Appendix C

Biographical Sketches of Committee Members and Staff

COMMITTEE MEMBERS

Kenneth W. Kizer, M.D., M.P.H. (NAM) (Chair), currently serves as the Chief Health Care Transformation Officer and Senior Executive Vice President for Atlas Research. He has been elected to both the National Academy of Medicine and the National Academy of Public Administration. Dr. Kizer is a highly experienced physician executive whose diverse professional experience includes senior leadership positions in the public and private sectors, academia, and philanthropy. He has previously served as founding president and chief executive officer of the National Quality Forum; Under Secretary for Health, United States Department of Veterans Affairs, and chief executive officer of the nation’s largest health care system, during which time he engineered the internationally acclaimed transformation of the Veterans Healthcare System in the late 1990s; founding Chairman, President, and CEO, Medsphere Systems Corporation, a leading commercial provider of subscription-based health information technology; founding Director, Institute for Population Health Improvement and Distinguished Professor, University of California, Davis; inaugural Chief Medical Officer, California Department of Managed Health Care; Director, California Department of Health Services; and Director, California Emergency Medical Services Authority, where he was the architect of the state’s EMS and trauma care systems in the early 1980s. During his record tenure as California’s top health official he won high praise for orchestrating the state’s response to the then new HIV/AIDS epidemic, implementing California’s famed Tobacco Control Program and the ‘5-a-Day’ for Better Nutrition Program that was later adopted for national implementation, pioneering Medicaid managed care, and restructuring many of the state’s public health programs. He also has served on the U.S. Preventive Services Task Force and as chairman of The California Wellness Foundation. Dr. Kizer has long-standing interests in organ transplantation stemming from his experience as a practicing emergency physician, public health official, and health system leader, as well as his personal experiences as the husband of a multiple times organ transplant recipient. He has a deep understanding of the anxieties and difficulties families experience while waiting for an organ.

Itai Ashlagi, Ph.D., is an associate professor at the Management Science and Engineering Department at Stanford University. Dr. Ashlagi’s research interests include game theory and the design and analysis of marketplaces. He specializes in matching markets, such as kidney paired donation, organ allocation, school choice, and the National Resident Matching Program. Dr. Ashlagi is a recipient of the National Science Foundation CAREER award and is recognized as a Franz Edelman Laureate for his outstanding contribution to kidney paired donation. Before joining Stanford University, he was an assistant professor of operations management at the Massachusetts Institute of Technology’s Sloan School of Management and, prior to that, a postdoctoral researcher at Harvard Business School. Dr. Ashlagi received his Ph.D. in operations research from the Technion-Israel Institute of Technology. Dr. Ashlagi serves as a consultant for Rejuvenate Healthcare, LLC, a company working with health care providers, payers, and patients to facilitate kidney transplants.

Charles Bearden, P.A., CPTC, has been a practicing PA for over 48 years. He has the distinction of being the longest practicing organ recovery/transplant coordinator in the United States with 44 years of coordinating over 2,500 heart, lung, liver, kidney, pancreas, and intestinal organ transplants. Mr. Bearden is currently an advisory board member for Clinical Consulting Associates. Prior to beginning his physician associate studies, Mr. Bearden worked as a cardiovascular technician at Grady Memorial Hospital in Atlanta, GA, and trained under Dr. J. Willis Hurst. Dr. Hurst was starting the PA Program at Emory and encouraged him to apply to the first physician associate program class at the Emory University School of Medicine in 1971. He was accepted and at the age of 19 began his PA education. He served as class vice president and graduated in 1973. He made the highest score in his class on the first National Board of Medical Examiners (NBME) Certifying Examination for PAs held in 1973. In 1974, Mr. Bearden served on the NBME Committee to validate the first PA National Board Examination. He was certified by the National Commission on Certification of Physician Assistants in both primary care in 1975 and in surgery in 1980. In 1978 he co-founded and co-directed the first Organ Bank in Atlanta and remained with the Atlanta branch of DCI until 1988 when he relocated to their Chattanooga, TN office. Mr. Bearden remained with DCI Donor Services until 2002 when he accepted a position as a Traveling Organ Recovery Coordinator with Clinical Consulting Associates (CCA). In 2007, Mr. Bearden became one of the first Virtual Organ Transplant Coordinators in the country for CCA and he continues his work today. He has been certified by the American Board of Transplant Coordination for 34 years. He is a member of the Advisory Board of Organize.org and was a participant in the 2016 White House Summit on Organ Donation and Transplantation. In 2019 he was awarded the Outstanding Civilian Physician Assistant of the Year by the Veterans Caucus of the American Academy of Physician Assistants. “For his concern, caring, and devotion towards patients, profession, and country his commitment is our profession’s future.”

