Proceedings of a Workshop Series

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This activity was supported by AWD-001082 between the National Academy of Sciences and the U.S. State Department. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number-13: 978-0-309-70662-9
International Standard Book Number-10: 0-309-70662-9
Digital Object Identifier: https://doi.org/10.17226/27156

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Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2024. Engaging Scientists in Central Asia on Life Science Data Governance Principles: Proceedings of a Workshop Series. Washington, DC: The National Academies Press. https://doi.org/10.17226/27156.

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ENGAGING SCIENTISTS IN CENTRAL ASIA ON LIFE SCIENCE DATA GOVERNANCE

WORKSHOP SERIES PLANNING COMMITTEE

LUSINE POGHOSYAN (Chair), Columbia University, United States

DAMIRA OMURZAKOVNA ASHIRALIEVA, National Scientific-Practical Center, Ministry of Health, Kyrgyzstan

SHOLPAN ASKAROVA, Nazarbayev University, Kazakhstan

MARGARITA YULAYEVNA ISHMURATOVA, Buketov Karaganda University, Kazakhstan

YANN JOLY, McGill University, Canada

FAINA LINKOV, Duquesne University, United States

JAILOBEK OROZOV, A. Duisheev Kyrgyz Research Institute of Veterinary Science, Kyrgyzstan

VASILIKI RAHIMZADEH, Baylor College of Medicine, United States

KRYSTAL TSOSIE, Arizona State University, United States

JOHN COLIN URE, Access Partnership, Singapore

GAUTHAM VENUGOPALAN, Gryphon Scientific, United States

WEI ZHENG, Vanderbilt University, United States

Staff

TRISHA TUCHOLSKI, Program Officer, Board on Life Sciences

KAVITA BERGER, Director, Board on Life Sciences

RITA GUENTHER, Senior Program Officer, International Networks and Cooperation

CARMEN SHAW, Associate Program Officer, International Networks and Cooperation

NAM VU, Senior Program Assistant, Board on Life Sciences

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Reviewers

This proceedings of a workshop series was reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the National Academies of Sciences, Engineering, and Medicine in making each published proceedings as sound as possible and to ensure that it meets the institutional standards for quality, objectivity, evidence, and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process.

We thank the following individuals for their review of this proceedings:

Although the reviewers listed above provided many constructive comments and suggestions, they were not asked to endorse the content of the proceedings nor did they see the final draft before its release. The review of this proceedings was overseen by coordinator Margaret E. Kosal of Georgia Institute of Technology. She was responsible for making certain that an independent examination of this proceedings was carried out in accordance with standards of the National Academies and that all review comments were carefully considered. Responsibility for the final content rests entirely with the rapporteurs and the National Academies.

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Acknowledgments

The workshop planning committee and the National Academies of Sciences, Engineering, and Medicine staff team would like to thank our colleagues at the State Department and the International Science and Technology Center in Central Asia for their assistance in soliciting experts and sharing information about the project. We would also like to thank the National Academies Research Center for early assistance in a search for subject matter experts for this project. Finally, we would like to thank our interpreters, translators, and editors from Language Exchange Translations, LLC, specifically Irina Krasnokutsky, Irina Paramonova, and Pavel Palazhchenko and their colleagues, whose exceptional expertise and professionalism facilitated communications across languages and cultures, and ensured that this project was truly collaborative from start to finish.

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Contents

OVERVIEW

INTRODUCTION

1 THE LIFE SCIENCE RESEARCH LANDSCAPE IN CENTRAL ASIA

Life Science Data Governance: Principles, Policies, and Practices

Life Science Research in Central Asia

Summary

2 DATA GOVERNANCE PRINCIPLES FOR LIFE SCIENCE RESEARCH ACROSS THE GLOBE

Data Governance Principles for Life Science

Data Governance across the Globe

Approaches to Data Governance

Summary

3 OPPORTUNITIES AND CHALLENGES FOR LIFE SCIENCE DATA SHARING

Indigenous Knowledge, Biological Stewardship, and Community Data Governance

Challenges of Traditional Knowledge Preservation and Protection in Central Asia

GBIF: Kick-Starting the Biodiversity Publication Process for Tajikistan

Balancing Risks and Benefits

Summary

4 LIFE SCIENCE DATA GOVERNANCE IN PRACTICE

Life Science Data Governance in Central Asia

Life Science Data Governance in Practice

Summary

5 EXAMPLES OF EXISTING AND NEEDED PRACTICES FOR CYBER- AND DATA SECURITY IN THE LIFE SCIENCES

Cyber Risk Management in Life Science Research

Understanding Social Engineering

Data and Information Security in Central Asia

Summary

6 IMPLEMENTING BEST PRACTICES FOR LIFE SCIENCE AND BIOLOGICAL DATA GOVERNANCE

Highlights from the Workshop Series

Key Learnings and Regional Context

Examples of Potential Next Steps

REFERENCES

APPENDIX A: STATEMENT OF TASK

APPENDIX B: WORKSHOP AGENDAS

APPENDIX C: WORKSHOP PLANNING COMMITTEE BIOGRAPHIES

APPENDIX D: WORKSHOP PARTICIPANTS

APPENDIX E: COMMISSIONED PAPERS

APPENDIX F: DATA GOVERNANCE RESOURCES

FIGURES

1 The Data Life Cycle

2 Foundational Principles of Cybersecurity

3 An Organization’s Cybersecurity Journey

4 Map of Kyrgyzstan

Acronyms and Abbreviations

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