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Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop (2018)

Chapter: Appendix B: Workshop Agenda

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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Appendix B

Workshop Agenda

July 24, 2017
7:30 am Registration
8:00 am Welcome from the National Cancer Policy Forum
Edward Benz, Chair, National Cancer Policy Forum President and CEO Emeritus, Dana-Farber Cancer Institute
Overview of the Workshop
Patricia Ganz, University of California, Los Angeles (UCLA), Jonsson Comprehensive Cancer Center
Ronald Kline, Centers for Medicare & Medicaid Services Planning Committee Co-Chairs
8:15 am Session 1: Overview of Cancer Survivorship
Moderator: Edward Benz, President and CEO Emeritus, Dana-Farber Cancer Institute
Keynote Presentation—Patient Experiences and Perspectives on Cancer Survivorship
  • Neeraj Arora, Patient-Centered Outcomes Research Institute
Page 134 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Beyond Being Lost in Transition: Reviewing the History and Progress in Cancer Survivorship Care
  • Larissa Nekhlyudov, Brigham and Women’s Hospital and Dana-Farber Cancer Institute
Respondents
  • Catherine Alfano, American Cancer Society
  • Deborah Mayer, University of North Carolina Lineberger Comprehensive Cancer Center
Q&A
9:30 am Session 2: Physical Well-Being in Cancer Survivorship
Moderator: Patricia Ganz, UCLA Jonsson Comprehensive Cancer Center
Introductory Remarks from a Patient’s Perspective
  • Julie Silver, Harvard Medical School
Overview of Physical Issues Cancer Survivors Face and Interventions for Improved Physical Well-Being
  • Kevin Oeffinger, Duke University Cancer Institute
Sleep, Fatigue, and Cognitive Functioning
  • Paul Jacobsen, National Cancer Institute
Lifestyle Interventions for Cancer Survivors
  • Wendy Demark-Wahnefried, The University of Alabama at Birmingham Comprehensive Cancer Center
Prehabilitation and Rehabilitation in Cancer Survivorship
  • Julie Silver, Harvard Medical School
Panel Discussion
11:45 am Lunch Break
Page 135 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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12:30 pm Session 3: Psychosocial Well-Being and Family
Considerations in Cancer Survivorship
Moderator: Julia Rowland, National Cancer Institute
Patient Perspective
  • Darci Graves, Centers for Medicare & Medicaid Services
Family Caregiver Perspective
  • Hedy Wald, Alpert Medical School of Brown University
Overview of Psychosocial Issues That Cancer Survivors Face Across the Life Span
Adult Survivors
  • Barbara Andersen, The Ohio State University
Childhood Survivors
  • Christopher Recklitis, Dana-Farber Cancer Institute and Harvard Medical Center
Overview of Family Caregiving Issues That Cancer Survivors and Their Families Face
  • Barbara Given, Michigan State University
Panel Discussion
2:55 pm Break
3:10 pm Session 4: Socioeconomic Considerations in Cancer Survivorship: Employment, Insurance, and Economic Issues
Moderator: Shelley Fuld Nasso, National Coalition for Cancer Survivorship
Patient Perspectives
  • “e-Patient Dave” deBronkart, Society for Participatory Medicine
  • Kim Hall Jackson, Survivor and Patient Advocate
  • Mary Scroggins, Pinkie Hugs, LLC, and In My Sister’s Care
Page 136 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Economic Impacts of Cancer Survivorship
  • Cathy Bradley, University of Colorado Cancer Center
  • Robin Yabroff, Department of Health and Human Services
Employment and Education Impacts
  • Barbara Hoffman, Rutgers Law School
Panel Discussion
5:30 pm Adjourn, Day 1
5:35 pm Reception
July 25, 2017
7:30 am Registration
7:50 am Session 5: Models of Survivorship Care Delivery
Moderator: Mary S. McCabe, Independent Consultant
Reaching Rural Cancer Survivors
  • Keith Argenbright, The University of Texas Southwestern Medical Center
Survivorship Clinics in Community Cancer Centers
  • Mark O’Rourke and Regina Franco, Greenville Health System Cancer Institute
Implementation and Dissemination Science in Cancer Survivorship Care Delivery
  • David Chambers, National Cancer Institute
Patient Perspective
  • Martha Gaines, Center for Patient Partnerships and University of Wisconsin Law School
Panel Discussion
Include Speakers and Respondent:
  • Jay Burton, Springfield Medical Associates
Page 137 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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10:00 am Break
10:10 am Session 6: Panel Discussion: A Policy Agenda to Improve Cancer Survivorship Care
Moderator: Ronald Kline, Centers for Medicare & Medicaid Services
Panelists:
  • Richard Baron, American Board of Internal Medicine Foundation
  • Brandon Hayes-Lattin, Oregon Health & Science University
  • Laurie Isenberg, National Coalition for Cancer Survivorship
  • Rebecca Kirch, National Patient Advocate Foundation
  • Susan Schneider, Duke University School of Nursing
  • Lawrence Shulman, University of Pennsylvania and Commission on Cancer
  • Gregory Simon, Biden Cancer Initiative
11:35 am Wrap-Up
Patricia Ganz, UCLA Jonsson Comprehensive Cancer Center
11:45 am Adjourn
Page 138 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Page 133 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Page 134 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Page 135 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Page 136 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Page 136
Page 137 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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Page 138 Cite
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25043.
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The 2006 Institute of Medicine (IOM) consensus study report From Cancer Patient to Cancer Survivor: Lost in Transition made recommendations to improve the quality of care that cancer survivors receive, in recognition that cancer survivors are at risk for significant physical, psychosocial, and financial repercussions from cancer and its treatment. Since then, efforts to recognize and address the unique needs of cancer survivors have increased, including an emphasis on improving the evidence base for cancer survivorship care and identifying best practices in the delivery of high-quality cancer survivorship care.

To examine progress in cancer survivorship care since the Lost in Transition report, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop in July 2017, in Washington, DC. Workshop participants highlighted potential opportunities to improve the planning, management, and delivery of cancer survivorship care. This publication summarizes the presentations and discussions from the workshop.

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