Evaluating the HRSA Traumatic Brain Injury Program (2006) / Chapter Skim
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Appendix C: State TBI Programs and Protection and Advocacy Systems: Characteristics and Accomplishments, by State
Appendix C: State TBI Programs and Protection and Advocacy Systems: Characteristics and Accomplishments, by State
Pages 127-259
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From page 127... ...
APPENDIXC State TBI Programs and Protection and Advocacy Systems: Characteristics and Accomplishments, by State 127
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Received Informationa from HRSA Statewide TBI Advisory Board Alabama Implementation: Alabama's statewide TBI advisory board 1997, 1998, 1999, was established within the Department of Alabama 2000 Rehabilitation Services in 1986. Its Department of 35 members are appointed by the Rehabilitation Post-Demonstration: commissioner of the Department of Services 2001, 2002, 2004 Rehabilitation Services.
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are reported to graduated drivers' license Alabama's legislation in 200102. Alabama's trust fund is supported Department of -- Alabama's expanded through fines on impaired drivers Public Health.
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Arkansas Planning: 2001, Arkansas' statewide TBI advisory board 2002 was established within the University of Arkansas Arkansas Medical School System in 2001. Department of Of its 24 members, 46% are agency staff; Education 50% are consumers/family; 4% are other.
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: California has a -- California has caregiver Trust fund TBI surveillance resource centers for State agency: Mental Health system. caregivers of adults with Year funding source established: onset of cognitive and 1988 neurological impairments.
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The State population: board meets quarterly and is engaged in 33,871,648 advocacy, collaboration, and planning, and 22,413 will produce the statewide TBI resource/ hospitalized needs assessment and statewide TBI action with TBI plan. 108,698 ED visits for TBI 7,274 TBI disabled Colorado Planning: 1999 Colorado's statewide TBI advisory board, initially established in 1998 in Colorado's Colorado Implementation: Department of Human Services, Office of Department of 2001, 2002, 2003 Behavioral Health and Housing, was Human Services designated lead coordinating agency for TBI Post-Demonstration: by executive order in 2000.
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-- Colorado established a Year funding source(s) established: TBI trust fund in 2002; 2002, 1995 created 13-member board.
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It prepared a report on 483 TBI disabled Delaware's statewide TBI resource/needs assessment and developed a coma guide. District of Planning: 1997, The District of Columbia established a TBI Columbia 1998 advisory board within the D.C.
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data collection improve education and system in place care regarding TBI in but is working community settings. toward an -- Collaboration between Intentional and the TBI advisory board Unintentional and other stakeholders is Injury registry, reportedly moving D.C.
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Florida Implementation: Florida has an advisory board that 1997, 1998, 1999, addresses needs of both TBI and spinal Florida 2000 cord injury that was established by statute Department of in 1985. The board's 16 members are Health Post-Demonstration: appointed by the secretary of Florida's 2001, 2003, 2004 Department of Health.
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State TBI funding source(s) : Tobacco Florida has a -- Florida has a Nursing settlement, Medicaid TBI waiver, trauma registry Home trust fund and TBI registry.
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It engages in advocacy, 3,460 ED visits collaboration, education, planning, and for TBI legislative advocacy, and produces the 232 TBI disabled statewide TBI action plan. Idaho Planning: 2000, Idaho's statewide TBI advisory board was 2001 established in 2000 and is located within Idaho Department the Department of Health and Welfare/ of Health and Implementation: Medicaid.
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the Brain and Spinal 1998 Injury Trust Fund Annual amount(s) : $2,339,708 Commission.
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The for TBI board meets quarterly and is engaged in 2,493 TBI collaboration, education, funding, decision, disabled information, referral, planning, and development of a statewide TBI action plan for both TBI and spinal cord injury survivors. Indiana Planning: 1999 None.
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: $300,000; Public Health, but $5,823,376 trauma centers are Number served: 1,200; 1,400 most likely to comply. The Department of Public Health provides data, without identifiers, to the statewide TBI advisory board to use for planning.
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quarterly and engages in advocacy, 737 TBI disabled collaboration, information and referral, planning, and is responsible for developing and publishing the statewide TBI resource/ needs assessment and statewide TBI action plan. Kansas Planning: 2001, Kansas' statewide TBI advisory board was 2002 established in 2001 and is located within Kansas the Department of Social and Rehabilitation Department of Implementation: Services.