Yolanda T. Becker, M.D. (until September 2021), is a professor of surgery and director of kidney and pancreas transplantation at the University of Chicago. She has served in many roles throughout her career as a Transplant Surgeon. Dr. Becker is a Past President of the OPTN/UNOS (Organ Procurement and Transplant Network/United Network for Organ Sharing) board of directors. She has served on the UNOS corporate affairs committee, the nominating committee and the board governance subcommittee. She has chaired the policy oversight committee. Dr. Becker began her involvement with UNOS as a member of the Membership and Professional Standards Committee, and certification maintenance workgroups, co-chairing the latter. Dr. Becker has served as an elected member of the American Society of Transplantation (AST) board of directors, co-chairing its winter symposium, chairing its

education committee, and additionally serving on the minority affairs committee. She has served on the American Society of Transplant Surgeons (ASTS) scientific studies committee and on the AST/ASTS American Transplant Congress program planning committee. She also has served on the board of directors of the National Kidney Registry. She earned her medical degree at the Johns Hopkins School of Medicine in Baltimore. Dr. Becker has received additional leadership training, completing the Executive Leaders in Academic Medicine program at Drexel University College of Medicine in Philadelphia.

Alexander M. Capron, LL.B. (NAM), is a university professor at the University of Southern California where he teaches public health law and policy, bioethics, and torts, and occupies the Scott H. Bice Chair in Healthcare Law, Policy and Ethics in the Gould School of Law, is professor of medicine and law in the Keck School of Medicine, and is Co-Director of the Pacific Center for Health Policy and Ethics. He previously taught at Georgetown University, the University of Pennsylvania, and Yale University. His ten books and hundreds of articles cover a wide range of topics in law, medicine, and ethics; he has written on human organ transplantation since 1972, including, with Jay Katz, Catastrophic Diseases: Who Decides What (1975, paperback 1978). Capron received a B.A. from Swarthmore College and an L.L.B. from Yale University, where he was an officer of the Yale Law Journal. He was appointed by Congress as the chair of the Biomedical Ethics Advisory Committee, and by President Bill Clinton as a member of the National Bioethics Advisory Commission. From 1980 to 1983 he was the Executive Director of the President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, which was established by Congress and appointed by Presidents Carter and Reagan; in one of its numerous reports, Defining Death: The Medical, Legal and Ethical Issues in the Determination of Death (1981), the commission set forth the Uniform Determination of Death Act which it had developed with three medical and legal organizations. From 2002 to 2006, he served as director of the Department of Ethics, Trade, Human Rights and Health Law at the World Health Organization, where he co-led its global work on human organ, tissue, and cell transplantation. He is an elected member of the National Academy of Medicine, the American Law Institute, and an elected Fellow of both the American Association for the Advancement of Science and the Hastings Center. He has served as President of the American Society for Law, Medicine and Ethics, and of the International Association of Bioethics. Professor Capron currently serves as a member of an advisory panel on ethics and public policy for a National Science Foundation–funded Engineering Research Center (ERC) at the University of Minnesota on Advanced Technologies for the Preservation of Biological Systems (ATP-Bio). The panel examines the issues that may arise in research on means to preserve and use human and non-human cells, tissues, and organs, publishes the results of its analysis, and provides advice to ATP-Bio investigators about such matters but has no operational authority for the ERC or its investigators.

Bernice Coleman, Ph.D., ACNP-BC, FAHA, FAAN, is director of the Nursing Research Department and Performance Improvement Department, assistant professor of medicine and biomedical sciences, and a nurse practitioner for the Heart Transplantation and Mechanical Circulatory Support at the Cedars-Sinai Smidt Heart Institute. She is a member of the American Heart Association Leadership Council on Cardiovascular and Stroke Nursing, past chairperson of the Nursing Health Science and Allied Health Council of the International Society of Heart and Lung Transplantation, and a member of the Nominating Committee for the International Society of Nurses in Genetics. Dr. Coleman was formerly a member of the U.S. Department of Health and Human Services Advisory Committee on Organ Transplantation. She researches health disparities with a focus on exploring the racial outcomes of post–heart

transplantation African and Caucasian Americans. Dr. Coleman is a board-certified Acute Care Nurse Practitioner with a master of science in nursing from the Yale School of Nursing and a Ph.D. from the UCLA School of Nursing. She completed her postdoctoral studies in the HLA Laboratory at Cedars-Sinai and the National Institute of Nursing Research Summer Genetics Institute. She is a fellow of the American Academy of Nursing and has presented her work in heart transplantation nationally and internationally.

