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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
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Appendix A

Statement of Task

An ad hoc committee will plan and host a 1-day workshop whose agenda will examine access to and equity of care for people with serious illness. The workshop will feature invited presentations and panel discussions on topics that may include

  • Barriers that impede access to care for serious illness (e.g., advance care planning, palliative care, and hospice) among vulnerable populations and strategies to address those barriers;
  • Strategies to build trust and effectively engage patients, families, and caregivers in diverse cultural, ethnic, racial, and socioeconomic environments, in order to communicate with patients and families in a culturally competent manner regarding expectations and values related to end-of-life care and to ensure that treatment is aligned with preferences;
  • Approaches to enhancing the diversity of the workforce providing care to people with serious illness;
  • Models of care delivery that currently serve vulnerable populations with serious illness, including public–private partnerships and community-level interventions, such as use of community health coaches for peer-to-peer interventions and partnering with faith-based organizations; and
  • Research gaps and key questions for further research.
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
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The planning committee will develop the agenda for the workshop, select speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 79
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
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Page 80
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The Centers for Disease Control and Prevention estimates that approximately 40 million people in the United States suffer from a serious illness that limits their daily activities. These illnesses include heart and lung disease, cancer, diabetes, and Alzheimer’s disease and other forms of dementia. However, significant disparities exist across different communities in the quality and access to care for these illnesses. Factors such as race, ethnicity, gender, geography, socioeconomic status, or insurance status exacerbate these complex disparities. It is critical to reevaluate the current models of care delivery across diverse communities and vulnerable populations.

On April 4, 2019, The National Academies of Sciences, Engineering, and Medicine convened a workshop to investigate barriers, policy initiatives, and opportunities for improving access to and equity of care for people living with a serious illness. Discussions explored the current climate of health care and opportunities to improve access to care using organizational, community, patient and family, and clinician perspectives. This publication summarizes the discussions and presentations from the workshop.

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