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-- Brain Injury Association of Iowa and Iowa's statewide TBI advisory board pushed to get a seat on new Mental Health/Developmental Disabilities Commission, 2002. -- Iowa passed legislation redesigning Department of Mental Health, Developmental Disabilities, and TBI (includes TBI in name and services, 2004.
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and is conducting a statewide TBI resource/ 2,926,324 needs assessment that will guide its future 1,460 hospitalized activities. with TBI 10,932 ED visits for TBI 732 TBI disabled Kentucky Planning: 1999 Kentucky's statewide TBI advisory board, located in the Cabinet for Health Services, Kentucky Cabinet Implementation: was established BY statute in 1998 in for Health 2003, 2004, 2005 conjunction with the passage of Kentucky's Services/ trust fund legislation.
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category for Department A trust fund provides $125,000 for of Mental Health & the registry, $2.75 million for direct Mental Retardation and services, and $60,000 for Developmental administrative costs. Fines/revenue Disabilities services, 2005.
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Activities of this new 1,274,923 group focus on establishing a lead state 519 hospitalized agency for TBI; creating a mission with TBI statement, bylaws, and common definition 4,534 ED visits for brain injury; and positioning itself to for TBI obtain a federal TBI Program grant from 303 TBI disabled HRSA. The board meets bimonthly.
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: $1.3 million a surveillance community-based services Number served: 259 system. The TBI to individuals with registry is disabilities and elderly A trust fund was established by established in who need long-term care, statute in 1993.
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State population: 6,349,097 2,835 hospitalized with TBI 10,200 ED visits for TBI 683 TBI disabled Michigan Planning: 1998 Michigan's statewide TBI advisory board, located in the Department of Community Michigan Implementation: Health, was established in 1999. Its 54 Department of 2001, 2002, 2003 members are appointed by the lead state Community agency for TBI.
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State TBI funding source(s) : General Massachusetts has -- Massachusetts was one revenues, trust funds (2)
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TBI/spinal cord by statute in 1996 and is located within Department of injury (SCI) Mississippi's Department of Rehabilitative Rehabilitation Medicaid waiver Services.
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State TBI funding source(s) : Trust Mississippi has a fund, TBI/SCI Medicaid waiver trauma registry, State agencies: Rehabilitation TBI registry, and Services, Rehabilitation Services surveillance system.
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for TBI 1,100 TBI disabled Missouri Implementation: Missouri's statewide TBI advisory board 1997, 1998, 1999, was initially established by executive order Missouri 2000 in 1985 and, statute in 1986 and is housed Department of in the Office of Administration. In 2005, Health and Senior Post-Demonstration: it was transferred by executive order to the Services 2001, 2002, 2004 Missouri Department of Health and Senior Services.
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State TBI funding source(s) : General Missouri has a -- Division of Special revenue, Trust fund trauma registry, Education developed four State agencies: Health and Senior TBI registry, and training modules for Services, Health and Senior surveillance educators.
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State population: There is a broad-based interagency task 902,195 force that addresses a wide range of 452 hospitalized issues and reports to the official TBI with TBI advisory board, which meets three times 5,578 ED visits each year. for TBI 373 TBI disabled Nebraska Planning: 2000, Nebraska's statewide TBI advisory board, 2001 located within the Department of Nebraska Education, was established by statute in Department of Implementation: 1999.
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Montana does not have a TBI-specific Medicaid waiver, but special services in the state's Medicaid Home and Community-based waiver for the elderly and disabled may be used by persons with TBI. State TBI funding source(s)
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New Jersey's Federal TBI Program with TBI grant from HRSA focused on children's
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Medicaid TBI waiver spending authorized at $7.6 million; unused funds support services for non-waiver-covered persons. State TBI funding source(s)
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1,268 TBI disabled New Mexico Implementation: New Mexico's TBI advisory board, located 2001, 2002, 2003 within the state's Developmental Disabilities New Mexico Planning Council, was established by statute Department of in 1997. Its 18 members are appointed by Health the governor.
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: $2.0 million signed legislation Number served: 572 authorizing a Medicaid home and communityA trust fund was established by statute based waiver that could by a combination of $600,000 in be used for individuals general revenue and $5 from each with TBI, 2005. traffic violation fee.
