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Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
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Appendix A

Workshop Agenda

National Academies of Sciences Building
2101 Constitution Avenue, N.W.
Washington, DC 20001

WEDNESDAY, MARCH 14, 2018

Day 1: Data Matters

3:30-5:30 pm
Room 120
Introduction and Framing the Issues
  • Barbara Mittleman, Chief Strategy Officer of Waymark Systems
  • Arturo Pizano, University Relations Program Manager at Siemens Corporate Technology
  • Susan Sauer Sloan, Director of GUIRR at the National Academies of Sciences, Engineering, and Medicine
  • Jake Metcalf, Research at the Data & Society Research Institute
  • Ghassem Asrar, Director of the Joint Global Change Research Institute of the Pacific Northwest National Laboratory
5:30-7:30 pm
West Court
Reception (sponsored by Elsevier) and Keynote
  • Simson Garfinkel, Senior Computer Scientist for Confidentiality and Data Access at the U.S. Census Bureau
  • Moderator: Arturo Pizano

THURSDAY, MARCH 15, 2018

Day 2: Privacy, Security, and Confidentiality of Data Sharing and Storage

8:00-10:30 am
Room 120
Session 1: The Upside and the Downside: Protections, Incentives, Disincentives, and Risks
Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×

Legal and Technical Concerns (8:15-9:15 am)

  • Ruxandra Draghia, Vice President of Public Health and Scientific Affairs at Merck Global Vaccines
  • Nick Feamster, Professor of Computer Science at the Center for Information Technology Policy at Princeton University
  • Moderator: Mark Seiden, Director of Information Security at 1010data and Security Advisor at Internet Archive

Political and Economic Concerns (9:15-10:30 am)

  • Kristin Tolle, Director of the Data Science Initiative at Microsoft Research Outreach
  • Brad Fenwick, Senior Vice President of Global Strategic Alliances at Elsevier
  • Stuart Haber, Chief Scientist at Auditchain
  • Moderator: Mark Seiden
10:45 am-12:15 pm Room 120 Session 2: Domain-Specific Examples
  • Joe Pelton, Emeritus Director of the Space and Advanced Communications Research Institute at the George Washington University
  • Eric Perakslis, Chief Science Officer at Datavant
  • Shelley Stall, Director for Data Programs at the American Geophysical Union
  • Jim Shultz, Founder and Director of the Center for Disaster and Extreme Event Preparedness Center at the University of Miami School of Medicine
  • Nancy Potok, Chief Statistician of the United States
  • Moderator: Ruxandra Draghia
12:15-1:45 pm West Court Session 3: Lunch and Plenary

Sharing Data Responsibly: International, Interdisciplinary, and Intersectoral Entanglements

  • Madeleine Murtagh, Professor of Sociology and Bioethics at Newcastle University
  • Moderator: Susan Sauer Sloan
1:45-3:45 pm Session 4: Breakout Groups
  • Room 120 (A)—Judith Torney-Purta and Arturo Pizano
  • Member’s Room (B)—Lorna Jean Edmonds and Susan Sauer Sloan
  • Room 125 (C)—Brad Fenwick and Andreas Rechkemmer
  • Board Room (D)—Tilak Agerwala and Mark Seiden
Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
4:00-5:30 pm
Room 120
Session 5: Privacy, Security, Equity, and Confidentiality of Data Sharing and Storage
  • Cheikh Mbow, Executive Director of START
  • Roger-Mark De Souza, President and CEO of Sister Cities
  • Moderator: Andreas Rechkemmer, Professor and American Humane Endowed Chair of the Graduate School of Social Work at the University of Denver
5:30-7:00 pm West Court Reception (sponsored by Siemens Corporation)

FRIDAY, MARCH 16, 2018

Day 3: Changing Technology and Social Landscape

8:15-9:00 am Room 120 Session 1: New and Emerging Technologies – Internet of People and Things
  • Sanjay Tripathi, Vice President of Growth Initiatives and Strategic Partnerships at Watson IoT, IBM
  • Moderator: Tilak Agerwala, IBM Emeritus
9:00 am-12:15 pm Session 2: Breakout Groups
  • Room 120 (A)—Judith Torney-Purta and Arturo Pizano
  • Member’s Room (B)—Lorna Jean Edmonds and Susan Sauer Sloan
  • Room 125 (C)—Brad Fenwick and Andreas Rechkemmer
  • Board Room (D)—Tilak Agerwala and Mark Seiden
12:15-1:00 pm
West Court
Lunch
1:00-2:30 pm
Room 120
Session 3: New and Emerging Technologies – Artificial Intelligence
  • John Markoff, Research Fellow at the Center for Advanced Study in the Behavioral Sciences at Stanford University and former Senior Technology Writer for The New York Times
  • Dario Gil, Vice President of AI and IBM Q
  • Melvin Greer, Chief Data Scientist for the Public Sector, Americas, at Intel Corporation
  • Moderator: Lorna Jean Edmonds, Vice Provost for Global Affairs and International Studies at Ohio University
2:30-3:30 pm Room 120 Session 4: Open Discussion and Next Steps
Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×

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Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page 73
Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page 74
Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page 75
Suggested Citation:"Appendix A: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page 76
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 Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop
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In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training.

International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated data—this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well.

A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domains—all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

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