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Workshop Summary
Pages 1-4

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From page 1...
... Larry Green stated that members of the public traditionally have been seen as passive recipients of research results rather than as active partners in the Clinical Research Enterprise. Participatory research extends the role of the pub1 kc in clinical research beyond participation in trials.
From page 2...
... Chin, the community-based participatory research system would be improved by developing: pilot developmental grants; incentives for community members and researchers to work together; · grant review study sections that understand and value CBPR; and · appropriate grant review criteria for CBPR. To encourage CBPR at academic institutions: · the next generation of professors who are more accepting of participatory research could influence others; · foundations and others could create programs to support postdoctoral fellowships in CBPR; · institutions could create centers and resources to help investigators make contacts in the community; and · institutions could change how CBPR is viewed in academic health centers, particularly for tenure and promotion decisions.
From page 3...
... Federman during the workshop include the following: · All research involving human participants should take place within the framework of a human research participant protection program (HRPPP) that fosters a culture of ethical research conduct and integrity and is supported by the highest authorities within organizations and given the resources to function effectively; · A three-pronged process of review that includes complementary assessments of science, financial conflicts of interest, and a comprehensive review focused on ethics should be utilized to review research.
From page 4...
... inform patients about the availability of clinical trials, recruit patients to trials, sometimes conduct or fund trials, and provide information about research results. John Walsh noted that several VHAs have expressed frustration about the difficulties of getting, sharing, digesting, and translating existing information; the lack of basic information collected about their disease; and the lack of information about indirect costs to society of particular diseases.

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