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Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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APPENDIX

B

Workshop Agenda

Thursday, October 14, 1999

8:45

WELCOME AND OPENING REMARKS

Barbara Boyle Torrey, Director, Commission on Behavioral and Social Sciences and Education

Miron Straf, Director, Committee on National Statistics

Richard Suzman, Behavioral and Social Research Program,National Institute on Aging

INTRODUCTION AND WORKSHOP PREVIEW

Norman Bradburn, Workshop Chair

9:05

SESSION I. Linked longitudinal databases: Achievements to date and prospects

  1. TOPIC 1: Case Studies

    Paper 1: HRS application: “How Policy Variables Influence the Timing of Social Security Disability Applications”

    • Richard Burkhauser, Cornell University

    • Robert Weathers, Cornell University

Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×

Paper 2: NLS-Y application: “Confidential Data Files Linked to the National Longitudinal Survey of Youth, 1979: A Case Study”

  • Rachel Gordon, University Illinois at Chicago

  1. TOPIC 2: Risks and Rewards of Data Linking

    Presentation: “Protecting Confidentiality of Linked Datasets: Don't Throw the Baby Out with Bathwater”

    • J. Michael Dean, University of Utah

  2. TOPIC 3: Report from the Conference on the Value of Linked Data

    Presentation: Robert Willis, University of Michigan

  3. GENERAL DISCUSSION OF PAPERS/PRESENTATIONS

11:10

SESSION II. Legal and ethical requirements for dissemination: Recent and prospective developments

  1. TOPIC 1: Philosophical Issues

    Paper: “Regulating Access to Research Data Files: Ethical Issues”

    • Mary Ann Baily, George Washington University

    Discussant: Robert Boruch, University of Pennsylvania

  2. TOPIC 2: Recent and Prospective New Legislation

    Paper: Donna Eden, U.S. Department of Health and Human Services

    Discussant: Robert Gellman, Privacy and Information Policy Consultant

  3. TOPIC 3: Problems and Issues of Institutional Review Boards

    Paper: Thomas Puglisi/Jeffery Cohen, Office for Protection from Research Risks, National Institutes of Health

  4. GENERAL DISCUSSION, led by Norman Bradburn

 
Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×

2:00

SESSION III. Procedures for releasing public-use microdata files

  1. TOPIC 1: Agency Practices for Releasing Public-Use Micro-Data Files

    Presentation: “Checklist on Disclosure Potential of Proposed Data Releases,” developed by the Interagency Confidentiality and Data Access Group

    • Alvan Zarate, National Center for Health Statistics

    Paper: “A Survey of Statistical Disclosure Limitation (SDL) Practices of Organizations that Distribute Public Use Microdata”

    • Thomas Jabine, Private Consultant

    • Alice Robbin, Indiana University

    • Heather Koball, Committee on National Statistics

    Discussant: Erik Austin, Inter-university Consortium for Political and Social Research

    Paper: “Multiple Imputation in the Survey of Consumer Finances”

    • Arthur Kennickell, Federal Reserve Board

    Discussant: Stephen Fienberg, Carnegie Mellon University

  2. TOPIC 2: Quantification of Disclosure Risk

    Paper: Sallie Keller-McNulty, Los Alamos National Laboratory

    • George Duncan, Carnegie Mellon University

    Discussant: Latanya Sweeney, Carnegie Mellon University

4:30

GENERAL DISCUSSION

5:00

CLOSING COMMENTS AND ADJOURN

Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×

Friday, October 15, 1999

9:00

SESSION IV. Procedures for restricting access: who gets access to micro-data, and under what conditions

  1. TOPIC: Use of restricted access procedures for major linked longitudinal databases

    Paper: “Review of Data Licensing Agreements at U.S. Government Agencies and Research Organizations”

    • Paul Massell, U.S. Census Bureau

    Discussant: Mark McClellan, Stanford University

    Presentation: Remote data access at the National Center for Health Statistics

    • John Horm, National Center for Health Statistics

    Discussant: Finis Welch, Texas A&M University

    Presentation: Statistics Canada procedures; data liberation and associated Internet background information

    • Garnett Picot, Statistics Canada

    Presentation: Data licensing systems

    • Marilyn McMillen, National Center for Education Statistics

    Presentation: Data Centers—A critical assessment

    • Patrick Collins, California Census Research Data Center

    • J. Bradford Jensen, Carnegie Mellon Census Research Data Center

1:30

GENERAL DISCUSSION

 
Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×

2:00

SESSION V. Workshop Summary

Review and address questions posed at the opening of the workshop

  • Thomas Louis, Member, Committee on National Statistics

  • Norman Bradburn, Workshop Chair

General response

  • Workshop participants

2:45

CLOSING COMMENTS/ADJOURN

Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 58
Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 59
Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 60
Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 61
Suggested Citation:"Appendix B Workshop Agenda." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 62
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Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risks—both absolute and relative—created by researchers and research data, as well as by other data users and other types of data.

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