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with TBI 2,281 ED visits for TBI 153 TBI disabled Ohio Implementation: Ohio's TBI advisory board, located in the 1998, 1999, 2000 Ohio Rehabilitation Services Commission, Ohio was established by state statute in 1990. Rehabilitation Post-Demonstration: The 1990 statute mandates the involvement Services 2002, 2003, 2004 on the TBI advisory board of agency Commission directors/designees and others appointed
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: General Ohio has a trauma -- Ohio has collaborated revenue registry and is a with the Ohio Legal State agency: Rehabilitation Services Model Systems Rights on housing Commission site. initiative and on a Year funding source established: Medicaid guide.
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disabled Oklahoma Planning: 1997, Oklahoma's TBI advisory board was 1998 established in 1991 and was appointed by Oklahoma the governor. A revised TBI advisory board Department of Implementation: was established in 1997 in the Oklahoma Health 1999, 2000, 2001 Department of Health to better address Federal TBI Program mandates.
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An executive order created the governor's TBI task force and recommended a TBI trust fund, 2002. continues
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needs assessment and developing a statewide with TBI TBI action plan. 41,282 ED visits for TBI 2,762 TBI disabled Rhode Island Planning: 1999, Rhode Island's TBI advisory board was 2000 established by state statute in 1986.
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: $3.0 million; not available; not applicable Number served: 175; 50 slots; unknown A trust fund was established by statute It is funded by DUI and moving violations and provides services and coordination to adults with incomes at or below 300% of the federal poverty level. A catastrophic loss fund was available 19841989 to auto accident victims, but it is almost exhausted as claimants have hit the $1.0 million lifetime limit.
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Initial membership on South Carolina the board was by invitation of the South Department of Implementation: Carolina Department of Disabilities and Disabilities and 2000, 2001, 2002 Special Needs, the lead state agency for Special Needs TBI. The TBI advisory board is becoming Post-Demonstration: an independent entity, and new members are State population: 2004 selected by the board.
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State TBI funding source(s) : General Tennessee has a -- Beginning in 1999, the revenue, trust fund trauma registry Tennessee TBI program State agencies: Vocational and a TBI registry.
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It has with TBI (1996) focused on statewide TBI resource/needs 10,065 ED visits assessment and statewide TBI action plan for TBI development.
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A trust fund, established by statute, Reporting to the serves TBI and spinal cord injury and Department of pays for eligible inpatient medical Health, Injury rehabilitation, outpatient Epidemiology and rehabilitation-focused, post-acute the surveillance cognitive. The trust fund is payer of program is last resort, and recipients must be mandatory.
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The board for TBI undertakes broad activities, but its initial 160 TBI disabled focus was on the HRSA grant. Virginia Planning: 1998, Virginia's TBI advisory board, located 1999 within the state Department of Virginia Rehabilitation Services, was established in Department of Implementation: 1986 by executive order.
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: $2,151,635 Number served: 50 State TBI funding source(s) : General Virginia has a -- Virginia's Department revenues, Trust fund trauma registry of Rehabilitation Services State agencies: Rehabilitation and TBI registry.
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The board meets with TBI quarterly and addresses broad issues. 8,033 ED visits for TBI 538 TBI disabled Wisconsin Planning Grant: Wisconsin's statewide TBI advisory board, 1997, 1998 created in 1998, is an ad hoc committee of Wisconsin the Developmental Disabilities Council.
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Current Federal Temporary Number served: 225 HRSA grant Assistance for Needy activities include Families Program who 522 persons with TBI are also served development of have barriers to via other Medicaid waivers in an annual report employability. Wisconsin.
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TBI-specific Wyoming's statewide TBI advisory board. Department of Medicaid home and This task force is located in the Wyoming's Health community-based Division of Developmental Disabilities waiver (2001)
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e South Carolina's Medicaid head and spinal cord injury (HASC) waiver is a type of Medicaid home and community-based services waiver, which allows states to waive Medicaid provisions in order to allow long-term care services to be delivered in community settings; it is the Medicaid alternative to providing comprehensive long-term services in institutional settings.
