Expanding Access to Research Data Reconciling Risks and Opportunities (2005) / Chapter Skim
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1 Introduction
1 Introduction
Pages 7-14
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From page 7... ...
Recent innovations in information technology, such as the widespread availability of data about individuals on the Internet, have also increased that risk. In response, many data collection agencies have reduced the amount of detail in publicly available microdata sets, although they have also worked with researchers to develop new methods and arrangements for data access that protect confidentiality and respect privacy.
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From page 8... ...
The panel began its work early in 2003, building on earlier efforts by CNSTAT. Those efforts included a major comprehensive review of the issues more than a decade ago, which produced Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics (National Research Council, 1993)
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From page 9... ...
And we touch only briefly on the role of nongovernment survey organizations. Yet the basic responsibilities and techniques for protecting privacy and confidentiality while promoting data access for research are applicable across all kinds of data, including administrative data on individuals and businesses linked to microdata and individuals' biological data collected in surveys.
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From page 10... ...
It does not pretend to have all the answers nor, given constrained resources, to represent a detailed investigation of alternative data access methods and arrangements. It provides a broad view of the issues, noting why imaginative data access methods are required to satisfy the public need for sophisticated policy analysis and basic social science research.
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From page 11... ...
Those public policies influence individual lives at every stage- financing of prenatal care, state aid to school districts, job training and placement, law enforcement, and determining retirement benefits. Data provided by federal statistical agencies .
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From page 12... ...
As brokers between the data provider and the data user, statistical and research agencies need to continually examine changing conditions and attempt to resolve the resulting tension as best they can. There is no doubt that these early years in the 21st century challenge statistical and other data collection agencies with a sharply increased level of tension between the two mandates, which, in turn, calls for reexamination of information practices.
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From page 13... ...
· Statistical agencies, which conduct substantial methodological research on data collection and estimation, often do not have either the internal resources or the political mandate to carry out the causal analyses needed for policy formulation and the advancement of scientific knowledge relevant to policy; this capability is more readily found in the research and policy analysis community. · Advances in information technology have raised both fears of privacy intrusion and expectations about access to information.
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From page 14... ...
14 EXPANDING ACCESS TO RESEARCH DATA permit authorized researchers to use confidential data that are not publicly available. Those procedures include protected enclaves, commonly known as research data centers; licensing arrangements; and methods for secure, monitored on-line access to data.
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