Exploring Challenges, Progress, and New Models for Engaging the Public in the Clinical Research Enterprise Clinical Research Roundtable Workshop Summary (2003) / Chapter Skim
Currently Skimming:
4. Steps to Improve the Translation and Dissemination of the Results of Clinical Research
4. Steps to Improve the Translation and Dissemination of the Results of Clinical Research
Pages 36-44
The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
Select key terms on the right to highlight them within pages of the chapter.
From page 36... ...
Barry Wolcott discussed use of the Internet for health communication and research purposes; John Walsh provided information about the role of voluntary health associations in fostering clinical research and disseminating the findings of such research; and Stephen Katz described consensus development conferences, ClinicalTrials.gov, and dissemina
|
From page 37... ...
He noted that the type of research WebMD conducts is different than clinical research, but pointed out that the Internet could be used for other research purposes. A growing number of people are accessing websites that provide information about clinical trials, and these sites could facilitate connections between researchers and potential participants.
|
From page 38... ...
Internet Mags TV Pharma Sites TV Ads Mag Ads Percent of Total Time Spent Voluntary Health Associations use newsletters, websites, chatrooms, call centers, patient magazines, professional journals, and scientific meetings, as well as health fairs and community forums, to share information with the public, patients, and health professionals. Some VHAs reach out to minorities by translating materials, placing stories in magazines with target audiences, and participating in direct outreach to communities.
|
From page 39... ...
The foundation has over 250 volunteers from the scientific and medical community participating on expert advisory committees; they serve as advisors on clinical trial design within industry among their other tasks. A liaison group was | DNA and Tissue Bank ~ Translational Laboratories Research Registry Scientific Conferences and Workshops Clinical Resource Centers FIGURE 4.2 Community Centered Research Infrastructure Figures 4.2 & 4.3 were presented by Dr.
|
From page 40... ...
, noted that for approximately 25 years, NIH has been utilizing Consensus Development Conferences to devise strategies to disseminate information. These conferences have been sponsored by the NIH Office of Medical Applications of Research and are conducted four to five times per year, when the knowledge base about an issue is sufficient to anticipate that the medical and scientific community can reach consensus on a particular issue.
|
From page 41... ...
ENGAGING PROVIDERS IN HEALTH INFORMATION DISSEMINATION Ken Getz, M.B.A., President of CenterWatch, asked the panel members to identify ways to better engage the health provider community in dissemination of information to the
|
From page 42... ...
No publicly held company would operate that ``What happens now is we have huge research and development operations throughout the clinical research enterprise that generate lots of new, exciting findings, but the marketing of these discoveries is disconnected... No publicly held company would operate that way; they would build the cost into the expenses for research and development." Barry Wolcoff way, they would build the cost into the expenses for research and development." NEGATIVE CLINICAL RESEARCH RESULTS When an audience member commented about the lack of reporting about research demonstrating negative results,
|
From page 43... ...
Katz pointed to the negative findings of the Women's Health Initiative regarding hormone therapy. He commented that much healthcare practice is not based on strict evidence like the reviews from the Cochrane Collaboration, adding that many of the clinical studies reported in the literature are driven by companies, which do not want to publish negative results.
|
From page 44... ...
Major outcomes in moderately hypercholesterolemic, hypertensive patients randomized to pravastatin vs. usual care: the antihypertensive and lipid-lowering treatment to prevent heart attack trial (ALLHAT-LLT)
|
Key Terms
This material may be derived from roughly machine-read images, and so is provided only to facilitate research.
More
information on Chapter Skim is available.