Leigh Anne Dageforde, M.D., M.P.H., is an abdominal organ transplant (liver, kidney, and pancreas) and hepatobiliary surgeon at Massachusetts General Hospital who specializes in the care of patients with end-stage kidney and liver disease needing organ transplantation, living kidney donors, pancreas transplant patients, and patients with liver and biliary cancer. Dr. Dageforde attended medical school at Vanderbilt University School of Medicine and completed her general surgery residency at Vanderbilt University Medical Center in Nashville, Tennessee. She completed her fellowship in Abdominal Organ Transplantation and HPB surgery at Washington University in St. Louis. In addition to liver, kidney, and pancreas transplantation, her clinical interests also include living kidney donation and treatment of liver and biliary cancer. Dr. Dageforde completed her master of public health degree at Vanderbilt University School of Medicine with a focus on research in improving access to transplantation. She serves on national committees in both the Association of Academic Surgery and the Americas Hepato-Pancreato-Biliary Association. She has recently been appointed co-chair of the American Society of Transplant Surgeons Pipeline Taskforce, focusing on the development of the rising surgical workforce in transplant surgery with an emphasis on mentorship of medical students and residents.

Sue Dunn, R.N., B.S.N., M.B.A., is former chief executive officer of Donor Alliance. She led the Denver-based organ procurement organization (OPO) serving Colorado and Wyoming for more than 15 years, and retired in June 2020. Ms. Dunn joined Donor Alliance in 1989, after 5 years as an organ procurement coordinator in Minnesota. She served as the organization’s vice president of Organ Procurement Operations/Compliance and Regulatory Affairs before being named CEO in 2004. She also served as OPTN and UNOS board president from 2018 to 2019, leading semiannual meetings of the board, as well as chairing the Executive Committee and UNOS’ Corporate Affairs Committee. She is formerly the president of the Association of Organ Procurement Organizations (AOPO) and has served on numerous industry boards and committees. Until June 2020, Ms. Dunn served in an unpaid capacity on the Board of Directors for AlloSource, a nonprofit tissue processor. Under Ms. Dunn’s leadership, Donor Alliance was recognized as a 2018 Malcolm Baldrige National Quality Awardee, the only nonprofit organization of that year, and only the second organ procurement organization to be recognized. She has earned widespread recognition for her leadership at Donor Alliance, and was awarded the 2021 Baldrige Foundation Excellence in Leadership Award in the nonprofit sector. Ms. Dunn received her bachelor of science, nursing in 1978 from Creighton University and her master’s in business administration in 2005 from Regis University. She currently mentors OPO leaders through the Gift of Life Transplant Institute’s Art and Science of Leadership Program and serves as an unpaid advisor to the UNOS Corporate Affairs Committee.

Robert D. Gibbons, Ph.D. (NAM), is the Blum-Riese Professor of Biostatistics and a Pritzker Scholar at the University of Chicago. He has appointments in the Departments of Medicine, Public Health Sciences, and Comparative Human Development. He also directs the Center for Health Statistics. Dr. Gibbons is a Fellow of the American Statistical Association, the

International Statistical Institute, and the Royal Statistical Society, and is a member of the National Academy of Medicine of the National Academy of Sciences. He has authored more than 300 peer-reviewed scientific papers and six books. His statistical work spans the areas of longitudinal data analysis, item response theory, environmental statistics, and drug safety and has led to thousands of applications in the biological and social sciences. Dr. Gibbons has received life-time achievement awards from the American Statistical Association, the American Public Health Association, and Harvard University. He is a founder of the Mental Health Statistics section of the American Statistical Association. Dr. Gibbons has co-authored many publications, including Full-Information Item Bi-Factor Analysis, Waiting for Organ Transplantation, and Weighted Random-Effects Regression Models with Application to Inter-Laboratory Calibration. He earned his Ph.D. in statistics and psycho-metrics from the University of Chicago, and his B.A. in chemistry and mathematics from the University of Denver.

