Beyond the HIPAA Privacy Rule Enhancing Privacy, Improving Health Through Research (2009) / Chapter Skim
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Appendix C: Committee Member and Staff Biographies
Appendix C: Committee Member and Staff Biographies
Pages 301-310
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From page 301... ...
Professor Gostin is the Health Law and Ethics Editor of the Journal of the American Medical Association and serves on the editorial boards of many other scholarly journals. His recent books have included: The AIDS Pandemic: Complacency, Injustice, and Unfulfilled Expectations (2004)
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As Project Director, she coordinated all aspects of the projects, including Institutional Review Board and Special Project Assurance requirements, site access, subject recruitment and informed consent procedures, research team training, data collection, and data coding. She served on the Institutional Review Board for Health Sciences for over 3 years.
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In 1999, he received a Robert Wood Johnson Foundation Investigator Award in Health Policy Research for conceptualizing the social, economic, and cultural issues underlying health care outcomes. He has published widely and serves as a reviewer for many publications, including Health Services Research, Health Affairs, Archives of General Psychiatry, and the American Journal of Managed
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Jackson, Ph.D., is a Daniel Katz Distinguished University Professor of Psychology, Professor of Health Behavior and Health Education, School of Public Health, and Director of the Institute for Social Research; past Director of the Research Center for Group Dynamics, past Director of the
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grants. He is currently directing the most-extensive social, political behavior, and health surveys on the American and Caribbean populations ever conducted; the National Institute of Mental Health, the National Institute on Aging, and the National Institute on Drug Abuse supported "National Survey of American Life" and "Family Survey Across Generations and Nations," and NSF-supported "National Study of Ethnic Pluralism and Politics." Mary Beth Joublanc, J.D., is the Chief Privacy Officer for the State of Arizona, Arizona Government Technology Agency.
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From page 306... ...
He also serves on the Data and Safety Monitoring Committees for diabetes prevention trials and a HIV vaccine trial at the National Institute of Allergy and Infectious Disease. He is a member of the Ethics Working Group of the NIH-sponsorsed HIV Prevention Trials Network, which carries out clinical trials in developing countries.
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Professor Rotenberg has served on advisory panels for the American Bar Association Section on Criminal Justice, the American Association for the Advancement of Science, the Austrian Institute for Law and Policy, the National Academy of Sciences, UNESCO, and the Organization for Economic Cooperation and Development. He chairs the American Bar Association Committee on Privacy and Information Protection.
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From page 308... ...
Yancy was a professor of internal medicine and cardiology and holder of the Carl Westcott Chair in Medical Research at the University of Texas Southwestern Medical Center in Dallas where he served as director of its heart transplant program. He also is credited with establishing the medical center's heart failure program and cardiovascular institute.
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With a Ph.D. in Cell and Tumor Biology from Georgetown University and postdoctoral training at the Johns Hopkins University School of Medicine, she has authored numerous papers on the cell and molecular biology of breast cancer.
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Beginning in May 2005, he has directed the IOM National Cancer Policy Forum, which includes federal and private-sector cancer relevant agencies or organizations in addition to academic/industry members. In October 2007, he was also appointed Director of the IOM Board on Health Care Services.
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