Appendix A
Workshop Agenda
Supporting Children with Disabilities: Lessons from the Pandemic
June 13, 14, and 15, 2022
MONDAY, JUNE 13, 2022 [12:00–3:30 PM ET]
Note: All times listed in Eastern Time
Purpose
- Explore promising approaches and innovative strategies employed during the pandemic to address challenges faced by children with disabilities and their families, including access to clinical service and treatment needs, home caregiving, and mental health treatment with an emphasis on underserved/under resourced children and families
- Consider policies and/or practices that might be sustained or implemented beyond the pandemic to support children with disabilities and their families.
12:00–12:20—Welcome and Introduction
Amy Houtrow, Committee Chair
12:20–12:55—Lived Expertise: Children with Disabilities and Caregivers
Emily Cowen, Youth as Self-Advocates; Kids as Self-Advocates
Kasey Hodges, Arkansas Support Network
Roseani Sanchez, Family Voices National
Doris Tellado
Lauren Ware
Moderator: Emily Hotez, Committee Member
12:55–1:40—Panel Presentation: Hospital and Outpatient Settings - Telehealth
Rebecca Shaffer, Cincinnati Children’s Hospital
Tina Smith, University of Florida Health—Jacksonville and Dr. Rita Nathawad, University of Florida, College of Medicine-Jacksonville
Chris Stille, Colorado Children’s Hospital
Alyssa Ware, Family Voices
1:40–1:55—Questions, Answers, Reflections
Moderator: Marc J. Tassé, Committee Member
1:55–2:15 BREAK
2:15–3:00—Panel Presentation: School and Educational Settings
Dr. Angel Fettig, University of Washington, College of Education
Dr. Marcia Montague, Texas A&M University
Dr. Karrie Shogren, Kansas University Center on Developmental Disabilities; Schiefelbusch Life Span Institute; University of Kansas
Dr. Ani Whitmore, Scott, Whitmore & Company
3:00–3:20—Questions, Answers, Reflections
Moderator: Natasha Strassfeld, Committee Member
END OF DAY 1
DAY TWO—TUESDAY, JUNE 14, 2022 [12:00–3:20 PM ET]
Note: All times listed in Eastern Time
12:00–12:05—Welcome and Introduction
Amy Houtrow, Committee Chair
12:05–12:50—Panel Presentation: Home Care Settings
Dr. Carolyn Foster, Northwestern University Feinberg School of Medicine; Children’s Hospital of Chicago
Nichole Goble, Caregiver Action Network
Shasta Kearns Moore, Medical Motherhood
Caprice Knapp, State of North Dakota Medicaid Director
Dr. Rebecca Seltzer, Johns Hopkins University School of Medicine, Berman Institute of Bioethics
12:50–1:05—Questions, Answers, Reflections
Moderator: Chanda Jones, Committee Member
1:05–1:55—Panel Presentation: State and Federal Policy
Dr. Rishi Agrawal, La Rabida Children’s Hospital; Northwestern University
Dr. Helen DuPlessis, Health Management Associates
Dr. Dennis Kuo, University of Buffalo Jacobs School of Medicine and Biomedical Sciences
Dr. Shea Tanis, Kansas University Center on Developmental Disabilities; Schiefelbusch Life Span Institute; University of Kansas
1:55–2:10—Questions, Answers, Reflections
Moderator: Amy Houtrow, Chair
2:10–2:25 BREAK
2:25–3:05—Panel Presentation: Health Equity - Promising Practices
Dr. Molly Fuentes, Seattle Children’s Hospital
Dr. Kristina Lopez, Arizona State University School of Social Work
Dr. Kristin Sohl, University of Missouri- Columbia School of Medicine
Dr. Jean Leclerc Raphael, Baylor College of Medicine
3:05–3:20—Questions, Answers, Reflections
Moderator: Yetta Myrick, Committee Member
END OF DAY 2
DAY THREE—WEDNESDAY, JUNE 15, 2022 [12:00–3:00 PM ET]
Note: All times listed in Eastern Time
12:00–12:30—Welcome and Introduction
Amy Houtrow, Committee Chair
12:30–1:05—Panel Presentation: Public Health/Emergency Planning
Margarita Hunnefield, CIL Jacksonville
Dr. Denise Nunez, UCLA Health Preventive Medicine
Leslie Rogers, Oregon Special Education Council and Universal Healthcare Task Force
Dr. Laura Stough, Texas A&M University
1:05–1:20—Questions, Answers, Reflections
Moderator: Marc J. Tassé, Committee Member
1:20–1:35 BREAK
1:35–2:05—Panel Presentation: Planning for Recovery
Dr. Renee Boynton-Jarrett, Boston Medical Center and Vital Village Community Engagement Network
Dr. Kristen Choi, University of California, Los Angeles School of Nursing
Dr. Ian Ferguson, Yale University School of Medicine
Dr. Maurice Sholas, Sholas Medical Consulting, LLC
2:05–2:30—Questions, Answers, Reflections
Moderator: Natasha Strassfeld, Committee Member
2:30–3:00—Closing Reflections
Moderator: Amy Houtrow, Committee Chair
END OF DAY 3
