Cancer Care for the Whole Patient Meeting Psychosocial Health Needs (2008) / Chapter Skim
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Pages 329-342
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should support research and demonstration projects to identify new mechanisms to organize and finance the collection of data from cancer care quality studies. Current data systems tend to be hospital based, while cancer care is shifting to outpatient settings.
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should support demonstration programs to test alternative delivery systems (e.g., telemedicine, PREPUBLICATION COPY: UNCORRECTED PROOFS 331
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Improve awareness of late effects and their implications to long term health among childhood cancer survivors and their families. ♦ Clinicians providing pediatric cancer care should provide survivors and their families written information regarding the specific nature of their cancer and its treatment, the risks of late effects, and a plan (and , when appropriate, referrals)
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d. Efforts to identify quality of cancer care measures should be coordinated with ongoing national efforts regarding quality of care.
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This would be administratively modeled after the supplements that exist for minorities, people with disabilities, and for people reentering research after a hiatus. Investigators with research grants who have interdisciplinary training opportunities should be able to obtain supplemental funds for qualified PREPUBLICATION COPY: UNCORRECTED PROOFS 335
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• Oncology training programs should organize coursework, clinical practicums, and continuing education programs on late effects of cancer treatment for nurses, social workers, and other providers. • Oncology professional organizations should, if they have not already, organize committees or subcommittees dedicated to issues related to late effects.
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Activities should include: but not be limited to the following: ♦ formal testing and evaluation of new and existing practice guidelines for palliative and end-of-life care; ♦ pilot testing "quality indicators" for assessing end-of-life care at the level of the patient and the institution. ♦ Incorporating the best palliative care into NCI-sponsored clinical trials; ♦ Innovating in the delivery of palliative and end-of-life care, including collaboration with local hospice organizations; ♦ Disseminating information about how to improve end-of-life care to other cancer centers and hospitals through a variety of media; ♦ Uncovering the determinants of disparities in access to care by minority populations that should be served by the center, and developing specific programs and initiatives to increase access; these might include educational activities for health care providers and the community, setting up outreach programs, etc.; .
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Patients should receive care based on PREPUBLICATION COPY: UNCORRECTED PROOFS 338
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2003. New Freedom Commission on Mental Health PREPUBLICATION COPY: UNCORRECTED PROOFS 339
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