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Received from HRSA Alabama Implementation: 1997, 1998, 1999, 2000 Alabama Department of Post-Demonstration: 2001, 2002, 2004 Rehabilitation Services Alaska Planning: 2000, 2002 Alaska Department of Implementation: 2003, 2004, 2005 Health and Social Services Arizona Implementation: 1997, 1998, 1999 Arizona Department of Post-Demonstration: 2001 Economic Security
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community mental health and substance abuse grantees. · Developed new TBI-related educational Despite Arizona's many sustained materials for Arizona and purchased and accomplishments and systems disseminated existing educational materials changes, the Federal TBI Program to consumers and providers.
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178 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Arizona continued Arkansas Planning: 2001, 2002 Arkansas Department of Education California Planning: 1999, 2001 California Department of Mental Health Colorado Planning: 1999 Colorado Department Implementation: 2001, 2002, 2003 of Human Services Post-Demonstration: 2004
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· Developed methods for providing individuals Although Colorado's TBI trust fund with TBI and their families in Colorado with will be able to support some of the accessible and appropriate information and activities initiated under the Federal referrals. TBI Program grants from HRSA, · Initiated a cross-training program with the there remain other issues, as state's Disability Determination Service to identified by Colorado's TBI action reduce the high disability denial rate for plan, that require focus -- for people with TBI.
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180 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Colorado continued Connecticut Planning: 2003, 2004 Connecticut Department of Social Services Delaware Planning: 1997, 1998 Delaware Department of Health and Social Services District of Columbia Planning: 1997, 1998 D.C.
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. members of the advisory board and · Had members of Connecticut's statewide complete Connecticut's TBI needs/ TBI advisory board participate in several resources assessment in order to trainings on TBI 101 and TBI among create a statewide TBI action plan Southeast Asians.
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182 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Florida Implementation: 1997, 1998, 1999, 2000 Florida Department of Health Post-Demonstration: 2001, 2003, 2004 Georgia Planning: 1997 Brain and Spinal Injury Implementation: 1998, 1999, 2000 Trust Fund Commission Post-Demonstration: 2004 Hawaii Planning: 1999, 2000 Hawaii Department of Health Implementation: 2002, 2003, 2004
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. · Transitioned the lead state agency role to As the new lead state agency for TBI, the Brain and Spinal Injury Trust Fund Georgia's Brain and Spinal Injury Commission.
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184 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Idaho Planning: 2000, 2001 Idaho Department of Implementation: 2003, 2004, 2005 Health and Welfare Illinois Planning: 1997, 1998 Illinois Department Implementation: 2000, 2001, 2002 of Human Services Indiana Planning: 1999 Indiana Department of Health Iowa Planning: 1997 Iowa Department Implementation: 1998, 1999, 2000 of Public Health Post-Demonstration: 2001, 2002, 2003
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Grant to identify and begin to · Established a statewide TBI advisory board. organize state resources.
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186 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Iowa continued Kansas Planning: 2001, 2002 Kansas Department of Social Implementation: 2003, 2004, 2005 and Rehabilitation Services Kentucky Planning: 1999 Kentucky Cabinet for Health Implementation: 2003, 2004, 2005 Services/Department of Mental Health and Mental Retardation Louisiana No Federal TBI Program grants received Louisiana Department of Social Services/ Rehabilitation Services Maine Planning: 2003, 2004 Maine Department of Implementation: 2005 Human Services
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a memorandum of agreement with the Division of Mental Health. · Established Maine's statewide TBI advisory Maine will address some of the issues board.
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188 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Maine continued Maryland Planning: 1998 Maryland Department of Implementation: 1999, 2000, 2001 Health and Mental Hygiene Post-Demonstration: 2003, 2004 Massachusetts Implementation: 2000, 2001, 2002 Massachusetts Executive Office of Health and Human Services/ Rehabilitation Commission
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Massachusetts statewide TBI action · Conducted TBI training programs, including plan include the need to increase train-the-trainer programs, for providers access to community-based services, from diverse communities. family support services, school · Recruiting case managers and clinical capacity to serve children with TBI, consultants within organizations of and the need for improved funding, underserved populations and establishing among others.
