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1. Introduction
Pages 1-6

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From page 1...
... For example, the growth of managed care, new information technologies, and changes in welfare policy will open up opportunities in administrative data; advances in genetics could develop new major health status data items and raise issues of privacy and confidentiality; the growing emphasis on state and local roles in health care creates a demand for greater geographic detail in data; efforts to develop and assess health promotion and disease prevention efforts will require population-based data; the aging of the population will draw greater attention to measures of functional status and disability; 1
From page 2...
... ; and performs a number of quality-focused activities, such as regulation of laboratory testing and certification of nursing homes and other continuing care providers. HCFA provides state and national data on national health care indicators and expenditures, such as health care spending; employment and prices; and Medicare, Medicaid, and SCHIP enrollment.
From page 3...
... , and the DHHS Data Council.2 Steps in the process involve a systematic effort to obtain input from experts from various related fields, state and local officials, data users, and other interested parties, beginning with a dialog on future health and health care trends, information and communications technology, and public policies. By its end, this process will identify forces that will shape health information needs and opportunities for the future, and will formulate a vision for the future that will help guide policy and planning for health statistics programs.
From page 4...
... The categories that emerged during the workshop discussions included: · Health status: prevalence and burden of disease and epidemiologi cat concerns · Health services: service delivery, treatments, quality of care · Health care financing: costs, access, insurance · Outcomes of care and efficacy (using observational data) The above list is in no way intended to be comprehensive or exclusionary,
From page 5...
... To ensure that all the issues concerning health statistics were addressed, participants represented expertise in such areas as health policy; managed care; outcome measurement; children's health needs; population-based assessments of health status; surveillance of illness; assessing well-being; risk assessment; determinants of health (e.g., genetics, behavior, socioeconomic status, environment) ; organization, delivery, and financing of health services; health economics; technology, data policy, privacy, and confidentiality; and survey methods.
From page 6...
... Also not discussed in detail are all of the potential ways in which the current data system must evolve to meet future information needs, particularly with respect to issues of overlap, integration, data sharing, and privacy and confidentiality issues. There is also little discussion of feasible alternatives and approaches to these issues.


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