Appendix A
Workshop Agenda
Keck Center of the National Academies
Room 100
500 Fifth Street, NW
Washington, DC 20001
| 8:30 a.m. | Opening Remarks and Charge to Workshop Speakers and Participants |
| JEFFREY KAHN | |
| Andreas C. Dracopoulos Director | |
| Robert Henry Levi and Ryda Hecht Levi Professor of | |
| Bioethics and Public Policy | |
| Berman Institute of Bioethics | |
| Professor | |
| Health Policy and Management | |
| Bloomberg School of Public Health | |
| Johns Hopkins University |
SESSION I: DEVELOPING, TESTING, AND INTEGRATING NEW DIGITAL TECHNOLOGIES INTO RESEARCH AND CLINICAL CARE
Session Moderator: Bernard Lo, The Greenwall Foundation
| 8:45 a.m. | DEBORAH ESTRIN |
| Associate Dean and Robert V. Tishman ’37 Professor Cornell NYC Tech |
|
| 9:00 a.m. | MICHELLE MELLO |
| Professor of Law and Medicine | |
| Stanford University |
SESSION II: USING ARTIFICIAL INTELLIGENCE AND MACHINE LEARNING IN RESEARCH AND CLINICAL CARE
Session Moderator: Bernard Lo, The Greenwall Foundation
| 9:15 a.m. | SUCHI SARIA |
| John C. Malone Assistant Professor | |
| Departments of Computer Science and Health Policy and Management | |
| Johns Hopkins University | |
| 9:30 a.m. | PILAR OSSORIO |
| Professor of Law and Bioethics | |
| University of Wisconsin | |
| 9:45 a.m. | Panel Discussion with Speakers from Sessions I and II |
| 10:45 a.m. | Break |
SESSION III: ETHICAL QUESTIONS AROUND NONTRADITIONAL APPROACHES FOR DATA COLLECTION AND USE
Session Moderator: Camille Nebeker, University of California, San Diego
| 11:00 a.m. | ERIC HEKLER |
| Associate Professor | |
| Department of Family Medicine and Public Health | |
| University of California, San Diego | |
| 11:15 a.m. | JOHN WILBANKS |
| Chief Commons Officer | |
| Sage Bionetworks | |
| 11:30 a.m. | Panel Discussion with Speakers and Workshop Participants |
| ERIC HEKLER | |
| JOHN WILBANKS | |
| CAMILLE NEBEKER | |
| Associate Professor | |
| School of Medicine | |
| University of California, San Diego | |
| 12:00 p.m. | Break for Lunch |
SESSION IV: UNDERSTANDING THE IMPACT OF INEQUALITY ON HEALTH, DISEASE, AND WHO PARTICIPATES IN RESEARCH
Moderator: Anita Allen, University of Pennsylvania
| 1:15 p.m. | DOROTHY ROBERTS |
| George A. Weiss University Professor of Law and Sociology | |
| Raymond Pace and Sadie Tanner Mossell Alexander | |
| Professor of Civil Rights | |
| University of Pennsylvania | |
| 1:30 p.m. | VANESSA HIRATSUKA |
| Senior Researcher | |
| Southcentral Foundation | |
| 1:45 p.m. | Panel Discussion with Speakers and Workshop Participants |
SESSION V: CHALLENGES AND OPPORTUNITIES IN THE BIOETHICS RESEARCH WORKFORCE INFRASTRUCTURE AND FOR ENSURING DIVERSITY
Session Moderator: Maria Merritt, Johns Hopkins University
| 2:15 p.m. | BEN WILFOND |
| Director | |
| Treuman Katz Center for Pediatric Bioethics | |
| Seattle Children’s Hospital and Research Institute Professor and Chief | |
| Division of Bioethics and Palliative Care, Department of Pediatrics | |
| University of Washington School of Medicine | |
| 2:20 p.m. | CARLA SAENZ |
| Regional Advisor on Bioethics | |
| Pan American Health Organization | |
| 2:25 p.m. | MICHAEL SUMMERS |
| Professor of Chemistry and Investigator | |
| Howard Hughes Medical Institute | |
| University of Maryland, Baltimore County | |
| 2:30 p.m. | Moderated Discussion with Panelists |
| 3:00 p.m. | Questions from Workshop Participants |
| 3:30 p.m. | Break |
SESSION VI: LOOKING TO THE FUTURE AND ANTICIPATING ETHICAL ISSUES RELATED TO BIOMEDICAL RESEARCH
SESSION OBJECTIVES:
- Discuss the action items covered during the day and what is needed to prepare for and address the challenges of emerging bioethical issues over the next 5–10 years.
Session Moderator: Jeffrey Kahn, Johns Hopkins University
| 3:45 p.m. | Reactions from Stakeholders |
| TANIA SIMONCELLI | |
| Director of Policy for Science | |
| Chan Zuckerberg Initiative | |
| DAN O’CONNOR | |
| Head of Humanities and Social Science | |
| Wellcome Trust | |
| DAVID CASTLE | |
| Executive-in-Residence | |
| Genome Canada | |
| Professor of Public Administration | |
| University of Victoria | |
| 4:00 p.m. | Discussion with Workshop Participants |
| 4:30 p.m. | Insights from the Day’s Discussions |
| JEFFREY KAHN | |
| Andreas C. Dracopoulos Director | |
| Robert Henry Levi and Ryda Hecht Levi Professor of Bioethics and Public Policy | |
| Berman Institute of Bioethics | |
| Professor | |
| Health Policy and Management | |
| Bloomberg School of Public Health | |
| Johns Hopkins University | |
| 4:45 p.m. | Concluding Remarks |
| 5:00 p.m. | Adjourn |
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