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190 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Michigan Planning: 1998 Michigan Department Implementation: 2001, 2002, 2003 of Community Health Post-Demonstration: 2004 Minnesota Implementation: 1997, 1998, 1999 Minnesota Department Post-Demonstration: 2002, 2003 of Human Services Mississippi Planning: 1997 Mississippi Department of Rehabilitation Services
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Mississippi plans to convene a statewide TBI advisory board, which will conduct a statewide TBI needs/ resources assessment and formulate a statewide TBI action plan. As a continues
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From page 192... ...
192 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Mississippi continued Missouri Implementation: 1997, 1998, 1999, 2000 Missouri Department of Post-Demonstration: 2001, 2002, 2004 Health and Senior Services Montana Planning: 2001, 2002 Montana Department of Implementation: 2003, 2004, 2005 Public Health and Human Services Nebraska Planning: 2000, 2001 Nebraska Department Implementation: 2002, 2003, 2004 of Education
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Cultural competence is infused in the project via the Native American representation on the statewide TBI advisory board. · Completed Nebraska's statewide TBI needs/ Nebraska's priorities, as identified by resources assessment and developed a its statewide TBI action plan, are to statewide TBI action plan increase awareness of the service and · Designed and established a coordinated support needs of individuals with service structure with a designated "point of TBI and their families, increase the entry" -- NEBrainstorm, the state's brain local availability of services and injury resource network supports, and improve the continues
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194 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Nebraska continued Nevada Planning: 1997, 2005 Nevada Office of Community-Based Services New Hampshire Planning: 1997, 1998 New Hampshire Department of Implementation: 2000, 2001, 2002 Health and Human Services/ Division of Developmental Post-Demonstration: 2003, 2004 Services
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the statewide TBI action plan: · Developed an acquired brain disorders increasing the knowledge base and training curriculum and an education skills of professionals; developing program for individuals with TBI and statewide capacity to provide families. responsive service coordination and · Trained providers in evaluating and treating referral; and continuing to strengthen neurobehavioral consequences of TBI via the statewide TBI advisory board.
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196 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA New Jersey Implementation: 1999, 2000, 2001 New Jersey Department Post-Demonstration: 2002, 2003, 2004 of Human Services New Mexico Implementation: 2001, 2002, 2003 New Mexico Department of Health New York Implementation: 1997, 1998, 1999, 2000 New York Department Post-Demonstration: 2001, 2002, 2004 of Health
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· Required all TBI program providers in New New Mexico is working with several Mexico to provide customer satisfaction contractors to conduct program surveys. evaluations of existing state TBI · Developed a TBI education/resource manual service and support systems.
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198 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA North Carolina Implementation: 1997, 1998, 1999 North Carolina Division of Post-Demonstration: 2001 Mental, Developmental Disabilities, and Substance Abuse Services North Dakota Planning: 2003, 2004 North Dakota Department of Human Services Ohio Implementation: 1998, 1999, 2000 Ohio Rehabilitation Post-Demonstration: 2002, 2003, 2004 Services Commission
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· Developed a skill pack for hospital staff to improve the outcomes of the discharge process. · Established North Dakota's statewide TBI North Dakota is working to establish advisory board with representation from the a lead state agency for TBI and Native American community and service complete its statewide TBI needs/ providers.
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200 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Ohio continued Oklahoma Planning: 1997, 1998 Oklahoma Department Implementation: 1999, 2000, 2001 of Health Post-Demonstration: 2003, 2004 Oregon Planning: 1997 Oregon Department Implementation: 1998, 1999, 2000 of Education Post-Demonstration: 2001, 2002, 2004
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Oklahoma's statewide TBI training curricula for vocational TBI action plan has also identified a rehabilitation counselors, allied health need to improve prevention of students, and law enforcement. common secondary effects of TBI.
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202 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Pennsylvania Planning: 2001, 2002 Pennsylvania Department Implementation: 2003, 2004, 2005 of Health Rhode Island Planning: 1999, 2000 Rhode Island Department Implementation: 2002, 2003, 2004 of Human Services South Carolina Planning: 1997, 1998 South Carolina Department Implementation: 2000, 2001, 2002 of Disabilities and Special Needs Post-Demonstration: 2004
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implementation of specialized · The South Carolina Brain Injury Leadership employment preparation for Council is becoming more active and individuals with TBI and TBI effective as the statewide TBI advisory training for state agency staff and board. professionals remain important areas · Initiated the "Community Opportunities" of need.