Elisa J. Gordon, Ph.D., M.P.H., is professor in the Department of Surgery—Division of Transplantation, Center for Health Services and Outcomes Research, and Center for Bioethics and Medical Humanities at Northwestern University Feinberg School of Medicine. Dr. Gordon completed her doctorate in medical anthropology at Case Western Reserve University. Thereafter, she completed a Fellowship in Clinical Medical Ethics at the University of Chicago. Dr. Gordon obtained her master’s degree in public health from the University of Illinois, Chicago, specializing in community health sciences. She is a Fellow of the American Society for Applied Anthropology, and the American Society of Transplantation. Dr. Gordon has received funding from the National Institutes of Health, Health Resources and Services Administration, Department of Defense, and Department of Veterans Affairs as principal investigator for her research on organ transplantation and donation, for reducing health disparities in access to health care and health outcomes, and for developing culturally targeted interventions to enhance patients’ informed consent and treatment decision making. She was recognized as an Expertscape world expert in patient education in 2021. Dr. Gordon served as the chair of the UNOS Ethics Committee from 2017 to 2020, and as an appointed member of the American Society of Transplantation’s Inclusion, Diversity, Equality, and Access to Life Task Force (2020–2021). She currently serves as co-chair of the American Society of Transplantation’s Psychosocial and Ethics Community of Practice, as an Associate Editor of the American Journal of Transplantation, as a member of the Data Safety Monitoring Board for the National Institute of Allergy and Infectious Diseases, and as a member of the federal Advisory Committee on Blood and Tissue Safety and Availability.

Renée Landers, J.D., is a professor of law, Faculty Director of the Health and Biomedical Law Concentration, and Faculty Director of the Master of Science in the Law Life Sciences program at Suffolk University Law School in Boston. She was a Distinguished Visiting Fellow at the National Academy of Social Insurance during her fall 2018 sabbatical leave. She was also the President of the Boston Bar Association from 2003 to2004, and was the first woman of color and the first law professor to serve in that position. Professor Landers has worked in private practice and served as Deputy General Counsel for the U.S. Department of Health and Human Services and as Deputy Assistant Attorney General in the Office of Policy Development at the U.S. Department of Justice during the Clinton Administration. Professor Landers served as chair of the Section of Administrative Law and Regulatory Practice of the American Bar Association from 2016 to 2017 and chaired the Section’s Nominating Committee from 2018 to 2019. She is a Trustee of the Massachusetts General Hospital and a former Trustee of New England Donor Services and the Massachusetts Eye & Ear Infir-

mary. In 2019, she rejoined the board of Planned Parenthood League of Massachusetts and became President of the Board beginning in July 2020. Recently, she co-chaired the Boston Bar Association’s Task Force on Judicial Independence which issued a report in August 2019. She was a member of the Massachusetts Commission on Judicial Conduct and served as Vice Chair of the Commission from 2009 to 2010. She also served on the task force that drafted the revised Massachusetts Code of Judicial Conduct, effective in 2016, and currently is a member of the Committee on Judicial Ethics, which advises judges on compliance with the Code. Previously, she was a member of the Supreme Judicial Court’s committees studying gender, racial, and ethnic bias in the courts.

Mario Macis, Ph.D., is a professor of economics at the Johns Hopkins University Carey Business School. He is also a core faculty member of the Hopkins Business of Health Initiative, affiliate faculty at the Johns Hopkins Berman Institute of Bioethics, and Faculty Research Fellow at the National Bureau of Economic Research. Dr. Macis is an applied economist and his work focuses on how economic incentives interact with psychological factors and social norms to drive individual behavior and policy-relevant outcomes. His main research interests are in prosocial behavior, ethics and economics, and experimental economics. Much of his recent research involved multidisciplinary collaborations with medical and public health scholars and psychologists. He regularly engages with policy makers and practitioners, including national and international agencies as well as associations related to blood, plasma, stem cell, and organ donation. In particular, he conducted studies in partnership with the American Red Cross and the National Marrow Donor Program. His work was published in leading academic journals including the American Economic Review, Management Science, the Journal of Health Economics, the American Economic Journal: Economic Policy, and Science. Dr. Macis has been a consultant for the World Bank, the International Labor Organization, the National Marrow Donor Program, and the United Nations Development Program.

Jewel Mullen, M.D., M.P.H., M.P.A., is Associate Dean for Health Equity at University of Texas at Austin Dell Medical School, as well as an associate professor in the school’s population health and internal medicine departments. She also serves as Director of Health Equity at Ascension Seton to help meet health equity goals across its system. Mullen is an internist, epidemiologist, public health expert, and the former principal Deputy Assistant Secretary for Health in the U.S. Department of Health and Human Services (HHS). While at HHS, she also served as the acting assistant secretary for health and acting director of the National Vaccine Program Office. Prior to HHS, she served as commissioner of the Connecticut Department of Public Health. Her career has spanned clinical, research, teaching, and administrative roles focused on improving the health of all people, especially those who are underserved. She is recognized nationally and internationally as a leader in building effective community-based chronic disease prevention programs and for her commitment to improving individual and population health by strengthening coordination between community, public health and health care systems. A former president of the Association of State and Territorial Health Officials, Dr. Mullen is a current member of the Centers for Disease Control and Prevention’s (CDC’s) Morbidity and Mortality Weekly Report Editorial Board, the ChangeLab Solutions Board of Directors, and the Robert Wood Johnson Foundation’s Policies for Action National Advisory Committee which she chairs. She also is a member of the Study Committee on the Equitable Allocation of COVID-19 Vaccine at the National Academies of Science, Engineering, and Medicine, as well as a former member of the Advisory Committee to the CDC Director and its subcommittee on health disparities. Dr. Mullen received her bachelor’s and

