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Executive Summary
Pages 1-16

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From page 1...
... The Health Resources and Services Administration's (HRSA) TBI Program, initially authorized by the Traumatic Brain Injury Act of 1996 (P.L.
From page 2...
... As explained further below, the HRSA TBI Program encompasses two grant programs: (1) the TBI State Grants Program; and (2)
From page 3...
... Yet efforts to address these issues are stymied by inadequate data systems, insufficient resources, and lack of coordination. · TBI services are rarely coordinated across programs except in some ser vice sites.
From page 4...
... Sub stantial work is needed to ensure that the infrastructure is effective and TBI service systems improved, expanded, and sustained. · Although HRSA's four mandatory components of a state's TBI infrastruc ture -- a statewide TBI advisory board, a lead state agency for TBI, a statewide assessment of TBI needs and resources, and a statewide TBI action plan -- are essential, they are not enough to effect lasting improvement in services for individ uals with TBI and their families.
From page 5...
... Grants Provided Under the HRSA TBI Program As noted earlier, the HRSA TBI Program encompasses two grant programs: (1) the TBI State Grants Program; and (2)
From page 6...
... TBI infrastructure and service systems for meeting the post-acute needs of individuals with TBI and their families. Since FY 1997, HRSA has competitively awarded three types of TBI State Program Grants to states, territories, and the District of Columbia: Planning Grants, Implementation Grants, and Post-Demonstration Grants.
From page 7...
... The board's initial tasks should include articulating a vision for the program; devel oping an action plan for HRSA that includes a blueprint for ongoing data collection and program evaluation; and ensuring adequate program resources. · Advocate for and support TBI grantees by pressing relevant federal agen cies to furnish needed data and to address TBI in eligibility rules for other federal programs; keep track of emerging issues in state TBI programs; serve as a nation al information resource on the special needs of individuals with TBI; and dissemi nate information on best practices.
From page 8...
... Post-Demonstration Grants were established by HRSA following the reauthorization of the HRSA TBI Program in the Children's Health Act of BOX ES-5 Four Core Capacity Components of a State TBI Infrastructure While the terms and available funding for TBI State Program Grants have evolved, the four core components of a state TBI infrastructure required by HRSA have not changed: 1. Statewide TBI advisory board.
From page 9...
... Its activities include general technical assistance to program grantees and applicants; an e-mail listserv that allows grantees and other participants to post inquiries, disseminate funding announcements, share best practices, and other program materials; a voluntary benchmark initiative; an online database, the "TBI Collaboration Space," for grantees and others affiliated with the TBI Program; as well as national meetings and webcasts. Since 2002, TBI TAC has been operated under a contract between HRSA and the National Association of State Head Injury Administrators (NASHIA)
From page 10...
... It is known, however, that TBI is a leading cause of death and disability in the United States. The Centers for Disease Control and Prevention (CDC)
From page 11...
... It is difficult to capture the impact of TBI on an individual's every day existence. Data collection and analysis are daunting challenges given the fragmented nature of TBI services and the inflexibility of their disparate data systems, lack of standardized definitions, and multiple public and private service systems.
From page 12...
... ASSESSING THE HRSA TBI PROGRAM Since the implementation of the HRSA TBI Program in 1997, there has been demonstrable improvement in two essential preconditions for improving TBI service systems -- state-level TBI systems infrastructure and the overall visibility of TBI have grown considerably. Almost all states have demonstrated interest in expanding their capacity to serve individuals with TBI (Table ES-1)
From page 13...
... D.C. Planning Implementation Currently Unfunded, Had Planning Currently Unfunded, Had Implementation Currently Unfunded, Had Post-Demonstration Never Funded FIGURE ES-1 Traumatic brain injury program grants by state, 2005.
From page 14...
... The states are ill equipped to conduct technical evaluations and require constructive guidance in this area. Thus far, the HRSA TBI State Grants Program has been handled as a grant program designed to establish four core organizational and strategic components in each state but to allow considerable state variation.
From page 15...
... Further progress in TBI systems and services will be elusive if HRSA does not address the program's fundamental need for greater leadership, data systems, additional resources, and improved coordination among federal agencies. It is worrisome that the modestly budgeted HRSA TBI Program continues to be vulnerable to budget cuts.


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