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Appendix A: Methods of the Study
Pages 105-115

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From page 105...
... to perform an assessment of the impact of the HRSA Traumatic Brain Injury (TBI) Program focusing on (1)
From page 106...
... As described below, the study used information gathered in interviews with TBI stakeholders in seven states and representatives of selected national organizations. The state-based interview informants were not disinterested participants; they were either state officials of the respective state TBI programs or other individuals identified by the state agencies.
From page 107...
... data and additional data, where it existed, on states' experiences with the HRSA TBI Program. Over the course of several meetings, as discussed below, the committee formulated a conceptual framework, developed selection criteria and picked the seven states, developed an interview guide for use in the seven states, and identified the respondent pool.
From page 108...
... of America · TBI Needs and Challenges among Native Americans -- Alta Bruce, President, Indigenous People's BIA and Injury Prevention Specialist, Indian Health Service 11:15 TBI Model Systems Program -- Ruth Brannon, Associate Director, Division of Research, National Institute on Disability and Rehabilitation Research drawn from materials provided to the committee by state and federal TBI programs, the TBI Technical Assistance Center (TBI TAC)
From page 109...
... Because the number of states was limited by budget considerations, the committee's criteria for selection focused on identifying seven states with diverse state experiences that would signal major successes and failures, as well as common themes. Several criteria were used to select the seven states for in-depth study-for example, participation in the HRSA TBI Program, state TBI funding, locus of the lead state agency for TBI, geographical diversity, etc.
From page 110...
... 110 PQ^ health, . NIDRR etc vocational Schools state mental e.g., Sister education, PQ^ CDC agencies, rehabilitation, delivery system Healthcare and - Program TBI 166- 310- Program Q^ entities.
From page 111...
... sources. program TBI a Planning have other from TBI Planning 0, 23, swiftly from Federal or the authority state Look of Federal TBI and and of often draw funding a enhanced 16 a previous planning moved lead affect of or to funding had had state waivers, Grant; Grants; have with may In-Depth modest programs programs integration grants to Grant importance and impact an states states other for TBI TBI 2 37 on Medicaid agency for appear beyond compromised need provides Program relative state potential be 2005, other the States Rationale In Implementation history: Implementation states TBI moved The depends developed or developed The considerably as complex.
From page 112...
... TABLE A-3 Participation in the Federal TBI Program by the Seven States Federal TBI Program Grant Received TBI Post- Protection and Planning Implementation Demonstration Advocacy for TBI State Grant Grant Grant (PATBI) Grant*
From page 113...
... The committee structured the guide so that it could be used for a 45-minute, inperson, or telephone interview. The interview questions were formulated TABLE A-5 Other Pertinent Characteristics of the Seven States TBI Data Systems Percent Rural TBI Trauma CDC TBI TBI Model State Population Registry Registry Surveillancea Systemb Alabama 44.6 California 5.6 -- -- Colorado 15.5 -- Georgia 28.4 -- -New Jersey 5.6 -- Ohio 22.6 -- -- Washington 18.0 -- -- aAlabama, California, Colorado, and New Jersey have received Centers for Disease Control and Prevention (CDC)
From page 114...
... Selection of Interview Respondents For reasons of efficiency, the committee asked the TBI lead agencies in the states to help identify potential respondents representing TBI interests in the state, including the lead state agency for TBI, the independent P&A system, the Brain Injury Association, the state agency responsible for injury prevention, TBI trust funds, Medicaid waiver programs, and persons with TBI or family members. National program directors Brain Injury Other agencies 4 Associations and providers Injury 6 prevention 18 epidemiologists 6 and staff 7 Consumers with TBI or family 16 members 9 Protection & advocacy systems Lead agencies FIGURE A-2 Interview respondent pool by organizational affiliation.
From page 115...
... Interviews were also conducted with the leaders of the following national organizations: HRSA TBI Program, NASHIA, TBI TAC,2 Brain Injury Association of America, and National Disability Rights Network.3 During the study period, the Brain Injury Association of America and NASHIA conducted an independent, online survey of stakeholders in all 50 states and the District of Columbia; those results too were made available to the committee. REFERENCES Caudle SL.


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