master of public health degrees from Yale University where she also completed a postdoctoral fellowship in psychosocial epidemiology. She graduated from the Mount Sinai School of Medicine, and completed her residency at the Hospital of the University of Pennsylvania. She also holds a master of public administration from Harvard University’s John F. Kennedy School of Government and has completed intensive and advanced bioethics courses at the Kennedy Institute of Ethics.

Neil R. Powe, M.D., M.P.H., M.B.A. (NAM), serves as leader of the University of California San Francisco Medicine Service at the Priscilla Chan and Mark Zuckerberg San Francisco General Hospital, a leading medicine department in a public hospital with strong basic, clinical, and health services research programs focused on major diseases affecting diverse patients locally, nationally, and globally. His interests are in improving discovery, education, and clinical practice in medicine, making academic organizations function better, enhancing scholarship and multidisciplinary collaboration, and developing future talent and leadership in the health professions. He has a particular interest in cultivating young scientists who are addressing major problems in science, health, and health care delivery. His primary intellectual pursuits involve kidney disease patient-oriented research, epidemiology, disparities, and outcomes and effectiveness research. His research unites medicine and public health with the goals of saving and improving the quality of human lives. It involves the knowledge of fundamental discoveries in biology and clinical medicine to advance the health of patients and populations affected by kidney disease. He has conducted research on disparities in organ donation and interventions to improve access to kidney transplantation. Dr. Powe earned his medical degree at Harvard Medical School and his master’s in public health at Harvard School of Public Health. He completed his residency and his master’s in business administration, and was a Robert Wood Johnson Clinical Scholar at the University of Pennsylvania.

Dorry Segev, M.D., Ph.D. (NAM), as of February 1, 2022, is Professor of Surgery and Population Health and Vice Chair for Research in the Department of Surgery, New York University. Previously, Dr. Segev was the Marjory K. and Thomas Pozefsky Professor of Surgery and Epidemiology and Associate Vice-Chair of Surgery at Johns Hopkins University. He is the founder and director of the Epidemiology Research Group in Organ Transplantation, the largest and most prolific group of its kind in the world. Dr. Segev was the first to demonstrate the survival benefit of incompatible kidney transplantation across the United States, and is responsible for the first HIV-to-HIV transplants in the United States. His National Institutes of Health–funded research includes kidney exchange, desensitization, long-term donor risk, access to transplantation, expanding transplantation including HIV+ donors, geographic disparities, posttransplant outcomes, and the intersection between transplantation and gerontology. With a graduate degree in biostatistics, Dr. Segev focuses on novel statistical and mathematical methods for the simulation of medical data, analysis of large health care data-sets, and outcomes research. Dr. Segev is a senior staff member for the Scientific Registry of Transplant Recipients, as well as an advisor to a number of pharmaceutical companies regarding ways to improve solid organ transplantation through machine learning, big data, risk prediction and clinical decision-making tools.

Dennis Wagner, M.P.A., has served as the Principal and Managing Director for Yes and Leadership, LLC since October of 2020. In this capacity he has served as a speaker and session leader at in-person and online events for a wide array of organizations such as the Iowa Healthcare Collaborative, the Gift of Life Institute for Organ Donation and Transplantation, the Association of Organ Procurement Organizations, the National Association of State

