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Suggested Citation:"References and Bibliography." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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References and Bibliography

Chapman, A.R., ed. 1997 Health Care and Information Ethics: Protecting Fundamental Human Rights. Kansas City, KS: Sheed and Ward.

Fanning, J. 1998 Privacy and Research: Public Policy Issues. Seminar presentation in Statistical Seminar Series on Confidentiality, Washington, DC, October 15. 1998. Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services.

Federal Committee on Statistical Methodology 1978 Report on Statistical Disclosure-Avoidance Techniques. Statistical Policy Working Paper 2. Subcommittee on Disclosure-Avoidance Techniques. Washington, DC: U.S. Department of Commerce.

Gostin, L.O. 1995 Health information privacy. Cornell Law Review 80:451-528.

Interagency Confidentiality and Data Access Group 1999 Checklist on Disclosure Potential of Proposed Data Releases, Statistical Policy Office, U.S. Office of Management and Budget.

Jabine, T.B. 1993a Procedures for restricted access data. Journal of Official Statistics 9(2):537-589.

1993b Statistical disclosure limitation practices of United States Statistical Agencies. Journal of Official Statistics 9(2):427-454.

Juster, F.T. 1991 Discussion. American Statistical Association 1991 Proceedings of the Social Sciences Section. Alexandria, VA.: American Statistical Association.

National Research Council 1979 Privacy and Confidentiality as Factors in Survey Response. Panel on Privacy and Confidentiality as Factors in Survey Response, Committee on National Statistics, Committee on Behavioral and Social Sciences and Education. Washington, DC:National Academy Press

Suggested Citation:"References and Bibliography." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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National Research Council and Social Science Research Council 1993 Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics. Panel on Confidentiality and Data Access, George T. Duncan, Thomas B. Jabine, and Virginia A. de Wolf, eds. Committee on National Statistics. Washington, DC:National Academy Press.

Suggested Citation:"References and Bibliography." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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Page 51
Suggested Citation:"References and Bibliography." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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Page 52
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Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risks—both absolute and relative—created by researchers and research data, as well as by other data users and other types of data.

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