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204 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA South Carolina continued South Dakota No Federal TBI Program grants received Tennessee Implementation: 2000, 2001, 2002 Tennessee Department Post-Demonstration: 2003, 2004 of Health Texas Planning: 1997, 1998 Texas Department of Implementation: 2000, 2001, 2002 Health and Human Services Post-Demonstration: 2004 Utah Planning: 2001, 2002 Utah Department of Implementation: 2003, 2004 Human Services
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· Designated Utah's Department of Human With its Implementation Grant, Utah Services as the lead state agency for TBI. began its analysis of current state · Increased the diversity of the statewide TBI policies for functionality and as a advisory board by 20 percent.
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206 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA Utah continued Vermont Planning: 2001, 2002 Vermont Division of Implementation: 2004, 2005 Vocational Rehabilitation Virginia Planning: 1998, 1999 Virginia Department of Implementation: 2002, 2003, 2004 Rehabilitation Services Washington Planning: 2000, 2001 Washington Department of Implementation: 2003, 2004, 2005 Social and Health Services
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· Completed Washington's statewide TBI Washington continues to further needs/resources assessment and developed a strengthen its various interagency statewide TBI action plan. collaborations and its statewide TBI · Incorporated existing Federal TBI Program advisory board to achieve the products and others into a TBI Tool Kit priorities as identified in the using a consumer-directed process.
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From page 208... ...
208 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-2 Continued State and Lead State Agency for TBI Federal TBI Program Grant(s) Received from HRSA West Virginia Planning: 1997 West Virginia Division Implementation: 1999, 2000, 2001 of Rehabilitation Services Post-Demonstration: 2002, 2004 Wisconsin Planning: 1997, 1998 Wisconsin Department of Implementation: 1999, 2000, 2001 Health and Family Services Post-Demonstration: 2002, 2004 Wyoming Planning: 2005 Wyoming Department of Health NOTE: Data displayed in this table are compiled from state self-reports collected by the National Association of Head Injury Administrators (NASHIA)
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· Established the Brain Injury Association of Wisconsin is incorporating the TBI Wisconsin as a central point of contact for service delivery system into existing information and referral services state and county services. The · Established a data system to record and emphasis at this time is to develop analyze data on service needs, individual further the statewide TBI advisory outcomes, program evaluation, and customer board; address the various needs of satisfaction the Native American and other underserved populations; and explore sustainability options for activities initiated under Federal TBI Program grants.
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From page 210... ...
5. Collaborate with Alaska's statewide TBI advisory board and support groups.
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· Project staff members serve on subcommittees of The Disability Law Center of Alaska's statewide TBI advisory board. Alaska will continue to · Providing training to TBI support groups through implement its grant objectives the Independent Living Council.
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From page 212... ...
2. Collaborate with the state Department of Education and other agencies important to individuals with TBI in order to support Arkansas in its effort to receive a Federal TBI Program Implementation Grant from HRSA.
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utilizing Arkansas' statewide TBI advisory board members' stories in a press release. continues
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214 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-3 Continued State and Federal State-Based PATBI Grant P&A System Received for Individuals from HRSA with Period: Developmental 9/01/2004 Disabilitiesa 8/31/2006 Goals Under the Federal PATBI Grant California PATBI 1. Increase awareness in the TBI community about Grant: Protection & Advocacy, Inc.'s advocacy services and Protection & $241,487 the rights of individuals with TBI in California to Advocacy, Inc.
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From page 215... ...
in California will continue to implement its grant objectives and provide advocacy for individuals with TBI and their families in accessing services and supports to meet their needs. · Participates on Colorado's statewide TBI advisory The Legal Center will continue board.
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From page 216... ...
7. Develop an interagency case referral protocol between Connecticut P&A and the Brain Injury Association of Connecticut.
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From page 217... ...
APPENDIX C 217 Continuing Efforts Related to Accomplishments of the State-Based P&A System P&A for Individuals with TBI Under the Federal PATBI Grant and Their Families · Developed relationships with the key stakeholders Connecticut Protection & in brain injury in the state. Advocacy for Persons with · Membership on Connecticut's TBI statewide Disabilities will continue to advisory board.
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From page 218... ...