Pharmacy Associations, the University of Southern California School of Pharmacy, and others. Dennis and his colleagues also organize and conduct engaging, highly interactive and content-rich board meetings, state and national conferences, and other events aimed principally at supporting leadership development, quality improvement, action learning and results for participating organizations. Dennis currently serves in an uncompensated capacity on the expert advisory panel of the recently formed Kidney Transplant Collaborative and provides expertise in grant applications for new funding opportunities. Dennis is the former director of the iQuality Improvement and Innovation Group in the Centers for Medicare & Medicaid Services (CMS) Center for Clinical Standards and Quality. Dennis and his team support health care providers who are using systematic quality improvement to make care better in tens of thousands of hospitals, nursing homes, clinical practices, and communities across the nation. This team of public and private quality improvers actively work to spread the best practices of the highest performers, so that “best practices become common practice.” Prior to his most recent role at CMS, Dennis served as the Associate Director for Campaign Leadership in the Centers for Medicare & Medicaid Innovation, as Deputy Director, and then Acting Director of the CMS Office of Clinical Standards and Quality. Dennis was successful in supporting cross-departmental work to develop and announce a major national Departmental & Presidential Kidney Health Initiative, which included CMS Innovation Center initiatives to support increased kidney procurement and utilization. While at the Health Resources and Services Administration’s (HRSA’s) Division of Transplantation, Dennis led a series of major national initiatives, including the Organ Donation Breakthrough Collaborative from 2003 to 2007 to increase the donation and transplantation of organs. This work generated unprecedented and lasting national increases in organ donation over this 4-year period. In addition to numerous honors and awards from CMS, the Department of Health and Human Services, HRSA, and the Environmental Protection Agency, Dennis is a recipient of the Samuel J. Heyman Service to America Medal (known as the “Sammies”) 2016 Federal Employee of the Year Award. Dennis received his B.A. and M.P.A. degrees from Montana State University.

James B. Young, M.D., is Cleveland Clinic’s Executive Director of Academic Affairs and Academic Vice-Dean, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University. He also holds the George and Linda Kaufman Chair in the Heart and Vascular Institute. He was the Medical Director of the Kaufman Center for Heart Failure, which he and a former surgical colleague established in 1998 at Cleveland Clinic. After joining Cleveland Clinic in 1995, Dr. Young was named Head of Heart Failure and Cardiac Transplant Medicine. He is an internationally recognized heart failure and heart transplant cardiologist with an interest in mechanical circulatory support devices. Dr. Young has participated in more than 150 clinical trials as an investigator and has served as the United States’ principal or co-principal investigator for many multicenter clinical trials. He has published more than 700 manuscripts and several textbooks. A member of many professional associations, Dr. Young has served as a board member and past president of the International Society of Heart and Lung Transplantation, and as a board member of the Heart Failure Society of America and the American Society of Transplantation. Dr. Young earned a B.A. with honors in biology from the University of Kansas, where he was a resident of Stephenson Scholarship Hall. He matriculated to Baylor College of Medicine in Houston, where he was awarded his medical degree, cum laude, and was elected to the Alpha Omega Alpha medical honor society. He completed his clinical training at Baylor Affiliated Hospitals. Dr. Young is a Fellow of the American College of Cardiology, American College of Physicians, American Heart Association, and the European Society of Cardiology. He is a Diplomat of the American Board of Internal Medicine and the sub-specialty Boards of Cardiovascular Disease and Advanced Heart Failure and Cardiac Transplantation.

NATIONAL ACADEMIES STAFF

Rebecca English, M.P.H. (Study Director), is a Senior Program Officer in the Board on Health Science Policy. She has directed, co-directed, and staffed a number of projects at the National Academies including, most recently, Assessment of Strategies for Managing Cancer Risks Associated with Radiation Exposure During Crewed Space Missions (2021); Necessity, Use, and Care of Laboratory Dogs at the U.S. Department of Veterans Affairs (2020); Temporomandibular Disorders: From Research Discoveries to Clinical Treatment (2020); Physician-Assisted Death: Scanning the Landscape (Proceedings of a Workshop; 2018); and Mitochondrial Replacement Techniques: Ethical, Social, and Policy Considerations (2016). She has also staffed the Forum on Drug Discovery, Development, and Translation in various capacities since 2009 and has worked on wide-ranging projects related to the United States clinical trials enterprise as well as multidrug-resistant tuberculosis throughout the world. Prior to joining the National Academies, she worked on health policy for Congressman Porter J. Goss (FL-14) and for the National Active and Retired Federal Employees Association. Rebecca holds an M.P.H. from the University of Michigan, Ann Arbor, and a B.A. from the University of Notre Dame, majoring in political science.

