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Putting People on the Map Protecting Confidentiality with Linked Social-Spatial Data (2007) / Chapter Skim
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Executive Summary
Pages 1-6

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From page 1...
... Among many possible examples, such research can explore how decisions about health care are made, how young people develop healthy lifestyles, and how resource-dependent families in poorer countries spend their time obtaining the energy and food that they need to survive. The linkage of spatial and social information, like the growing linkage of socioeconomic characteristics with biomarkers (biological data on indi 1
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From page 2...
... CONCLUSION 3: Recent research on technical approaches for reduc ing the risk of identification and breach of confidentiality has demon strated promise for future success. At this time, however, no known technical strategy or combination of technical strategies for managing linked spatial-social data adequately resolves conflicts among the ob jectives of data linkage, open access, data quality, and confidentiality protection across datasets and data uses.
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From page 3...
... RECOMMENDATIONS Recommendation 1: Technical and Institutional Research Federal agencies and other organizations that sponsor the collection and analysis of linked social-spatial data -- or that support data that could provide added benefits with such linkage -- should sponsor re search into techniques and procedures for disseminating such data while protecting confidentiality and maintaining the usefulness of the data for social-spatial analysis. This research should include studies to adapt existing techniques from other fields, to understand how the publica tion of linked social-spatial data might increase disclosure risk, and to explore institutional mechanisms for disseminating linked data while protecting confidentiality and maintaining the usefulness of the data.
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From page 4...
... Recommendation 3: Training in Ethical Issues Training in ethical considerations needs to accompany all method ological training in the acquisition and use of data that include geo graphically explicit information on research participants. Recommendation 4: Outreach by Professional Societies and Other Or ganizations Research societies and other research organizations that use linked social-spatial data and that have established traditions of protection of the confidentiality of human research participants should engage in outreach to other research societies and organizations less conversant in research with issues of human participant protection to increase attention to these issues in the context of the use of personal, identifi able data.
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From page 5...
... Recommendation 8: Licensing Data stewards should develop licensing agreements to provide increased access to linked social-spatial datasets that include confidential infor mation. The promise of gaining important scientific knowledge through the availability of linked social-spatial data can only be fulfilled with careful attention by primary researchers, data stewards, data users, IRBs, and research sponsors to balancing the needs for data access, data quality, and confidentiality.
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Key Terms

  • spatial data
  • research participants
  • data quality
  • data stewards
  • institutional review

  • review boards
  • primary researchers
  • linked data
  • explicit data
  • data users

  • research societies
  • research sponsors
  • protecting confidentiality
  • licensing agreements
  • confidentiality protection

  • technical strategies
  • spatially explicit
  • transforming data
  • data greatly
  • licensing data

  • confidential data
  • support data
  • data adequately
  • share data
  • able data

  • expanded data
  • social data
  • institutional research
  • data linkage
  • human research


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