5. Collaborate with the Brain Injury Association of D.C.
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From page 219... ...
in Florida continues to work in · Conducted outreach with TBI support groups and the focus areas of its Federal service providers; and attended the Brain Injury PATBI Grant from HRSA, as Association of Florida's annual conference. well as respond to other · Conducted initial research on the provision of requests for individual mental health services to persons with TBI.
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From page 220... ...
Disability 4. Provide individual and/or systemic legal Rights Center representation.
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From page 221... ...
· Collaborating with the Brain Injury Association Co-Ad will continue its of Idaho and Idaho State University's Institute on collaboration with the Brain Rural Health. Injury Association of Idaho and · Developed a PATBI program brochure and Idaho State University's informational material.
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From page 222... ...
222 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-3 Continued State and Federal State-Based PATBI Grant P&A System Received for Individuals from HRSA with Period: Developmental 9/01/2004 Disabilitiesa 8/31/2006 Goals Under the Federal PATBI Grant Idaho continued 6. Include specific TBI issues in systemic advocacy with state agencies, the legislature, and in Olmstead compliance activities.
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From page 223... ...
identify a lead state agency for · Developed a brochure outlining the goals of the procurement of additional TBI program and is also in the process of Federal TBI Program grant developing an informational packet to be provided monies to fund P&A activities. to parents of school-aged individuals with TBI as their children exit from rehabilitation units and services.
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From page 224... ...
3. Ensure that children diagnosed with TBI shall receive a free, appropriate public education within Iowa's public school system and be free from abuse and neglect.
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From page 225... ...
· As a result of advocacy provided by Kansas Kansas Advocacy & Protective Advocacy & Protective Services and other Services will continue to collaborating disability partners, the 2004 Kansas implement its grant objectives legislature increased TBI services funding by and provide advocacy for $500,000. individuals with TBI and their families in accessing services and supports to meet their needs.
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From page 226... ...
5. Represent five persons whose Medicaid waiver services have been denied, reduced, changed, or terminated.
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From page 227... ...
· Conducted self-advocacy training. · Presented an advocacy workshop at the state Brain Injury Association affiliate's sponsored brain injury summit.
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From page 228... ...
228 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-3 Continued State and Federal State-Based PATBI Grant P&A System Received for Individuals from HRSA with Period: Developmental 9/01/2004 Disabilitiesa 8/31/2006 Goals Under the Federal PATBI Grant Louisiana PATBI 1. Ensure that P&A services are known to individuals Grant: with TBI and their families.
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From page 229... ...
and provide advocacy for · Conducted town meetings and delivered individuals with TBI and their presentations on findings of the Federal TBI families in accessing services Program needs assessment at injury prevention and supports to meet their and rehabilitation conferences. needs.
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From page 230... ...
Massachusetts PATBI 1. Establish a PATBI advisory board including seven Grant: members with TBI or family.
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From page 231... ...
The nursing facility residents with TBI (and others) Maryland Disability Law from accessing needed waivers and community Center will continue to provide services.
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From page 232... ...
4. Develop a TBI advocacy network in conjunction with the Brain Injury Association of America.
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From page 233... ...
· Project staff members attend meetings of The Minnesota Disability Law Minnesota's statewide TBI advisory board. Center will continue to · Participate in meetings with lead state agency for implement its grant objectives TBI and regional Brain Injury Association and provide advocacy for affiliates.
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From page 234... ...
Nebraska PATBI 1. Create an internal advisory structure that Grant: collaborates with Nebraska's statewide TBI advisory Nebraska $150,000 board.
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From page 235... ...
to meet their needs. · Developed a productive working relationship with all of the Federal TBI Program grantees and service providers in the state.
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From page 236... ...
4. Provide legal advocacy planning by developing the capacity of attorneys and case advocates to be able to respond to the most significant issues for those with TBI and their families.
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From page 237... ...
its grant objective and provide · Represented a class of individuals with TBI in a advocacy for individuals with lawsuit against the state challenging the waitlist TBI and their families in under the Medicaid waiver program. accessing services and supports · Took the lead in collaboration with 20 to meet their needs.
