From Cancer Patient to Cancer Survivor: Lost in Transition An American Society of Clinical Oncology and Institute of Medicine Symposium (2006) / Chapter Skim
Currently Skimming:
6 Reports from Breakout Sessions
6 Reports from Breakout Sessions
Pages 168-178
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From page 168... ...
Should it be in the language that primary care doctors can interpret? What are we going to do about legal issues?
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From page 169... ...
BUILDING BRIDGES BETWEEN ONCOLOGY AND PRIMARY CARE PROVIDERS Moderator: Steven Wolff, Virginia Commonwealth University Reported by: Regina Benjamin, Bayou La Batre Rural Health Clinic Kevin Oeffinger began our session by giving us a nice overview of the rationale for the shared care model. Pat Legant then talked about clear communication, how important it was, and the fluidity of specialty versus primary care roles, and how responsibility goes back and forth from one provider to the other, and waxes and wanes over time.
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From page 170... ...
The shared care model was discussed and I would like to say that in family medicine particularly, and most of primary care, we have used that model for a long time, but we just haven't called it shared care. When I have a patient that has a heart attack, I send him to a cardiologist.
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From page 171... ...
This model of care is also used with their testicular cancer patients, who after two years of routine follow-up with their oncologist then come in for regular follow-up in the survivorship program. For other types of cancer, cancer center treating oncologists tend to want to continue to follow their patients, and the survivorship clinic staff have developed a team approach.
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From page 172... ...
I just want to add one note to that, which is to reiterate what Eva Grunfeld and others have said in the context of cancer and other diseases as well. One of the tricks between the primary care doctors and the subspecialists is to decide what is commoditizable.
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From page 173... ...
Charles Shapiro described an ASCO initiative he is heading, the creation of a set of survivorship guidelines for the adult population. It is a somewhat more difficult task than the pediatric guideline effort, given the greater heterogeneity of cancers.
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From page 174... ...
Ellen, could you tell us about your session? MAKING BETTER USE OF PSYCHOSOCIAL AND COMMUNITY SUPPORT SERVICES; ADDRESSING EMPLOYMENT AND INSURANCE ISSUES Moderator: Ellen Stovall, National Coalition for Cancer Survivors Our group dealt with some very practical issues, how to make better use of psychosocial and community support services, and also to address issues of employment and insurance.
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From page 175... ...
Luckily in the room were people from The Wellness Community, the Lung Cancer Alliance, Cancer Planet, the Lance Armstrong Foundation, the NCCS, and many other groups who can sustain and support and amplify the wonderful work going on at places like CancerCare. As Diane pointed out, they are only one organization.
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From page 176... ...
And I extrapolated that to mean that a shared care model is needed for a survivorship care plan, a shared model for assuring that all people in this country have equity and access to affordable cancer survivorship care.
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From page 177... ...
We hope to have a session on this model at the 2006 Spring meeting. Julia Rowland from the Office of Cancer Survivorship talked to us about the many dilemmas associated with trying to find survivors and follow them to evaluate their very long-term effects, those experienced more than five years after diagnosis.
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From page 178... ...
Sandra Horning, again made a very important plea for the value of linking these kinds of research studies to clinical trial populations, where again, we know exactly what the treatment exposures are, and then looking at them long-term, particularly if we could have biological specimens to look at risk and genetic DNA repair of genes, and so forth in terms of subgroups of individuals who may be at risk for late effects. And again, these are all issues I think that we feel passionately about.
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