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When Children Die Improving Palliative and End-of-Life Care for Children and Their Families (2003) / Chapter Skim
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Appendix A: Study Origins and Activities
Pages 445-448

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From page 445...
... examined methods for communicating information, determining family and child/patient preferences, resolving conflicts, and evaluating the quality of palliative and end-of-life care as experienced by children and their families; and · proposed a research and action agenda to strengthen the scope and application of the knowledge base for providing effective and compassionate care for children who die and their families.
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From page 446...
... Loder Candlelighters: Childhood Cancer Foundation Ruth Hoffman National Organization of Parents of Murdered Children Jean Lewis 9:20-10:00 a.m. Panel 2 SIDS Alliance Deborah Boyd MISS - Mothers in Sympathy and Support Richard K
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From page 447...
... ~ ~ . National Association of Pediatric Home and Community Care Dorothy Page, F.N.P., M.S.N.
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From page 448...
... 4:30 p.m. · ~ Adjourn Additional groups submitting written statements American Academy of Hospice and Palliative Medicine American Association of Colleges of Nursing American Association of Critical Care Nurses American Board of Pediatrics Program Directors Committee American College of Emergency Physicians American Society of Pediatric Hematology/Oncology Children's Oncology Group End-of-Life Subcommittee Hospice and Palliative Nurses Association National Association of State Emergency Medical Services Directors Organization of Neonatal-Perinatal Training Program Directors VDHEN CHILDREN DIE Public Meeting Room 150, National Academy of Sciences 2101 Constitution Avenue NW, Washington, DC.
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Key Terms

  • national organization
  • dying children
  • committee met
  • program directors
  • critical care

  • effective care
  • inform health
  • medical services
  • care nurses
  • encourage thoughtful

  • invited written
  • child life
  • gravely ill
  • hear views
  • advocacy organizations

  • examined methods
  • national hospice
  • palliative medicine
  • broad objectives
  • association national

  • american board
  • thoughtful discussion
  • additional organizations
  • determining family
  • resolving conflicts

  • social workers
  • american psychological
  • palliative care
  • childhood cancer
  • care organization


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