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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
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References

Banavar, G. 2016. Learning to trust artificial intelligence systems: Accountability, compliance, and ethics in the age of smart machines. Armonk, NY: IBM Research.

Bayer, D., S. Haber, and W. S. Stornetta. 1993. Improving the efficiency and reliability of digital time-stamping. In Sequences II, edited by R. Capocelli, A. De Santis, and U. Vaccaro. New York: Springer.

Berg, J. 2016. Editorial expression of concern. Science 354(6317):1242.

Berg, J. 2017. Editorial retraction. Science 356(6340):812.

Dwork, C., F. McSherry, K. Nissim, and A. Smith. 2006. Calibrating noise to sensitivity in private data analysis. In Theory of cryptography. TCC 2006. Lecture notes in computer science. Vol. 3876, edited by S. Halevi and T. Rabin. Berlin: Springer. Pp. 265-284.

Edwards, B., S. Greene, and G. T. Kingsley. 2016. A political economy framework for the urban data revolution. Washington, DC: The Urban Institute.

Fiesler, C., and N. Proferes. 2018. “Participant” perceptions of twitter research ethics. Social Media + Society 4(1):2056305118763366.

Gahl, W. A., A. L. Wise, and E. A. Ashley. 2015. The undiagnosed diseases network of the National Institutes of Health: A national extension. JAMA 314(17):1797-1798.

Gahl, W. A., J. J. Mulvihill, C. Toro, T. C. Markello, A. L. Wise, R. B. Ramoni, D. R. Adams, and C. J. Tifft. 2016. The NIH undiagnosed diseases program and network: Applications to modern medicine. Molecular Genetics and Metabolism 117(4):393-400.

Gaye, A., Y. Marcon, J. Isaeva, P. LaFlamme, A. Turner, E. M. Jones, J. Minion, A. W. Boyd, C. J. Newby, M. L. Nuotio, R. Wilson, O. Butters, B. Murtagh, I. Demir, D. Doiron, L. Giepmans, S. E. Wallace, I. Budin-Ljosne, C. Oliver Schmidt, P. Boffetta, M. Boniol, M. Bota, K. W. Carter, N. deKlerk, C. Dibben, R. W. Francis, T. Hiekkalinna, K. Hveem, K. Kvaloy, S. Millar, I. J. Perry, A. Peters, C. M. Phillips, F. Popham, G. Raab, E. Reischl, N. Sheehan, M. Waldenberger, M. Perola, E. van den Heuvel, J. Macleod, B. M. Knoppers, R. P. Stolk, I. Fortier, J. R. Harris, B. H. Woffenbuttel, M. J. Murtagh, V. Ferretti, and P. R. Burton. 2014. Datashield: Taking the analysis to the data, not the data to the analysis. International Journal of Epidemiology 43(6):1929-1944.

Gundersen, L. C. 2017. Scientific integrity and ethical considerations for the research data life cycle. In Scientific integrity and ethics in the geosciences, edited by L. C. Gundersen. Washington, DC: American Geophysical Union.

Haber, S., and W. S. Stornetta. 1991. How to time-stamp a digital document. In Advances in cryptology-crypt0’ 90. Crypto 1990. Lecture notes in computer science. Vol. 537, edited by A. J. Menezes and S. A. Vanstone. Heidelberg: Springer.

Haber, S., and W. S. Stornetta. 1997. Secure names for bit-strings. In 4th ACM conference on computer and communications security, April 1-4, 1997, Zurich, Switzerland. New York: Association for Computing Machinery.

Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×

Hanson, B. 2017. The new landscape of ethics and integrity in scholarly publishing. In Scientific integrity and ethics in the geosciences, edited by L. C. Gundersen. Washington, DC: American Geophysical Union.

IBM THINK. 2017. Transparency and trust in the cognitive era. In IBM THINK. Armonk, NY: IBM.

Imhoff, M. L., and L. Bounoua. 2006. Exploring global patterns of net primary production carbon supply and demand using satellite observations and statistical data. Journal of Geophysical Research: Atmospheres 111(D22).

Imhoff, M. L., L. Bounoua, T. Ricketts, C. Loucks, R. Harriss, and W. T. Lawrence. 2004. Global patterns in human consumption of net primary production. Nature 429(6994):870-873.

International Council for Science Committee on Data for Science and Technology. 2015. The value of open data sharing. Geneva, Switzerland: Group on Earth Observations.

Izmailova, E. S., J. A. Wagner, and E. D. Perakslis. 2017. Wearable devices in clinical trials: Hype and hypothesis. Clinical Pharmacology and Therapeutics 104(1):42-52.

Jackman, M., and L. Kanerva. 2016. Evolving the IRB: Building robust review for industry research. Washington and Lee Law Review Online 72(3):article 8.

Kitchin, R. 2016. The ethics of smart cities and urban science. Philosophical Transactions of the Royal Society A 374: 20160115.

