Enhancing NIH Research on Autoimmune Disease (2022)

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Appendix C Open Session Agendas Wednesday, November 18, 2020, 1:30 – 4:00 p.m. (ET) Web Conference Open Session Agenda 1:30 – 1:45 Welcome and introductions Bernard Rosof, M.D., Committee Chair, and Committee 1:45 – 2:00 Sponsor charge to the committee Ellen Goldmuntz, M.D., Ph.D., Section Chief, Rheumatologic Autoimmune Disease Section, National Institute of Allergy and Infectious Diseases (NIAID), NIH 2:00 – 2:10 Study background Alex Keenan, Clerk, Subcommittee on Labor, Health and Hu- man Services, Education and Related Agencies, Senate Commit- tee on Appropriations (Minority Staff) 455 PREPUBLICATION COPY—Uncorrected Proofs 

456 ENHANCING NIH RESEARCH ON AUTOIMMUNE DISEASE 2:10 – 2:25 Overview of NIH Institutes and Centers and funding structure James McNamara, M.D., Section Chief, Autoimmunity and Mucosal Immunology Branch, Division of Allergy, Immunology and Transplantation, NIAID, NIH 2:25 – 3:05 State of autoimmune diseases in the U.S. Virginia Ladd, Founder, Past President Emerita, Advisor to the President, American Autoimmune Related Diseases Association 3:05 – 3:45 Autoimmune disease research in the U.S. Jane Buckner, M.D., President, Benaroya Research Institute at Virginia Mason 3:45 – 4:00 Q&A 4:00 Adjourn Open Session February 1 – 2, 2021 Full Schedule in Eastern Time Web Conference Meeting Agenda1 February 1, 2021, 1:15 – 4:40p OPEN SESSION 1:15 – 1:30 Open Session Begins 1:30 – 1:45 Welcome and introductions Bernard Rosof, Committee Chair and Committee 1:45 – 2:10 NIH Extramural Grant Review Process – Center for Scientific Review (CSR) Deborah Hodge, Ph.D., Scientific Review Officer, Division of Physiological and Pathological Sciences, CSR, NIH 2:10 – 2:35 Advancing Women’s Health Research at NIH Lisa Begg, Dr.P.H., R.N., Senior Research Program Officer, Office of Research on Women’s Health (ORWH), NIH PREPUBLICATION COPY—Uncorrected Proofs 

APPENDIX C 457 2:35 – 2:45 Break 2:45 – 2:55 Panel Discussion: NIH Autoimmune Research across ICs Introductions – Committee Moderator 2:55 – 3:10 James McNamara, M.D., Section Chief, Autoimmunity and Mucosal Immunology Branch, Division of Allergy, Immunology and Transplantation, NIAID, NIH 3:10 – 3:25 Marie Mancini, Ph.D., Program Director, Systemic Autoimmune Disease Biology Program, National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS), NIH 3:25 – 3:40 Ursula Utz, Ph.D., Program Director, Neuroimmunology, Autoimmunity, Neurovirology, Multiple Sclerosis, National Institute of Neurological Disorders and Stroke (NINDS), NIH 3:40 – 3:55 Ruth Kirby, Clinical Trials Specialist, National Heart, Lung, and Blood Institute (NHLBI), NIH 3:55 – 4:30 Discussion 4:30 Adjourn February 2, 2021, 1:00 – 3:15p OPEN SESSION 1:00 – 1:05 Welcome Bernard Rosof, Committee Chair 1:05 – 1:30 Advances and Opportunities in Multiple Sclerosis Nicholas LaRocca, Ph.D., Consultant, National Multiple Sclerosis Society (NMSS) 1:30 – 1:55 Advances and Opportunities in Autoimmune Arthritis Emily von Scheven, M.D., M.A.S., Chief of Rheumatology, UCSF Benioff Children’s Hospital PREPUBLICATION COPY—Uncorrected Proofs 