Amanda Wagner Gee, M.S. (until November 2021), is a Program Officer in the Board on Health Sciences Policy, with the Forum on Drug Discovery, Development, and Translation. With the Forum, she leads and oversees workshops, including a series on Real-World Evidence in drug development and collaboration on genetics in discovery and development with the Roundtable on Genomics and Precision Health. She also manages Action Collaboratives within the Forum, including a project to map the network of drug development. She worked at the National Institutes of Health before coming to the National Academies. There, she was a research biologist at National Center for Advancing Translational Sciences (NCATS), adapting experiments for automation to identify potential small molecule treatments for a variety of degenerative diseases, such as Huntington’s disease and retinal myopathy. Prior to NCATS, she was at the Harvard Stem Cell Institute researching treatments for neuro and muscular degeneration and collaborating regularly with industry, venture capital funders, and patient advocacy groups for her projects. At Harvard, she also oversaw purchasing and regulatory compliance as the laboratory manager. Amanda earned her M.S. degree in cell biology from Duke University and her B.S. degree, summa cum laude, in biology and chemistry from Florida Southern College.

Siobhan Addie, Ph.D. (until August 2021), is a Program Officer on the Board on Health Sciences Policy. Dr. Addie serves as a staff member on the Roundtable on Genomics and Precision Health and the Forum on Regenerative Medicine, two standing, convening activities at the National Academies. In her role at the Academies, she has developed public workshops and resulting publications on a wide range of topics including bioethics, drug discovery and development, implementation science, health disparities, and health care policy and economics. In addition, she oversaw the Genomics and Population Health action collaborative from 2016 to 2019, an ad hoc activity of the Genomics Roundtable. Prior to joining the staff of the National Academies, Dr. Addie was a Senior Program Manager in Life Sciences at the New York Academy of Sciences (NYAS). Before joining the staff at the NYAS, she was a postdoctoral researcher at Rockefeller University, where she used genetic and biochemical approaches to learn about a rare genetic disorder, Fanconi anemia. Dr. Addie received her Ph.D. from the University of Pittsburgh, where her research explored the role of DNA repair enzyme ERCC1-XPF and how its absence can lead to cancer and aging. She earned her B.S. in cell and molecular biology from the State University of New York at Binghamton in 2006.

Meredith Hackmann, B.A., is an Associate Program Officer on the Board on Health Sciences Policy at the National Academies of Sciences, Engineering, and Medicine. She joined the National Academies in 2014 and has facilitated public workshops, action collaboratives, and working groups with the Roundtable on Genomics and Precision Health and the Forum on Regenerative Medicine. She has also provided background research and writing support for proceedings and consensus studies within the Board on Health Sciences Policy on topics such as bioethics, implementing genomic screening programs, digital health, and consumer genomics. Prior to joining the Academies, she was an intern with the U.S. House of Representatives. She has volunteered with several nonprofit organizations on projects related to community health improvement in Central America, refugee and immigration issues, and hospice care. Meredith earned a bachelor’s degree in international studies from the University of Missouri.

Liz Townsend, M.P.H. (until October 2021), is an Associate Program Officer with the Board on Health Sciences Policy. Liz has worked in studies and workshops on topics in public health, social and behavioral sciences research, adolescent development, and economic policy. Recent projects include The Clinical Utility of Compounded Bioidentical Hormone Therapy (2020); A Roadmap to Reducing Child Poverty (2019); The Promise of Adolescence (2019); and A Decadal Survey of the Social and Behavioral Sciences: A Research Agenda for Advancing Intelligence Analysis (2019). Prior to joining the National Academies, Liz managed a youth suicide prevention program for the State of Maine. She holds a B.S. from Radford University and an M.P.H. from the University of Alabama at Birmingham.

Emma Fine, B.A., is an Associate Program Officer primarily working on the Board on Health Sciences Policy (HSP), and has worked at the National Academies for 4.5 years. Within HSP, she currently supports research on the COVID-19 pandemic, including work on Rapid Expert Consultations that directly inform the White House Office of Science and Technology Policy. Emma also works with DBASSE’s Board on Behavioral, Cognitive, and Sensory Sciences on a project that is designing a tool for intelligence analysts to better understand social polling, attitude measurement, and group behavior in non-Western countries, sponsored by the Office of the Director of National Intelligence. Previously, she staffed a project on the Board on Global Health assessing morbidity and mortality from HIV/AIDS in Rwanda. Prior to joining the National Academies, Ms. Fine interned for the U.S. Department of Health and Human Services in the Office of the Assistant Secretary for Preparedness and Response, where she contributed research to the National Health Security Strategy Implementation Plan as well as studying the intersection between terrorism and public health preparedness. In 2016, Ms. Fine graduated from the University of California, Berkeley, where she earned her B.A. in public health and public policy. She is particularly interested in the nexus between public health, intelligence, and national security, and she plans to pursue a degree in national security and enter the field of intelligence.