Knoppers, B. M. 2014. Framework for responsible sharing of genomic and health-related data. Hugo Journal 8(1):3.

Knoppers, B. M., J. R. Harris, I. Budin-Ljosne, and E. S. Dove. 2014. A human rights approach to an international code of conduct for genomic and clinical data sharing. Human Genetics 133(7):895-903.

Kramer, A. D., J. E. Guillory, and J. T. Hancock. 2014. Experimental evidence of massive-scale emotional contagion through social networks. Proceedings of the National Academy of Sciences of the United States of America 111(24):8788-8790.

Murtagh, M. J., A. Turner, J. T. Minion, M. Fay, and P. R. Burton. 2016. International data sharing in practice: New technologies meet old governance. Biopreservation and Biobanking 14(3):231-240.

Murtagh, M. J., M. T. Blell, O. W. Butters, L. Cowley, E. S. Dove, A. Goodman, R. L. Griggs, A. Hall, N. Hallowell, M. Kumari, M. Mangino, B. Maughan, M. C. Mills, J. T. Minion, T. Murphy, G. Prior, M. Suderman, S. M. Ring, N. T. Rogers, S. J. Roberts, C. Van der Straeten, W. Viney, D. Wiltshire, A. Wong, N. Walker, and P. R. Burton. 2018. Better governance, better access: Practising responsible data sharing in the METADAC governance infrastructure. Human Genomics 12(1):24.

Paskaleva, K., J. Evans, C. Martin, T. Linjordet, D. Yang, and A. Karvonen. 2017. Data Governance in the Sustainable Smart City. Informatics 4(4), 41.

Pelton, J., and I. Singh. 2018. 21st century smart cities. New York: Springer.

Rogaway, P. 2015. The moral character of cryptographic work. Cryptology ePrint Archive Report 2015/1162.

Scheufele, E., D. Aronzon, R. Coopersmith, M. T. McDuffie, M. Kapoor, C. A. Uhrich, J. E. Avitabile, J. Liu, D. Housman, and M. B. Palchuk. 2014. tranSMART: An open source knowledge management and high content data analytics platform. AMIA Joint Summits on Translational Science Proceedings 2014:96-101.

Shultz, J. M., and S. Galea. 2017a. Mitigating the mental and physical health consequences of Hurricane Harvey. JAMA 318(15):1437-1438.

Shultz, J. M., and S. Galea. 2017b. Preparing for the next Harvey, Irma, or Maria—addressing research gaps. New England Journal of Medicine 377(19):1804-1806.

Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×

Shultz, J. M., J. M. Shepherd, I. Kelman, A. Rechkemmer, and S. Galea. 2018. Mitigating tropical cyclone risks and health consequences: Urgencies and innovations. Lancet Planet Health 2(3):e103-e104.

Silverman, C. 2016. Election news stories outperformed real news on facebook. https://www.buzzfeed.com/craigsilverman/viral-fake-election-news-outperformed-real-news-on-facebook?utm_term=.wq9dNxRyJ#.vklbZRXyD (accessed May 29, 2018).

Tene, O., and J. Polonetsky. 2016. Beyond IRBs: Ethical guidelines for data research. Washington and Lee Law Review Online 72(3):Article 7.

Wagner, C. S., T. A. Whetsell, and L. Leydesdorff. 2017. Growth of international collaboration in science: Revisiting six specialties. Scientometrics 110(3):1633-1652.

Wang, Y., and M. Kosinski. 2018. Deep neural networks are more accurate than humans at detecting sexual orientation from facial images. Journal of Personality and Social Psychology 114(2):246-257.

Wilkinson, M. D., M. Dumontier, I. J. Aalbersberg, G. Appleton, M. Axton, A. Baak, N. Blomberg, J.-W. Boiten, L. B. da Silva Santos, P. E. Bourne, J. Bouwman, A. J. Brookes, T. Clark, M. Crosas, I. Dillo, O. Dumon, S. Edmunds, C. T. Evelo, R. Finkers, A. Gonzalez-Beltran, A. J. G. Gray, P. Groth, C. Goble, J. S. Grethe, J. Heringa, P. A. C. ’t Hoen, R. Hooft, T. Kuhn, R. Kok, J. Kok, S. J. Lusher, M. E. Martone, A. Mons, A. L. Packer, B. Persson, P. Rocca-Serra, M. Roos, R. van Schaik, S.-A. Sansone, E. Schultes, T. Sengstag, T. Slater, G. Strawn, M. A. Swertz, M. Thompson, J. van der Lei, E. van Mulligen, J. Velterop, A. Waagmeester, P. Wittenburg, K. Wolstencroft, J. Zhao, and B. Mons. 2016. The fair guiding principles for scientific data management and stewardship. Scientific Data 3:160018.

Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×

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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page70
Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page71
Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
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In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training.

International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated data—this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well.

A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domains—all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

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