458 ENHANCING NIH RESEARCH ON AUTOIMMUNE DISEASE Mary K. Crow, M.D., Director, Autoimmunity and Inflammation Research Program; Co-Director, Mary Kirkland Center for Lupus Research at the HSS Research Institute 1:55 – 2:20 Advances and Opportunities in Type 1 Diabetes Sanjoy Dutta, Ph.D., Vice President for Research, Juvenile Diabetes Research Foundation 2:20 – 2:45 Advances and Opportunities in Inflammatory Bowel Disease Caren Heller, M.D., M.B.A., Chief Scientific Officer, Crohn’s & Colitis Foundation 2:45 – 3:15 Discussions 3:15 Adjourn March 3 – 5, 2021 Public Session Web Conference Meeting Agenda Thursday, March 4, 2021, 1:30 – 5:30 pm (EST) 1:30 Public Session Begins 1:30 – 1:45 Welcome and introductions Bernard Rosof, Committee Chair and Committee PREPUBLICATION COPY—Uncorrected Proofs 

APPENDIX C 459 NIH Intramural Research for Autoimmune Diseases 1:45 – 2:10 Daniel Kastner, M.D., Ph.D., Scientific Director, Division of Intramural Research, NHGRI, NIH 2:10 – 2:35 Karyl S. Barron, M.D., Deputy Director, Division of Intramural Research, NIAID, NIH 2:35 – 3:00 Lisa G. Rider, M.D., Acting Head, Environmental Autoimmunity Group, Clinical Research Branch, NIEHS, NIH 3:00 – 3:25 John O’Shea, Ph.D., Scientific Director and Director of Intramural Research Program, NIAMS, NIH 3:25 – 3:40 Break NIH Extramural Research for Autoimmune Diseases Across ICs 3:40 – 4:05 Lisa Spain, Ph.D., Program Director, Division of Diabetes, Endocrinology, and Metabolic Diseases, NIDDK, NIH 4:05 – 4:30 Michael C. Humble, Ph.D., Program Administrator, Genes, Environment and Health Branch, Division of Extramural 4:30 – 4:55 Research and Training, NIEHS, NIH Nishadi Rajapakse, Ph.D., M.H.S., Program Director, Transdisciplinary Collaborative Centers on Precision Medicine, 4:55 – 5:30 Centers of Excellence on Environmental Health Disparities, Division of Scientific Programs, NIMHD, NIH 5:30 Discussion Adjourn PREPUBLICATION COPY—Uncorrected Proofs 

460 ENHANCING NIH RESEARCH ON AUTOIMMUNE DISEASE Friday, March 5, 2021, 1:00 – 3:15 pm (EST) 1:00 Public Session Begins 1:00 – 1:05 Welcome Bernard Rosof, Committee Chair 1:05 – 1:30 Advances and Opportunities in Lupus Judith A. James, M.D, Ph.D, Vice President of Clinical Affairs, Member & Chair, Arthritis & Clinical Immunology, Oklahoma Medical Research Foundation; Associate Vice Provost for Clinical and Translational Science, Professor of Medicine, Professor of Pathology, Oklahoma University Health Sciences Center 1:30 -1:55 Advances and Opportunities in Dermatological Autoimmune Diseases Victoria P. Werth, M.D., Professor of Dermatology at the Hospital of the University of Pennsylvania and the Veteran’s Administration (V.A.) Medical Center; Chief, Dermatology, Philadelphia V.A. Hospital 1:55 – 2:20 Advances and Opportunities in Autoimmune Thyroid Diseases Yaron Tomer M.D., Anita and Jack Saltz Chair in Diabetes Research Professor and Chair, Department of Medicine Albert Einstein College of Medicine, Montefiore Medical Center 2:20 – 2:45 Advances and Opportunities in Primary Biliary Cholangitis Mark Pedersen, M.D., Assistant Professor of Medicine, Division of Digestive and Liver Disease, University of Texas Southwestern Medical Center 2:45 – 3:15 Discussion 3:15 Adjourn PREPUBLICATION COPY—Uncorrected Proofs