Patients Charting the Course Citizen Engagement and the Learning Health System: Workshop Summary (2011) / Chapter Skim
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Appendix A: Workshop Agenda
Appendix A: Workshop Agenda
Pages 247-252
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Progress in medical science, basic research, information technology, and operations research offers the potential for immediate, continuous, and transformative improvement in health care.
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Harvey Fineberg, Institute of Medicine 9:30 Session 1: Clinical research, patient care, and learning that is real time and continuous What is needed to improve the efficiency, effectiveness, and volume of clinical research; and, how might capacity be structured to sup port a system of real-time and continuous learning that anticipates research needs and produces and applies evidence that is timely, relevant, and applicable to real-world care? Chair: Joel Kupersmith, Veterans Health Administration Ø Comparative effectiveness research -- accounting for patient, clini cian, and policy needs Patrick Conway, Office of the Secretary, Department of HHS Ø Health systems as research platforms -- enhancing science, value and innovation Sherine Gabriel, Mayo Clinic
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Chair: Karen Smith, AstraZeneca Ø Information needs for the learning healthcare system Farzad Mostashari, Office of the National Coordinator for HIT Ø Opening access to high-value data sets Todd Park, Department of Health and Human Services Ø Ensuring data integrity -- implications of privacy protection and proprietary concerns Don Detmer, University of Virginia [Lunch 12:30–1:00] 1:00 Session 3: Engaging patients to improve science and value in the Learning Health System What is meant -- theoretically and practically -- by patient engage ment in health care, how might health systems better learn from patient participation across health system activities -- as consumers, actors and research subjects -- and what are the implications related to clinical science, healthcare delivery, and patient engagement strategies?
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Ø HIT-based approaches to care management and shared decision-making Paul Tang, Palo Alto Medical Foundation Ø Health and disease management outside the clinic doors Doriane Miller, University of Chicago Medical Center 5:30 WRAP-UP COMMENTS
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Dale Collins Vidal, Dartmouth Institute for Health Policy and Clinical Practice Ø Evidence standards and application approaches that help get the right care to the right patient at the right time Clifford Goodman, The Lewin Group Ø Translation and communication needs for care under evidence uncertainty Fran Visco, National Breast Cancer Coalition 10:30 Session 7: Team-based care and the learning culture What is meant by team-based care, how might it look in a learning healthcare system, and should, or how should, caregiver culture and practice vary by circumstance? What are the implications for health professions education and training?
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Michael McGinnis, Institute of Medicine Ø Kathy Buto, Johnson & Johnson Ø Helen Darling, National Business Group on Health Ø Deborah Trautman, Johns Hopkins Medicine Center for Health Policy Ø Myrl Weinberg, National Health Council
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