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1 Introduction
Pages 1-5

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From page 1...
... She referred to the Panel's 2003 report in which the Panel found that the HIPAA Privacy Rule slowed research on cancer survivors. She also mentioned increased bureaucracy, informed consent problems, and complications for clinical trials as ways in which the
From page 2...
... was enacted to improve the portability and continuity of health insur ance; combat waste, fraud, and abuse in health insurance and health care delivery; promote medical savings accounts; improve access to long-term care services and coverage; and simplify the administration of health insurance. The Administrative Simplification "Standards for Privacy of Individually Identifiable Health Information" (the Privacy Rule)
From page 3...
... The Forum should hear presentations on the effect of the HIPAA Privacy Rule on health research of various kinds and on the protection of privacy of health information in various situations, although, clearly, given the request from the President's Cancer Panel, the emphasis would be on effects on health research. These proceedings of a workshop presented to the National Cancer Policy Forum are the result of the Forum decision to examine the HIPAA Privacy Rule and its effects on health research and privacy.
From page 4...
... Material from PowerPoints used by speakers to support their presentations has occasionally been added to the text to clarify the speakers' messages as needed. This workshop consumed the major part of a regularly scheduled meeting of the National Cancer Policy Forum.
From page 5...
... Reuben, SH, (Ed.) Assessing Progress, Adancing Change, President's Cancer Panel, 2005­2006 Annual Report, National Cancer Institute, National Institutes of Health, June 2006.

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