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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
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Appendix B

Workshop Agenda

JULY 15, 2019

7:30 am Registration and Breakfast
8:00 am Session 1: Overview of Health Literacy and Communication Strategies in Oncology
Moderator: Karen Basen-Engquist, University of Texas MD Anderson Cancer Center
  • Welcome and Workshop Overview
    Planning Committee Co-Chairs:
    Karen Basen-Engquist, University of Texas MD Anderson Cancer Center
    Michael Paasche-Orlow, Boston University School of Medicine
  • Keynote Presentation: Leveraging Media for Cancer Education
    Elmer Huerta, Medstar Washington Hospital Center
  • Cultural Competency and Best Practices for Communication with Multicultural Populations
    Marjorie Kagawa Singer, University of California, Los Angeles, Fielding School of Public Health
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
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Panel Discussion
Includes speakers and
  • Deborah Collyar, Patient Advocates in Research
  • Ivis Sampayo, SHARE
9:45 am Break
10:00 am Session 2: Strategies and Best Practices to Improve Communication Across the Cancer Care Continuum
Moderator: Randall Oyer, Penn Medicine Lancaster General Health
  • Strategies for Communicating About Prevention and Screening
    Cathy Meade, Moffitt Cancer Center
  • Strategies to Improve Patient–Clinician Communication in Oncology Care
    Anthony Back, University of Washington School of Medicine
  • Communication with Adolescents and Young Adult Cancer Populations
    Gwendolyn Quinn, New York University Grossman School of Medicine
  • Strategies for Communicating Health Information in Survivorship Care
    Frank Penedo, University of Miami
  • Strategies for Communicating About Palliative and End-of-Life Care
    Nina O’Connor, University of Pennsylvania
Panel Discussion
12:15 pm Lunch
1:15 pm Session 3: Communication Strategies to Build Public Trust and Counter Inaccurate Information About Cancer
Moderator: Nicole Dowling, Centers for Disease Control and Prevention
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
  • Overcoming the Challenge of Online Health Misinformation in Cancer Communication
    Wen-Ying Sylvia Chou, National Cancer Institute
  • Opportunities for Local and State Governments to Promote Effective Public Health Communication About Cancer
    Shalewa Noel-Thomas, District of Columbia Department of Health
  • Strategies to Convey Accurate and Accessible Cancer Information to the Public
    Richard Wender, American Cancer Society
  • 21st-Century Media Strategies to Engage and Inform the Public About Cancer
    Lisa Fitzpatrick, Grapevine Health (“Dr. Lisa on the Street”)
  • Ensuring Responsible Media Communication About Cancer and Strategies to Build Public Trust
    Ivan Oransky, Medscape
Panel Discussion
Includes speakers and James Hamblin, The Atlantic
3:30 pm Break
3:45 pm Session 4: Current and Future Research Strategies for Health Communication in Oncology
Moderator: Lisa Kennedy Sheldon, Oncology Nursing Society
  • The National Cancer Institute’s Portfolio of Research on Health Literacy and Communication in Oncology and Priorities for Future Research
    April Oh, National Cancer Institute
  • Communicating Effectively About Cancer Genetics with Patients of Low Health Literacy
    Galen Joseph, University of California, San Francisco
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
  • Visual Design Strategies to Increase Effectiveness of Cancer Communication
    Allison Lazard, University of North Carolina at Chapel Hill
  • The Role of Health Insurance Literacy in Reducing Patients’ Financial Toxicity
    Mary Politi, Washington University School of Medicine in St. Louis
Panel Discussion
5:30 pm Adjourn Day 1
Evening Reception

JULY 16, 2019

7:30 am Registration and Breakfast
8:00 am Session 5: Procedures, Policies, and Programs to Assess and Address Health Literacy Needs of Patients and Families
Moderator: Michael Paasche-Orlow, Boston University School of Medicine
  • Strategies and Policies for Health Care Organizations to Address the Needs of Patients and Families with Low Health Literacy
    Urmimala Sarkar, University of California, San Francisco
  • Development of Patient Navigation Programs and Their Role in Promoting Health Literacy
    Mandi Pratt-Chapman, The George Washington University Cancer Institute
  • Clinic-Based Programs to Improve Symptom Management and Patient–Clinician Communication
    Heidi Donovan, University of Pittsburgh School of Nursing
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
  • Policies and Incentives for Health Insurance Organizations to Promote Health Literacy and Effective Communication
    Kim Parson, Humana
Panel Discussion
10:00 am Break
10:15 am Session 6: Stakeholder Perspectives and Priorities for the Path Forward
Moderator: Cathy Meade, Moffitt Cancer Center
Panelists
  • Wen-Ying Sylvia Chou, National Cancer Institute
  • Gwen Darien, National Patient Advocate Foundation
  • Darci Graves, Centers for Medicare & Medicaid Services
  • Marjorie Kagawa Singer, University of California, Los Angeles, Fielding School of Public Health
  • Claire Saxton, Cancer Support Community
  • Robert Winn, University of Illinois at Chicago
11:30 am Workshop Wrap-Up
11:45 am Adjourn
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×

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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
Page54
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
Page55
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
Page56
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
Page57
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
×
Page58
Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop Get This Book
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Health literacy is a critical skill for engaging in healthy behaviors to reduce disease risk and improve health outcomes across the continuum of cancer care. However, estimates suggest that more than one-third of the U.S. adult population has low health literacy, and nearly half of all patients with cancer have difficulty understanding information about their disease or treatment. Low health literacy among patients with cancer is associated with poor health and treatment outcomes, including lower adherence to treatment, higher rates of missed appointments, and an increased risk of hospitalization. Low health literacy can also impede informed decision making, especially as cancer care becomes increasingly complex and as patients and their families take more active roles in treatment decisions.

To examine opportunities to improve communication across the cancer care continuum, the National Cancer Policy Forum collaborated with the Roundtable on Health Literacy to host a workshop, Health Literacy and Communication Strategies in Oncology, July 15-16, 2019, in Washington, DC. Patients, patient advocates, clinicians, and researchers, representatives of health care organizations, academic medical centers, insurers, and federal agencies explored the challenges of achieving effective communication in cancer care. This publication summarizes the presentations and discussions of the workshop.

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