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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
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Appendix B

Workshop Agenda

Monday, March 21, 2022
Eastern Daylight Time

10:30 a.m. Welcome and Workshop Overview
WALTER R. FRONTERA, University of Puerto Rico School of Medicine
Workshop Planning Committee Chair
Sponsor Remarks from the Social Security Administration
STEVE ROLLINS, Acting Associate Commissioner, Office of Disability Policy, Social Security Administration
VINCENT NIBALI, Policy Analyst, Office of Medical Policy, Office of Disability Policy, Social Security Administration
10:50 a.m. Session 1: Overview of Long COVID and Disability
Moderator:
WALTER R. FRONTERA, University of Puerto Rico School of Medicine
What Is Long COVID?
STUART KATZ, NYU Langone Health
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
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Long COVID and the Burden of Disease
THEO VOS, University of Washington, and SARAH WULF HANSON, University of Washington
Pandemic-Related Effects on Work and the U.S. Labor Force
RAKESH KOCHHAR, Pew Research Center
Panel Discussion
12:15 p.m. Lunch Break
1:00 p.m. Session 2: Postacute Sequelae of SARS-CoV-2 Infection and Implications for Recovery
Moderator:
STEVEN DEEKS, University of California, San Francisco
Neurological and Neuromuscular Sequelae
AVINDRA NATH, National Institute of Neurological Disorders and Stroke, National Institutes of Health
Neuropsychiatric Sequelae
EMILY TROYER, University of California, San Diego
Cardiovascular Sequelae and Autonomic Syndrome
PETER NOVAK, Brigham and Women’s Hospital
Pulmonary Sequelae
ANN MARIE PARKER, Johns Hopkins Medicine
Musculoskeletal, Fatigue, and Pain Sequelae
ANTHONY KOMAROFF, Brigham and Women’s Hospital
Panel Discussion
2:30 p.m. Break
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
2:45 p.m. Session 3: Patient and Caregiver Perspectives on Living with Long COVID
Moderator:
MANSOOR MALIK, Johns Hopkins University School of Medicine
Participants:
  • ANGELA MERIQUEZ VÁZQUEZ
  • JUAN LEWIS
  • LUCAS DENAULT AND KARIN DENAULT
  • TREVA TAYLOR
Panel Discussion
3:50 p.m. Closing Remarks
WALTER R. FRONTERA, University of Puerto Rico School of Medicine
Workshop Planning Committee Chair
4:00 p.m. Adjourn Day 1

Tuesday, March 22, 2022
Eastern Daylight Time

10:30 a.m. Welcome and Day 2 Overview
WALTER R. FRONTERA, University of Puerto Rico School of Medicine
Workshop Planning Committee Chair
10:35 a.m. Session 4: Long-Term Impairments and Functional Limitations Related to Long COVID
Moderator:
LAURA MALONE, Kennedy Krieger Institute
ClinFIT COVID-19: A Functioning-Based Tool for Clinical Practice and Research
GEROLD STUCKI, University of Lucerne
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Long-Term Functional Limitations Related to Long COVID in Adults
LAURA TABACOF, Mount Sinai
Functional Limitations and Impairments After COVID-19 ICU Stay
ALBA MIRANDA AZOLA, Johns Hopkins Medicine
Long-COVID and Mental Health Effects
MONICA KURYLO, University of Kansas Medical Center
Considerations in Child and Adolescent Functioning
ALICIA JOHNSTON, Boston Children’s Hospital
Panel Discussion
12:00 p.m. Lunch Break
12:45 p.m. Session 5: Clinical Practices and System Approaches for Improving Health and Recovery from Long COVID
Moderator:
MONICA VERDUZCO-GUTIERREZ, UT Health San Antonio
Clinical Guidance Statements
STEVEN FLANAGAN, NYU-Langone Health
Integrated Care Models for Treating Adults and Children
BENJAMIN ABRAMOFF, University of Pennsylvania
AMANDA MORROW, Kennedy Krieger Institute
Overcoming Barriers to Health and Social Inequities in Long COVID Care
ZACKARY BERGER, Johns Hopkins Medicine
Panel Discussion
2:05 p.m. Break
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
2:15 p.m. Session 6: Future Directions in the Treatment of Long COVID
Moderator:
ANDREA LERNER, National Institute of Allergy and Infectious Diseases, National Institutes of Health
Emerging Therapies
STEVEN DEEKS, University of California, San Francisco
Panel Discussion
Panelists:
  • STEVEN DEEKS, University of California, San Francisco
  • WALTER R. FRONTERA, University of Puerto Rico School of Medicine
  • AVINDRA NATH, National Institute of Neurological Disorders and Stroke, National Institutes of Health
3:00 p.m. Closing Remarks
WALTER R. FRONTERA, University of Puerto Rico School of Medicine
Workshop Planning Committee Chair
3:15 p.m. Adjourn Workshop
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×

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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Page 103
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Page 104
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Page 105
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Page 106
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Page 107
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26619.
×
Page 108
Next: Appendix C: Biographical Sketches of Workshop Planning Committee Members and Speakers »
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'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients after a SARS-CoV-2 infection. The most common symptoms include fatigue, headache, brain fog, shortness of breath, hair loss, and pain. At this time, there are many knowledge gaps related to Long COVID, including the prevalence of the condition, the impact of the symptoms on survivors' ability to function, and the long-term course of the condition. While many individuals with Long COVID recover within one year, others experience little or no decrease in symptom severity over time.

Long COVID symptoms can affect a person's ability to work and otherwise function in daily life, so people with the condition may need to utilize programs such as Social Security Disability Insurance (SSDI) and the Supplemental Security Income Program (SSI). The Social Security Administration (SSA), which administers both of these programs, requested that the National Academies of Sciences, Engineering, and Medicine host a public workshop to discuss research into the long-term health effects of COVID-19, their impacts on individuals and populations, and how the SSDI and SSI programs can support individuals who suffer disability as a result of Long COVID. This publication summarizes the presentation and discussion of the workshop.

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