Initial National Priorities for Comparative Effectiveness Research (2009) / Chapter Skim
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Appendix B: Stakeholder Questionnaire
Appendix B: Stakeholder Questionnaire
Pages 171-188
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Appendix B Stakeholder Questionnaire 171
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The legislation also requires the IOM committee to solicit and consider public input as it develops its recommendations. This questionnaire is a primary vehicle by which the committee will collect information on the priorities of all stakeholders in health care (e.g., patients, consumers, providers, state and fed eral agencies, employers, manufacturers, policy makers)
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Therefore, to facilitate the committee's re view of each response, we ask that you characterize each of your priorities by specifying the follow ing: A single sentence that frames your research question (include condition, compari son, and outcome of interest) Justification for why the question should be a national priority Area to be studied (e.g., cardiovascular and peripheral vascular disease, racial and ethnic disparities in health care, nutrition)
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Please consider the following criteria in your justification: disease burden increasing prevalence morbidity and mortality variability in care cost information gap (e.g., little is know about this topic) funding gap (e.g., minimal research is being done on this topic)
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Liver and Biliary Tract Disease Musculoskeletal Disorders Neurologic Disorders Oncology and Hematology Psychiatric Disorders Respiratory Disease Trauma, Emergency Medicine, Critical Care Medicine Medical Aspects of Bioterrorism Nutrition (includes Obesity) Complementary and Alternative Medicine Alcoholism, Drug Dependency, and Overdosage Functional Limitation and Disabilities Birth and Developmental Disorders Genetics and Disease Regenerative Medicine (e.g., stem cell research)
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Primary research using prospective data collection without randomization (e.g., observational study, registry) Primary research through a prospective randomized trial Other (please specify)
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Please consider the following criteria in your justification: disease burden increasing prevalence morbidity and mortality variability in care cost information gap (e.g., little is know about this topic) funding gap (e.g., minimal research is being done on this topic)
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Liver and Biliary Tract Disease Musculoskeletal Disorders Neurologic Disorders Oncology and Hematology Psychiatric Disorders Respiratory Disease Trauma, Emergency Medicine, Critical Care Medicine Medical Aspects of Bioterrorism Nutrition (includes Obesity) Complementary and Alternative Medicine Alcoholism, Drug Dependency, and Overdosage Functional Limitation and Disabilities Birth and Developmental Disorders Genetics and Disease Regenerative Medicine (e.g., stem cell research)
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Primary research using prospective data collection without randomization (e.g., observational study, registry) Primary research through a prospective randomized trial Other (please specify)
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Please consider the following criteria in your justification: disease burden increasing prevalence morbidity and mortality variability in care cost information gap (e.g., little is know about this topic) funding gap (e.g., minimal research is being done on this topic)
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Liver and Biliary Tract Disease Musculoskeletal Disorders Neurologic Disorders Oncology and Hematology Psychiatric Disorders Respiratory Disease Trauma, Emergency Medicine, Critical Care Medicine Medical Aspects of Bioterrorism Nutrition (includes Obesity) Complementary and Alternative Medicine Alcoholism, Drug Dependency, and Overdosage Functional Limitation and Disabilities Birth and Developmental Disorders Genetics and Disease Regenerative Medicine (e.g., stem cell research)
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Primary research using prospective data collection without randomization (e.g., observational study, registry) Primary research through a prospective randomized trial Other (please specify)
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NOTE: The drop down choices for question 22 included the following: Disease burden Increasing prevalence Morbidity and mortality Variability in care Cost Information gap Funding gap Public interest Controversy Disproportionate impact by subpopulation Potential to act on the information Utility of the answer for decision making
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Clinical trials support (e.g., ad hoc collaborations) Clinical data pooling and mining support Novel method development for data analysis and modeling Clinical registry development, application, and networking Creation of robust national registries for tracking both short- and long-term performance of therapeutic strategies, drugs, or devices Capacity to use electronic health records for safety and effectiveness monitoring Inclusion or creation of direct patient data entry (e.g., questionnaires, surveys, personal health records to provide patient-reported outcomes)
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Manufacturer (Drug or Biologic) Other (please specify)
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