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Breakthrough Business Models Drug Development for Rare and Neglected Diseases and Individualized Therapies: Workshop Summary (2009) / Chapter Skim
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Appendix C: Resources
Pages 128-132

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From page 128...
... http://www.rarediseases.org/ FasterCures, The Center for Accelerating Medical Solutions http://www.fastercures.org/ See white paper: Entrepreneurs for Cures: The Critical Need for Innovative Approaches to Disease Research, May 30, 2008. http://www.fastercures.org/objects/pdfs/white_papers/FastercuresWP_ Innovation_052808.pdf Drugs for Neglected Diseases initiative (DNDi)
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From page 129...
... Title 21: Food and Drugs (21 CFR) Chapter I: Food and Drug Administration, Department of Health and Human Services (Parts 1–1299)
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From page 130...
... http://www.autm.net/aboutTT/aboutTT_umbta.cfm Principles and Guidelines for Recipients of NIH Research Grants and Contract on Obtaining and Disseminating Biomedical Research Resources http://www.ott.nih.gov/policy/reasearch_toolarchive.html Examples of Data and Materials Sharing Repositories NIH AIDS Research and Reference Reagent Repository https://www.aidsreagent.org/Index.cfm MR4: Malaria Research and Reference Reagent Resources Program http://www.mr4.org/ BEI Resources: Biodefense and Emerging Infectious Diseases Research Resources Repository http://www.beiresources.org/ ScienceCommons Biological Materials Transfer Project http://sciencecommons.org/projects/licensing/ LONI Image Data Archive https://ida.loni.ucla.edu/login.jsp? project=ADNI%2f
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From page 131...
... APPENDIX C 131 Genetic Alliance BioBank http://biobank.org Intellectual property Management Socially Responsible Licensing at Berkeley -- Humanitarian Use Clauses in Contracts http://ipira.berkeley.edu/ -- then "Socially Responsible IP Management" link Clinical Trials Small Clinical Trials: Issues and Challenges (IOM report, full text free online) http://www.iom.edu/CMS/3740/5483.aspx ClinicalTrials.gov Registry http://clinicaltrials.gov/ Declaration of Helsinki, the World Medical Association http://www.wma.net/e/policy/b3.htm
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Key Terms

  • reference reagent
  • resources repository
  • malaria research
  • disseminating biomedical
  • biological materials

  • uniform biological
  • neglected diseases
  • materials transfer
  • resources program
  • diseases initiative

  • transfer agreement
  • infectious diseases
  • loni image
  • business innovation
  • image data

  • agreements uniform
  • material transfer
  • translational science
  • sharing repositories
  • nih aids

  • materials sharing
  • reagent repository
  • emerging infectious
  • diseases research
  • biological material

  • science awards
  • aids research
  • nih research
  • data archive
  • repositories nih


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