break |
3:45 pm | Session 4: Innovations and Interventions to Support Communication of Needs, Values, and Preferences |
Moderator: Ellen Goodman, The Conversation Project | |
Engaging communities in using tools to normalize quality-of-life conversations and build patient connections that support improved decision making and help align care with values, preferences, and priorities of the patient, family, and caregiver | |
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Community outreach to vulnerable populations in care planning and discussions; PREPARE website and tools | |
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Community-based research on health-related quality of life in complex chronic illness, rural health disparities, integrated palliative care | |
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Findings and lessons learned from nationwide research on consumer preferences related to end-of-life care | |
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Panel Discussion, Audience Q & A | |
5:15 pm | Wrap-Up and Reflections on the Day |
Rebecca Kirch and JoAnne Reifsnyder | |
Planning Committee Co-Chairs | |
5:30 pm | Adjourn |
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