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238 EVALUATING THE HRSA TRAUMATIC BRAIN INJURY PROGRAM TABLE C-3 Continued State and Federal State-Based PATBI Grant P&A System Received for Individuals from HRSA with Period: Developmental 9/01/2004 Disabilitiesa 8/31/2006 Goals Under the Federal PATBI Grant New Jersey PATBI 1. Create a blueprint for enhancing current protection Grant: and advocacy services for individuals with TBI and New Jersey $167,640 their families in New Jersey through a consumerProtection & driven planning and assessment process.
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· Served as liaison to New Jersey's statewide TBI advisory board. · Met with staff members of two state representatives in Washington, D.C., to advocate for the needs of individuals with TBI.
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5. Coordinate with the Brain Injury Association of North Carolina to hold focus groups with the existing 23 support groups.
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The Governor's Advocacy Council for Persons with The Governor's Advocacy Disabilities (GACPD) , in collaboration with the Council for Persons with Brain Injury Association of North Carolina, has held Disabilities is working with meetings throughout North Carolina to inform North Carolina's TBI Advisory citizens about the work being done through the Council to shape the service PATBI Grant.
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10. Advocate for the state of North Dakota to pursue and implement Planning and Implementation Grants from the Federal TBI Program.
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· Provided assistance to North Dakota's Department of Human Services in its application to HRSA for North Dakota's TBI Planning Grant and secured private funding to ensure match funds. · One staff attorney serves as member at-large on the Brain Injury Association of North Dakota Board of Directors.
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Oregon PATBI 1. Provide person- and family-directed P&A services Grant: that are responsive to TBI issues, culturally Oregon $100,000 competent, and planned and implemented with Advocacy involvement of persons with TBI and families.
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From page 245... ...
APPENDIX C 245 Continuing Efforts Related to Accomplishments of the State-Based P&A System P&A for Individuals with TBI Under the Federal PATBI Grant and Their Families Communicated with the Oklahoma Department of The Oklahoma Disability Law Health to establish a working relationship on issues Center will continue to related to traumatic brain injuries. implement its grant objectives and provide advocacy for individuals with TBI and families in accessing services and supports to meet their needs.
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Pennsylvania PATBI 1. Increase the availability of and timely access to Grant: services for Pennsylvanians with TBI within their Pennsylvania $186,451 own communities.
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processes and program designs. · The executive director sits on Rhode Island's The Rhode Island Disability statewide TBI advisory board.
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$150,000 2. Publicize the TBI program at the P&A system Protection and through public news media, newsletters of disability Advocacy for organizations and agencies, and the P&A system's People with own newsletter and outreach radio broadcasts.
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· Participated in a coalition of TBI stakeholders in South Dakota Advocacy developing awareness to increase and enhance Services will continue to state TBI services and supports. implement its grant objectives · Linked with the revitalized Brain Injury Association and advocate for individuals of South Dakota, rehabilitation centers, Indian with TBI and their families in reservations, brain injury support groups, and accessing services and supports state agencies.
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4. Develop relationships across the states and support education and advocacy efforts of the Texas TBI advisory board.
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The Disability Law · Conducted two legal rights trainings at Utah's Center was expected to Brain Injury Association affiliate. conduct a focus group on · Participated at the 2004 Brain Injury Association March 17, 2005, with a TBI continues
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3. Collaborate with Vermont's State Implementation Grant awarded by HRSA from the Federal TBI Program in attainment of goals and objectives of the statewide TBI action plan, specifically by improving access to TBI services and increasing TBI expertise of vocational counselors through educational trainings.
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· Project staff members attend all meetings of Vermont Protection and Vermont's statewide TBI advisory board and Advocacy is scheduling steering committee. trainings for individuals with · Developed a training program for individuals with TBI, family members, and TBI, their families, and a service providers.
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These cases will include those with dual diagnosis: TBI and bipolar disorder or TBI and mental retardation.
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· Provided People First and Self-Determination input to the statewide TBI advisory board as it created the TBI Toolkit. · Handled special education legal cases and conducted outreach to the special education community, and attorneys.
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3. Improve Wisconsin's TBI service delivery system through legislation, policy and and impact litigation strategies.
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and their guardians and/or family members. · Appointed to Wisconsin's statewide TBI advisory The Wisconsin Coalition for board.
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Wyoming $100,000 2. Provide information on the TBI Program to P&A organizations statewide.
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dThe Medicaid head and spinal cord injury (HASC) waiver is a type of Medicaid home and community-based services waiver.
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Key Terms
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