Deanna Marie Giraldi, M.P.H. (from October 2021), is an Associate Program Officer on the Board on Health Sciences Policy, with the Forum on Drug Discovery, Development, and Translation. Deanna joined the National Academies in 2021. Prior to joining the Academies, Deanna conducted health care research in Cuba, Scotland, Ireland, England, and Costa Rica, specifically on the intersections of trauma-informed care of refugees and mental health access. She has also worked extensively on gun safety policy, including the crafting of recommendations for prevention and response interventions at the intersections of intimate partner violence and gun violence in the United States. Deanna holds two bachelor’s

degrees in biology and political science from Vassar College and is an alumna of the Yale School of Public Health where she completed her master of public health in health policy with a concentration in global health.

Ruth Cooper, B.A. (from June 2021), is an Associate Program Officer with the Board on Health Care Services at the National Academies of Sciences, Engineering, and Medicine. She has worked on several National Academies projects including studies on space radiation and cancer risk, building data capacity for conducting patient-centered outcomes research, cancer and disability, and evidence-based opioid prescribing, as well as workshops on organ transplant and disability, companion animals as sentinels for environmental exposures, and diagnostic excellence in acute cardiac events, cancers, and COVID-19. She had also assisted with numerous National Cancer Policy Forum workshops ranging from topics like the cancer workforce to health literacy. Prior to joining the National Academies, Ruth spent a year volunteering at Open Arms Home for Children in South Africa. She also has experience in Arctic science policy and has worked at the U.S. Arctic Research Commission and participated in three Arctic field cruises. Ruth holds a B.A. from the University of Notre Dame in neuroscience and behavior with a minor in Mediterranean Middle Eastern studies, and is currently pursuing her M.A. in international science and technology policy at George Washington University.

Kendall Logan, B.A. (until July 2021), is a Senior Program Assistant for the Health and Medicine Division’s Board on Health Sciences Policy. She joined the National Academies in 2018, and staffed two consensus studies: the Health and Medical cons of Social Isolation and Loneliness in Older Adults, and Temporomandibular Disorders (TMD): From Research Discoveries to Clinical Treatment. She also supports the standing committee on Medical and Epidemiological Aspects of Air Pollution on U.S. Government Employees and their Families. Kendall received her B.A. in anthropology with a public health minor from Haverford College and is currently pursuing a master of public health degree from Columbia University.

Andrew Pope, Ph.D., is Director of the Board on Health Sciences Policy. He has a Ph.D. in physiology and biochemistry from the University of Maryland; he has been a member of the National Academies of Sciences, Engineering, and Medicine staff since 1982, and of the Health and Medicine Division staff since 1989. His primary interests are science policy, biomedical ethics, and environmental and occupational influences on human health. During his tenure at the Academies, Dr. Pope has directed numerous studies on topics that range from injury control, disability prevention, and biologic markers, to the protection of human subjects of research, National Institutes of Health priority-setting processes, organ procurement and transplantation policy, and the role of science and technology in countering terrorism. Since 1998, Dr. Pope has served as Director of the Board on Health Sciences Policy which oversees and guides a program of activities that is intended to encourage and sustain the continuous vigor of the basic biomedical and clinical research enterprises needed to ensure and improve the health and resilience of the public. Ongoing activities include Forums on Neuroscience, Genomics, Drug Discovery and Development, and Medical and Public Health Preparedness for Catastrophic Events. Dr. Pope is the recipient of the Health and Medicine Division’s Cecil Award and the National Academy of Sciences President’s Special Achievement Award.

Sharyl Nass, Ph.D., serves as Director of the Board on Health Care Services and Director of the National Cancer Policy Forum at the National Academies of Sciences, Engineering,

and Medicine. The National Academies provide independent, objective analysis and advice to the nation to solve complex problems and inform public policy decisions related to science, technology, and medicine. To enable the best possible care for all patients, the Board undertakes scholarly analysis of the organization, financing, effectiveness, workforce, and delivery of health care, with emphasis on quality, cost, and accessibility. The Cancer Forum examines policy issues pertaining to the entire continuum of cancer research and care. For more than 2 decades, Dr. Nass has worked on a broad range of health and science policy topics that includes the quality and safety of health care and clinical trials, developing technologies for precision medicine, and strategies for large-scale biomedical science. She has a Ph.D. in cell biology from Georgetown University and undertook postdoctoral training at the Johns Hopkins University School of Medicine, as well as a research fellowship at the Max Planck Institute in Germany. She also holds a B.S. and an M.S. from the University of Wisconsin-Madison. She has been the recipient of the Cecil Medal for Excellence in Health Policy Research, a Distinguished Service Award from the National Academies, and the Institute of Medicine staff team achievement award as team leader.